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Leticia
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Re: New to the board

Post by Leticia » Wed Mar 19, 2014 7:29 pm

Hahaha yes she like all those lindacarol! She has been mentioning a similar diet. And thanks THX1138. one hard thing to alter is our chocolate addiction. . But I really want to try incorporating a better diet into all our lives.

centenarian100
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Re: New to the board

Post by centenarian100 » Wed Mar 19, 2014 8:56 pm

Leticia wrote:Yes centeraian100 he is. She is trying to have our small town OBGYN get her the referral to UNM. We live in a town with a oil boom happening and it has dr office overcrowded and dr overloaded. They also just said she has fibromyalgia and lupus. She keeps getting the butterfly rash on her face but insurance denied to pay for the lupus panel. Its just a big mess. She hasn't ever fully recover from her last flare up either. Prednisone only seems to help for a little while and I know its not good on her body. Any suggestions are helpful. I know im reading alot on anti-inflammatory diets and vitamins.
One think to note is that certain lupus drugs in the class of anti TNF alpha monoclonal antibodies (i.e. humira) have been associated with multiple sclerosis:

i.e. http://www.ajnr.org/content/26/6/1548.long

It may be wise to avoid these drugs.

generally speaking, platform treatments of MS such as copaxone, avonex, rebif, extavia, betaseron are not effective in other autoimmune disease such as lupus. Tysabri has even been reported to worsen other autoimmune diseases (presumably by increasing the serum white blood cell count).

Some lupus treatments may be effective for multiple sclerosis on the other hand (i.e. rituxan, cellcept, azathioprine).

Presuming that your mother isn't going to forgo standard medical therapy (which would probably be recommended by most of the posters on this board), there may have to be some collaboration between a rheumatologist and neurologist

by the way, how can your insurance company refuse to let you do an ANA, anti-DS DNA et cetera. Are they really that expensive?

and yeah...it's definitely a good idea to avoid too much prednisone

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lyndacarol
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Re: New to the board

Post by lyndacarol » Thu Mar 20, 2014 6:31 am

Leticia wrote:Hahaha yes she like all those lindacarol! She has been mentioning a similar diet. And thanks THX1138. one hard thing to alter is our chocolate addiction. . But I really want to try incorporating a better diet into all our lives.
You are wise to try to improve the diet for everyone – your mother, grandmother, and you, yourself, Leticia.

I understand your feelings toward chocolate; I love chocolate, too. You put your finger on the answer when you said "alter." Try to change away from milk chocolate to bittersweet chocolate (less sugar to trigger insulin). Scientists seem to be finding good things about dark chocolate every day; it has lots of antioxidants.

Diet is an area where we all have control. You're making a positive step. More power to you!
My hypothesis: excess insulin (hyperinsulinemia) plays a major role in MS, as developed in my initial post: http://www.thisisms.com/forum/general-discussion-f1/topic1878.html "Insulin – Could This Be the Key?"

THX1138
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Re: New to the board

Post by THX1138 » Thu Mar 20, 2014 6:35 am

Yes, do be very careful about meds, if they are used.
And thanks THX1138. one hard thing to alter is our chocolate addiction.
Not all chocolate is created equally. I bought some Ghirardelli Chocolate 60% Cacao Bittersweet Chocolate Baking Chips the other day and enjoyed them quite a bit. They had a lot more chocolate flavor. This 60% cacao is lower in sugar than standard chocolate.
http://www.walmart.com/ip/Ghirardelli-C ... z/17179709

If you want to learn about chocolate:
http://www.thestoryofchocolate.com/what ... umber=3252

THX1138
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Re: New to the board

Post by THX1138 » Thu Mar 20, 2014 6:57 am

Hi Leticia, here is a short video on sugar: Is sugar toxic 60 minutes 1 April 2012
https://www.youtube.com/watch?v=pxG3YiBMMZE

THX1138

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NHE
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Re: New to the board

Post by NHE » Thu Mar 20, 2014 5:28 pm

THX1138 wrote:Not all chocolate is created equally. I bought some Ghirardelli Chocolate 60% Cacao Bittersweet Chocolate Baking Chips the other day and enjoyed them quite a bit. They had a lot more chocolate flavor. This 60% cacao is lower in sugar than standard chocolate.
http://www.walmart.com/ip/Ghirardelli-C ... z/17179709
Those are still 40% sugar. If you have a Trader Joe's near you, then try their 85% cacao chocolate. It's just 15% sugar and I don't find it bitter at all though it does have a unique taste.

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Re: New to the board

Post by THX1138 » Fri Mar 21, 2014 10:24 am

Thanks NHE. :-D

Leticia
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Re: New to the board

Post by Leticia » Sat Mar 22, 2014 7:49 am

Centerian100 her new insurance is ObamaCare and they refused 3/4 labs. So not really sure. NHE I tried the Ghiradelli coco and they are great!!! Thx1138 thabk you

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