Welcome to ThisIsMS, amyjo.amyjocaruso wrote:Hello. I have MS. I have lost 15 pounds in the past year, have been tested for "everything" under the sun. They have found I have protein deficiencies. I have a very good appetite. I have always been a small-framed person, tiny as a child, largest size I have ever worn as a woman (after having children) is a size 4. I wear a size 1 to size 2 now and do not like it at all. I would like some suggestions, advice, comments from anyone. My neurologist has such a bad bedside manner.
I assume that the list of "everything" tested included a fasting blood insulin test? Insulin is necessary for the human body to put on weight (muscle or fat).
I hope that testing for a possible vitamin B12 deficiency was also done. (Even if the serum B12 test, the serum folic acid test, the serum homocysteine test, and the urinary methylmalonic acid test did not indicate a deficiency, there can still be a functional deficiency in the tissues.)
Since you have protein deficiencies, is it possible that you have a gluten sensitivity? A gluten sensitivity can develop at any age; it can damage the intestines and interfere with nutrient absorption (this is not necessarily accompanied by "typical" GI symptoms) – so you may be eating enough, without absorbing enough.
These are the starting guidelines for testing from the University of Chicago:
http://peripheralneuropathycenter.uchic ... #bloodtest
All the best to you.Blood tests
Blood tests are commonly employed to check for vitamin deficiencies, toxic elements and evidence of an abnormal immune response.
Depending on your individual situation, your doctor may request certain laboratory tests to identify potentially treatable causes for neuropathy. These include tests for:
Vitamin B12 and folate levels
Thyroid, liver and kidney functions
Oral glucose tolerance test
Antibodies to nerve components (e.g., anti-MAG antibody)
Antibodies related to celiac disease
Hepatitis C and B