Sunlounger in Katowice 13th Jan

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.
User avatar
sunlounger
Family Elder
Posts: 110
Joined: 9 years ago

Sunlounger in Katowice 13th Jan

Post by sunlounger » 9 years ago

Hi all,

Arrived today in Katowice ready to see Dr Simka and Dr Hartel on Monday for a MRV,Doppler on Tues and possible treatment on the 13th :D

I managed to get Dr Haacke's MR Protocol done in the U.K but the Radiologist said there was no obvious venous obstruction.
When I looked at the images last night it looked like there was clearly a problem high up on my right internal jugular. ??
I'm going to phone Dr Simka Monday morning and see if he can take a look at these images.
Hopefully they will be good enough so I won't have any need for a further MRV and no more contrast (gadovist) injected. :(

I will post how the tests go Mon and Tues.

Stefan
34 RR2003 SP2005 EEDS 6.5

User avatar
ozarkcanoer
Family Elder
Posts: 1273
Joined: 9 years ago
Location: St. Louis, Missouri
Contact:

Post by ozarkcanoer » 9 years ago

Good luck with the good doctor, sunlounger ! I am interested to hear what Dr Simka has to say about your "normal" MR protocol, since he is one of the experts at finding these problems.

ozarkcanoer

User avatar
Brynn
Family Elder
Posts: 116
Joined: 9 years ago
Location: Spokane, Wa
Contact:

Post by Brynn » 9 years ago

How exciting, Sunlounger! We will love to hear all your details! Perhaps you could ask Dr Simka if he anticipates putting additional teams together, which might move up his scheduling!! :D There is nothing better than hearing about all this improvement, but it makes my September date seem a long way away! :D Well, have a fabulous, productive week!! Brynn
41 years old, dx 1998, current EDSS 6.5

User avatar
sunlounger
Family Elder
Posts: 110
Joined: 9 years ago

Post by sunlounger » 9 years ago

There is his colleague Dr Kostecki in Tychy(Poland) kosteckj@op.pl providing Doppler testing but not sure if he is also arranging procedures ?
I will try and find out as much as possible this week :D

User avatar
crocky
Family Member
Posts: 69
Joined: 9 years ago

Post by crocky » 9 years ago

Hi Stephan

Didn't realise u were sunlounger! Wishing you all the very best again, and we are all really looking forward to hearing how it goes - regards Suzanne

User avatar
RedPepper
Getting to Know You...
Posts: 19
Joined: 9 years ago
Location: Ireland
Contact:

Post by RedPepper » 9 years ago

Hi Sunlounger!

Wishing you a great meeting with the doctor tomorrow. But first a good night's sleep.
Bravo for getting there! What a way to start a new year and a new decade!



:wink:
*hug*

RedPepper

User avatar
alby
Family Member
Posts: 87
Joined: 9 years ago
Contact:

all the best to you

Post by alby » 9 years ago

me and everyone else are anxiously waiting for more info from you. hope for success.

User avatar
SandyK
Family Elder
Posts: 221
Joined: 9 years ago
Location: WA
Contact:

Post by SandyK » 9 years ago

Good luck to you. I hope you come back fresh as a daisy!
Diagnosed 1994, Self EDSS is 6.5

Edser
Family Elder
Posts: 152
Joined: 9 years ago
Location: Co.Cork.Ireland.

Post by Edser » 9 years ago

Good Morning TiMS & Stefan.
I wish you the best of luck & i hope Marian can do something for you. :D
Slainte Mo Chara
Edser & Anna
Never judge a Book by it's cover.
Edss Before Procedure:6
Edss After Procedure:4

User avatar
Mutley
Family Elder
Posts: 209
Joined: 9 years ago
Location: England
Contact:

Post by Mutley » 9 years ago

Good luck Sunlounger, hope all goes well today!!
Mutley goes to Poland 1st symptom was Optic Neuritis in 1998, DX RRMS Jan 2001, DX SPMS 2007. Last EDSS by doctor 7.5

User avatar
pgm1
Family Member
Posts: 73
Joined: 9 years ago
Location: Canada
Contact:

Post by pgm1 » 9 years ago

Hi Sunlounger

Hope all goes well for you

Pam :)

User avatar
Johnson
Family Elder
Posts: 979
Joined: 9 years ago
Location: Ucluluet, BC
Contact:

Post by Johnson » 9 years ago

Wow! So soon.

Best of luck, and healing vibes.
My name is not really Johnson. MSed up since 1993

User avatar
sunlounger
Family Elder
Posts: 110
Joined: 9 years ago

Post by sunlounger » 9 years ago

Hi all,

Thanks for your support. :D

Yesterday I went to meet Dr Hartel at the department of magnetic resonance in Zabrze and had a few further scans but he could not tell me if I had any signings of CCSVI. So I came back to the hotel a bit upset still unsure.

Today I went to meet Dr Simka at EuroMedic in Rolna Street Katowice.
He asked me too lie down on the table for the Doppler examination.
Straight away he said I have a problem on my left jugular about half way down also there could be a problem high on my right but would need the venogram tomorrow to check this more. :D

So I am very happy and excited to say I will be having the procedure tomorrow ether angioplasty or if needed a stent :D

I couldn’t feel in any safer hands than Dr Simka and his team. :D

When I was waiting at Dr Simka’s for my taxi this 82 year old lady came up to me speaking quite good English and gave me a saint christopher pendant saying that I was going to be lucky in Poland and also for the rest of my life and she would pray for me for all the year. :D

wow this nearly moved me to tears but I'm still holding it together just :D

Should be back at the hotel Thursday when I'll hopefully be liberated wooo hoooo :D :D :D :D :D :D

User avatar
Robnl
Family Elder
Posts: 668
Joined: 9 years ago
Contact:

Post by Robnl » 9 years ago

Amazing experiences Sunlounger :D

While you are there, could you ask dr Simka when the March/April dates will be send to de patients planned for these months?

Thx

Rob

User avatar
RedPepper
Getting to Know You...
Posts: 19
Joined: 9 years ago
Location: Ireland
Contact:

Post by RedPepper » 9 years ago

What super news this is old boy! :D

Exciting times, and that's also a beautiful story ... Good luck, x

Post Reply