interesting story about ms misdiagnosis-and lymes

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interesting story about ms misdiagnosis-and lymes

Post by blossom » Wed Feb 12, 2014 4:27 pm

note that she had brain and spinal lesions. i doubt that many of us have been screened properly. this is a wide spread disease that can mimic many illnesses but yet for the most part is ignored or are given the standard test that is next to worthless. how many here was ever been told by a neuro. or any dr. that they should see a contageous disease dr. or a lymes specialist? ... -wheelchai

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Re: interesting story about ms misdiagnosis-and lymes

Post by centenarian100 » Wed Feb 12, 2014 7:13 pm

I'm sure there are tons of people misdiagnosed as having multiple sclerosis who actually have various other conditions.

It sounds like her case wasn't very typical of neuroborreliosis as she didn't have cranial neuritis, radiculoneuritis, meningitis, or a history of antecent illness consistent with local/systemic lyme disease or a history of known tick bite.

In general, rare diseases are often misdiagnosed. Check out the book "The family who couldn't sleep" about the condition fatal familial insomnia. The author talks about how patients with the condition are invariably misdiagnosed at first presentation.

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Re: interesting story about ms misdiagnosis-and lymes

Post by zjac020 » Thu Feb 13, 2014 2:45 pm

I actually went ahead with Lyme testing with the only ILADS Lyme doctor in Spain. I had borderline positive bands, positive for coxsackie virus as well as another one (cant remember which right now), but specifically my CD57 cells, were at about 120 I think, so also in the grey área.

The problem is the cost of all of this. The lymetest was done with a pack that included several other very comprehensive tests (stool tests for parasites, candida and nutrition info; urine analysis; hair analysis for heavy metals; several very detailed blood analysis). Unfortunately, the treatment being proposed to take care of Candida, Heavy Metals, bio-frequencies, etc.. that should help either raise or lower the CD57 thus allowing for a definate very expensive. Ive seen a lot of info on Lyme in the US and how its treated, and the first point of action is always antibiotics.. well this doctor prefers to apply the fully "holistic" treatment (which i think could be very effective), even without a clear Lyme diagnosis.

This is very Spanish I think. Always after the money, always...

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