CCSVI AND MS IN EUROPE

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.
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INONU
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CCSVI AND MS IN EUROPE

Post by INONU » 9 years ago

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I read all messages about the CCSVI and the places where the treatment is possible; is there some body who know about some hospitals in Spain or France that begin to treat MS' patients.Thank you so much for your help.
INONU
my daughter ms'patient since 2001

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Acheron
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Post by Acheron » 9 years ago

Hi,

The neurologists at National Health System in Spain don't seem to be much interested in CCSVI. I have also contacted the National MS Society, but their answer is that they do not recommend the liberation procedure, not even the testing (unbelievable).

My sister has an appointment with Dr.Simka in Poland to get a doppler and a MRV.

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robin50
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HELLO from germany

Post by robin50 » 9 years ago

hello girls,

i follow the discusions and the infos in the ccsvi board since beginning...well, the vistis to poland increase in the last months enormous and the therapy gets more and more expensive...some 100 people are still on the "waiting list" of dr simka...i myself have no interest, my ms iss constant since some years.

two german universities are also active...frankfurt and jena, but only diagnosis, no op s...

whats going on in france, i don t know...may they wait also on results out of the now running buffalo study?

R in germany nick "günni"
:wink: :wink: :wink:

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Algis
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Post by Algis » 9 years ago

There will certainly be some studies/centers in France or Belgium - I cant believe otherwise....

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Robnl
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Post by Robnl » 9 years ago

My spanish is bad :lol: :lol:

http://www.esclerosismultiple.com/pdfs/2009/CCSVI FELEM 22 12 09.pdf

But it is something about ccsvi....

And France:
http://www.lfsep.com/article_actualite. ... rubrique=1

Rob

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Algis
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Post by Algis » 9 years ago

It is roughly the same as others CCSVI presentations. Last paragraph about "Shall I get tested for CCSVI"? says like all the others:

"No; except you are in study to explore this prospect. It is right now not proven nor there is evident relation between venous abnormalities and MS."

Maybe someone has the courage/time to translate all of the document.

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Algis
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Post by Algis » 9 years ago

The French report is more positive tho; explaining that Canada and US enrolled patients for testing/studying the theory.

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thisisalex
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Post by thisisalex » 9 years ago

INONU,

here you can read about doctors is Europe
http://liberation-treatment.com/liberat ... nt/doctors

there is also an ultrasound clinic, only for diagnosis in Slovenia
Http://www.mc-sinigoj.si

alex

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robin50
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Post by robin50 » 9 years ago

thisisalex wrote:INONU,

here you can read about doctors is Europe
http://liberation-treatment.com/liberat ... nt/doctors

there is also an ultrasound clinic, only for diagnosis in Slovenia
Http://www.mc-sinigoj.si

alex
:D :D 8O - i cannot read what they wrote in slovenia...no alex...

"our big european problem"

are the so much different languages...not so many people trust themself, to "write" in english and make mistakes :roll:

R

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Ana
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Re: CCSVI AND MS IN EUROPE

Post by Ana » 9 years ago

INONU wrote:
I read all messages about the CCSVI and the places where the treatment is possible; is there some body who know about some hospitals in Spain or France that begin to treat MS' patients.Thank you so much for your help.
INONU
Hello INONU,

this might interest you:
http://csvi-ms.net/forum_fr/viewtopic.php?f=2&t=8
http://csvi-ms.net/forum_fr/viewtopic.php?f=2&t=11#p45

Bonne chance!
Ana

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Zeureka
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Post by Zeureka » 9 years ago

Would anyone have a contact in Belgium?

I have a first doppler exam result from Poland: left jugular vein occlusion by pathologic valve.

Since have social security/med care in Belgium would be good to know who could contact for an MRV-follow-up. I will also ask my generalist there, but if already got a name of a helpful doctor (angiography?) or hospital that would be great.

Thanks

Steffi

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Zeureka
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Post by Zeureka » 9 years ago

Sorry, was posted twice
Last edited by Zeureka 9 years ago, edited 1 time in total.

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Pepe
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Post by Pepe » 9 years ago

INONU,

As far as I know there is no Hospitals in Spain treating CCSVI.
Pepe.
María was Dx RRMS 1996. SPMS since 2003; Dx CCSVI by Dr. Simka on Dec.-2009; Balloon angioplasty on Jan.-2010 in Katowice (Poland); Betaseron (2000-2009); Tysabri since June 2009. BBD since 2003. IBT since Jan.-2010.

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thisisalex
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Post by thisisalex » 9 years ago

robin50 wrote:
i cannot read what they wrote in slovenia...

"our big european problem"
but there is an american solution to our european problem... google translate :D

http://translate.google.com/translate?j ... l=de&tl=en

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