Findings at FCSC Vancouver/Canada

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.
User avatar
mangio
Family Elder
Posts: 288
Joined: 9 years ago

Post by mangio » 9 years ago

Interventional Radiologist. They were the first to have Dr. Zamboni
speak at their annual Vascular symposium well before anyone else.
bye

User avatar
Bentley
Newbie
Posts: 2
Joined: 9 years ago

Post by Bentley » 9 years ago

mangio wrote:Heh Johnson, thanks for your post. I can't get the stents because
I have so many complications from other autoimmune problems.
But I have decided to try angioplasty and hope that will be okay.
An ex-beau that is a surgeon in Victoria has talked to me at length
about all this from his experience with stents and given me some
strong advice to ponder.

He also told me he heard of a surgeon doing the liberation procedure on a very young person in eastern canada this month mostly
on compassionate grounds because of the severe nature of the
ms and was found to have ccsvi. But nobody else can
get the surgery until the data is clear enough to support Dr. Zamboni's
theory. He felt if the results were okay at Hamilton many in the I.R.
field would jump on this. He got paid as little as 400.00 for some
surgeries he did (out patient ) and thought he would get about
1200 for ccsvi. I told him he needs to work in Poland!

User avatar
MarkS
Newbie
Posts: 1
Joined: 9 years ago

False Creek Findings

Post by MarkS » 9 years ago

I had an Ultrasound and MRV at False Ceek Clinic and they found nothing. Either they are not using the proper protocols and the testing is flawed or maybe they are correct and CCSVI is not the cause of my MS. Seems strange that Dr. Zamboni and others have found most patients had a stenosis but not so much in Candada

User avatar
Billmeik
Family Elder
Posts: 696
Joined: 9 years ago

Post by Billmeik » 9 years ago

really you should ask for your money back. Its a procedure that demands a transcranial dooppler and they don't have one. The whole doubt in ccsvi is caused by the fact that if you take scans like you always have, you don't see it. False creek is over the line, if they did 40 people then 20 times 2000, 40 grand has been taken from patients under false assumptions and should be returned. Profiting from incompetence is not on.

User avatar
goddles
Newbie
Posts: 8
Joined: 9 years ago
Location: Vancouver

out of line?

Post by goddles » 9 years ago

Actual bilmiek you are the one out of line
I am returning from the Hamilton meeting were it was widely acknowledged that Ccsvi needs further studying. Transcranial dopler was hardly mentioned and is not a requirement . In fact. The most definitive test is venograghy.
MRV needs further fine tuning as pointed out by Dr Haacke
Anyway to suggest that False Creek is incompetent is bordering on defaming the good work we do.
Any unhappy patient that received care at our centre can call me or send me a personal PM and I will be happy to provide all the possible help at my disposal.

User avatar
cah
Family Elder
Posts: 336
Joined: 9 years ago
Location: Germany

Post by cah » 9 years ago

Dr. Godley,

first of all, let me tell you how much I appreciate that you come over here and talk to us. So what would your explanation be for the big differences in the percentage of vein stenosis found in your and Dr. Zamboni's patients?
"There is only one good, knowledge, and one evil, ignorance." Socrates

User avatar
mangio
Family Elder
Posts: 288
Joined: 9 years ago

Post by mangio » 9 years ago

It should also be noted that Stanford does not do transcranial.
I apologize sincerely for these on-going professional attacks by
certain members of ThisIsMs and am personally very embarrassed
by it all. I would hope that one of the elders or moderators
of this forum would be big enough to step-up and take some
responsibility for this ill advised dialogue. Shame on B.M.

Lyon
Family Elder
Posts: 6061
Joined: 12 years ago
Contact:

Post by Lyon » 9 years ago

.
Last edited by Lyon 7 years ago, edited 1 time in total.

User avatar
mshusband
Family Elder
Posts: 249
Joined: 9 years ago
Location: Pittsburgh, PA, USA
Contact:

Post by mshusband » 9 years ago

post removed by moderator

Lyon
Family Elder
Posts: 6061
Joined: 12 years ago
Contact:

Post by Lyon » 9 years ago

post removed by moderator

AlmostClever
Family Elder
Posts: 366
Joined: 9 years ago
Location: Houston, TX
Contact:

Post by AlmostClever » 9 years ago

It's easy to sit back and say something needs furthur studying.

I am certain that "furthur studying" is widely acknowledged at every other medical seminar as well - cancer, AIDS, toe fungus, whatever...

The fool who publicly says something does not warrant further study (or declares a cure for that matter) and is then proven wrong has in effect written his own professional credibility death sentence. CCSVI will certainly offer plenty of oppurtunities for each side...




Doc. G, Thanks for your message and I am sure we all look forward to furthur updates about the conference. Profit motive aside, I can really appreciate the fact that False Creek was willing to take the initiative to begin offering this testing. Confidence and perfection will follow with more experience and technology advancement. Sincerest Regards -
If you can't explain it simply, you don't understand it well enough. - Al Einstein

User avatar
ozarkcanoer
Family Elder
Posts: 1273
Joined: 9 years ago
Location: St. Louis, Missouri
Contact:

Post by ozarkcanoer » 9 years ago

On the Facebook page "Ed Weiss" says exactly the opposite from "godles" about Doppler ultrasound vs MRI/MRV. So who is telling the truth ? We will all be able to see when the video of the conference is online :

"Hi all. I attended the workshop today, and let me tell you, the cookies they served were really good. In all seriousness, it was quite an interesting day, and I learned a lot, including how many aspects of CCSVI are still waiting to be studied and explored. The audience was pretty receptive to the information presented; only one or two questioners posed any kind of challenge to the findings. I compiled some notes, but they're rather voluminous, and presumably once the video comes online you can watch it for yourself.

It seems like the work of Drs. Zamboni, Haacke, and Zivadinov are really starting to come together to form a coherent picture of things. One item of clinical interest for you was the emphatic point by Dr. Zivadinov that MRV (MRI venography) appears to be quite inferior to ultrasound when it comes to detecting CCSVI, at least when the ultrasound is done by people properly trained to look for it. He also mentioned an exciting press release coming out next week.

One of the other interesting general points made was that progress in moving CCSVI from bench to bedside, as it were, is happening remarkably fast for something of this nature and scale. It sounds like there's definitely reason to be optimistic."

ozarkcanoer
Last edited by ozarkcanoer 9 years ago, edited 1 time in total.

User avatar
mshusband
Family Elder
Posts: 249
Joined: 9 years ago
Location: Pittsburgh, PA, USA
Contact:

Post by mshusband » 9 years ago

Exactly ...

User avatar
prairie
Family Member
Posts: 44
Joined: 9 years ago
Contact:

why call names?

Post by prairie » 9 years ago

Lyon,
there you go again calling people names. Why do that? If your arguments are persuasive you have no need to resort to name calling.

User avatar
TFau
Family Elder
Posts: 222
Joined: 9 years ago
Contact:

Post by TFau » 9 years ago

Um, that was a really inappropriate and shocking response, Lyon!
Last edited by TFau 9 years ago, edited 1 time in total.

Post Reply
  • Similar Topics
    Replies
    Views
    Last post
  • US vs Canada
    by koneall » 1 year ago » in General Discussion
    12 Replies
    865 Views
    Last post by tzootsi
    4 months ago
  • Canada wins MS
    by jimmylegs » 5 months ago » in General Discussion
    1 Replies
    436 Views
    Last post by jimmylegs
    5 months ago
  • MS in Canada and the Americas
    by jimmylegs » 3 months ago » in General Discussion
    0 Replies
    427 Views
    Last post by jimmylegs
    3 months ago