It has gotten to the point where she can't swallow her food most times - she has lost about 80 pounds in the past 10 months, it's been getting worse and worse. She is also sufferring immensly from the stress her children (teenagers) are causing for her.
I've been reading up on a surgery that can potentially cure MS, but it hasn't been legalized yet in the country I live in.. It seems to me that my country/the USA is more worried about the big drug companies losing big money if they legalize it, and as you can tell my auntie is in urgent need to have this operation..
I would like to know, where is someplace she can get this surgery performed? How much does it (generally) cost? Is there anybody who has a phone number or information to send to me about where to go? Is there anybody who has had this operation, and if so, what are your experiences?
I'm only 17, so I don't know much about this.. But I do know that if somebody doesn't do something to help her, she is going to die.
If anybody has information on where she can go/who to contact, I would appreciate it so much..
First, go to the CCSVI forum here on TIMS--your info is there, but you will have to scroll thru a lot--
I will have more time this evening, and can then (probably faster than you, since I am familiar with the material) try to get some of the info to post here for you.
Also--this is not the best forum to get this info--it would be better for you to post your request on the CCSVI forum. (first forum listed under Treatment).
Here is one place in the US--Albany--that is currently doing the procedure:
http://www.communitycare.com/Practices/ ... /CCSVI.asp
I got an email from a clinic in Glasgow, Scotland (UK) doing the procedure and testing for about $8000 US dollars.
http://www.essentialhealthclinic.com/we ... ation.html
I don't know how good they are, but I am looking out to hear how others get on over the next year before committing to going ahead with it.
Hope you get somewhere soon for you auntie.
RR-MS dx 1998 and Coeliac dx 2003
Tecfidera, Cymbalta, Baclofen.
EPO, Fish Oils, Vitamin D3 2000 IU, Magnesium, Multivitamin/mineral, Co-Enzyme Q10, Probiotics, Milk Thistle, Melatonin.