Another grumpy depressing story...sorry...
I've not had vertigo as an MS symptom but I do think relapses can last longer than 2 months. Pre-diagnosis I believe I probably had two--they came on slowly and lasted a while.
Here's an abstract that puts some "time" on relapses and recovery.
Multiple sclerosis: relapses and timing of remissions
So, I wouldn't give up just yet in thinking that it's a relapse. Vertigo has to suck--sorry I don't have any ideas for what might help resolve it though.The frequency of improvement was 78% at 3 months, 86% at 6, and lower in males (65 vs. 81%).
The frequency of recovery was 55% at 3 months, 71% at 6.
Kaplan-Meier curves showed stabilization after 6 months, with improvement in 90% of patients, 100% without further relapses.
Relapses without recovery were only 30%; 15% excluding short-term relapses.
My whole introduction to MS was caused by vertigo. It's an unbeleivably crappy feeling for me. I would rather have a leg cut off then to deal with this feeling. My vertigo relapse was coupled with bladder problems and I was numb from the waist down. I could walk as long as I was watching my feet hit the ground. The bladder and lower body thing lasted about 4 weeks but the vertigo is still present but to a little lesser degree. I am in the CAMMS323 study and I received my campath infusions in July. A side effect of campath is the re-awakening of old MS symptoms and on que my leg numbness and bladdder stuff came back right away with the vertigo not far behind. I am looking out to the next 6 months where I am hoping to see very positive results from the treatment. What drugs are you taking right now? Good luck with everthing.
10 years ago during my biggest relapse I had severe vertigo. It lasted 3 months and I was on seasickness meds. It really is the most horrible feeling, I empathise completely. It took about another 3 months to go, so about 6 months in all. I really hope it lifts for you soon.
One thing that I found helped was gentle exercises. I laid cushions all around me so that when I toppled I'd something to sink into. Really the last thing you feel like is exercising but it seems to help retrain the brain back into knowing where it should be balancing. This webpage is a good resource for discussing the options for vertigo treatment: http://www.msrc.co.uk/index.cfm?fuseact ... ageid=1699 and this webpage here shows balance exercises for vertigo: http://www.webmd.com/brain/balance-exer ... or-vertigo
If ever there was an oxymoron! - balance exercises for vertigo I toppled over for the first few weeks but I believe it helped over time.
I've had it for well over 2 years now. I tell everyone it's my worst symptom because I am semi-nauseaus just about all the time and hardly ever have a hearty appetite. I've been force feeding myself (especially lunch) for years now. There are two things that eleviate it. One we've talked about before is MJ and I know you have other issues with that. I only do that in the later evening now because while it helps that significantly, it now seems to zap leg strength. The other is what WW said; exercise and also vestibular exercises. My neuro. told me about those. If you have a good sized bed, sit on the end of the bed in the middle, pick out a spot on the wall. Keep focused on it and allow yourself, or force yourself, to fall to the left and to the right while keeping focused on the spot on the wall. I have no earthly idea why this helps, but I don't know why exercise does either. I even had vertigo when I was still able to run, and if you can run, that was the best. I would be ready to vom., and if I took a run, it would stay gone for usually the rest of the evening. I can still make myself sweat on the bowflex doing upper body workouts now and, as WW said, exercise works for it. God knows why, but it does. It's almost like you push yourself 'past it'. Also a low dose of diazepam (not enough to make you tired) like 2mg sometimes helps me too. Believe it or not, you can sort of get used to it over time, but there are still times when I have to shut out the lights, put the fan on me and close my eyes or I'll get sick. I hate it, but what are we gonna do?
I tried Antivert (meclizine), but it was like taking a Benadryl; I couldn't keep my damn eyes open. It works, but I think it just knocks your ass out. I still have like 20 of my original Rx of 30 and I got them like 3 years ago. If you can tolerate Antivert, give it a try, but it knocked me out.
I have some meclazine laying around in the med graveyard. I may as well try it, but I thought it was more for the nasauos feeling and not the spinning.
Loobie - I am doing some of the vestibular manuvers and excercises and those seem to help a bit. I am supposed to do a few 2x a day as per my therapist. Hard to do balance excercises when dizzy though.
Had acupuncture yesterday and I plan on having a few more sessions real soon to see if that can provide some relief. Thanks for all the comments, any other suggestions are welcome.
Seriously I hope you feel better. I hope I do too. >2 months now with this crap and I am at the edge of sanity. Take care-- G
I don't think people realize just how bad it is; when I was at my worst it occurred to me that I wouldn't want to live if I had to feel that way for the rest of my life. A terrifying realization.
My first vertigo relapse lasted about three weeks altogther. I didn't get any treatment for it, it just went away. Then I had the mega relapse last March and it wasn't until the beginning of June that I felt human again. I walked with a cane for about two months.
It still lingers at the corners of my vision and it comes back when I exercise, have sex *ahem*, or get overheated. And sometimes I'll get a mini attack for an hour or so then it goes away for no reason. The only thing I find helpful is to cool off and stay away from the TV, the Internet or reading. Closing my eyes does NOT help but focusing on an object does - Loobie's exercises seems to explain that. I am SO TIRED of people giving me helpful advice for inner ear meds and treatments. They just don't get that this is inside the brain stem.
I took SoluMedrol with the last relapse but I am unsure if it helped. I took so long to improve that I suspect it healed on its own. The best cure so far for me was pregnancy, but I guess that's not the best option for everyone.
That is how I feel right now. This has to end. Life is not like this. At least it should not be. I am going to try to go back to work on Tuesday. If that does not work I am going to pick up a coon dog, tow a trailer to Kentucky and veg out somewhere till eternity.Punchy wrote:Another vertigo sufferer here.
I don't think people realize just how bad it is; when I was at my worst it occurred to me that I wouldn't want to live if I had to feel that way for the rest of my life. A terrifying realization.: