For almost a year now, I've been experiencing a symptom that is somewhere between an electrical zap and a vibration. It's over very quickly - just a momentary jolt. I mostly feel it in my head, toward the back. Often it's just in the head. Occasionally I feel it in my chest, too. Almost like there's a string connecting the back of my head to the center of my chest, and it's just been plucked. At first I thought it was a cardiac/vascular thing, but I had a heart monitor, and it showed no abnormal cardiac activity when this was symptom occurs.
I have noticed that it tends to happen when my neck is bent, or when my whole body is bent over - and in fact it has happened several times in a barber's chair. But it doesn't happen every time I bend my neck. Far from it. I can't make it happen by moving in a particular way. And it also happens when my neck isn't bent, at random times. It's even happened when I'm lying in bed, flat on my back.
Could this be L'hermitte's, or does it have to be something else? Anyone else have L'hermitte's that behaves like this?
pursue optimal self care at least as actively as a diagnosis
ask for referrals to preventive health care specialists eg dietitians
don't let suboptimal self care muddy any underlying diagnostic picture!
the lhermittes continued for 6 months before it finally went away. the doc's theory about why walking increased the lhermittes was that my body temperature would rise and cause more symptoms. i think it was a pretty good theory. last summer, i would occasionally get tingling if i was out in the heat walking around but it was very mild. this summer i haven't had any issues even after a 20 mile two day backpacking trip so i think the lesion has healed.
the fact that it happens even while you are laying flat on your back in bed makes me question whether it's lhermittes, as my understanding is that the hallmark of lhermittes is sensory symptoms upon neck flexion. this happens because neck flexion increases the tension on the spinal cord which stretches the damaged area causing faulty signals to be sent out. however, i am not by any means an expert. it might be time to speak with a neuro or perhaps a doc who specializes in spinal cord problems about these symptoms and get some input.
OMS diet plus lean poultry
Tecfidera as of 8/21/2014
18+ brain lesions and 6 spinal lesions