This is happening more and more and it gets me so frustrated, especially as my work don't know why. I end up telling my leg off! Is there anything I can do to control it better or improve it, or is that just how it's going to be now?
I have been told by a couple of docs though that a dx of ms looks likely.
In the meantime I just get frustrated and scared by all the uncertainty and what's going on.
- Family Elder
- Posts: 2197
- Joined: Mon Sep 11, 2006 2:00 pm
- Location: Dayton, Ohio USA
I think it is important for you to get at least some information about MS.
As a first glance you might want to check out the wikipedia articel on MS:
Some info regarding a potential steroid treatment:
- The likly regime you would get is 1000mg IV cortison over five following days.
- Maybe oral steroid afterwards for about 10 days. (There are different regimes in use)
- The short strong steroids puls does have some temporaly sideeffects but they are different compared to a low dose intake (like 10mg) over a long period. I usually experience sleep disorders, mood swings and reduced acuteness of vision.
- All sideffects are regarded as transient.
- The steroids quickly bring down the inflamation and at least should keep an MS relaps from getting worse.
- Especially at the beginning of MS one can expect that steroids restore some or all of the lost functionality, though there is no guarentee for it.
Like the others I also would strongly recommend not to wait until january.
All the best
I will call my doctor and see if she can do anything to speed it up.
For symptomatic relief, I have used 4-AP (the basis for Fampridine which is now in testing). It doesn't totally make the symptoms disappear, but the little change I notice makes a BIG difference to how "disabled" I feel. It is not for recovery from a relapse, and a study has been published noting it may even slow down recovery from any damage.MrsGeorge wrote:Is there anything I can do to control it better or improve it, or is that just how it's going to be now?
I have seen another post here where someone (ok, only one) has noted some improvement in muscle control from Modafin (Provigil) (my next experiment in an attempt to get off of 4-AP..)
Get a stick. It stops people thinking you are drunk, for one thing, and will prevent you from falling, and make you more confident about moving about. The next time you fall you could easily break something, and the stress could start another relapse.
They do really fine sticks nowadays, including folding ones you can pop in your bag.
Would like to know what you all think?