By the afternoon I am very very very fatigued and weak and today again I was finding it so hard to walk, weak and as if the legs were not getting the proper message from the brain to walk.
Sounds weird maybe but I was scared and to add to it a tablet as usual was stuck in my throat for hours which is a recurrent problem.
Please help me with your thoughts.
I am waiting on the MRI, which unfortunately won't be done until April.
I go back to the Neuro in May, a long wait.
Fatigue yesterday was so severe and I was so weak I sat at the dinner table with a pillow behind me and a box on the table so the plate was closer and it wasn't as far for me to get the food to my mouth.
When I walked I was like a person who was getting rehabilitated and taught to walk again.
My legs were extremely heavy and unable to operate properly.
I understand I can't get a diagnosis from you guys but appreciate the support and fully take your comments on board.
I think that I am really trying to prepare myself that this is not looking good.
It is comforting to know you have some idea of what I am going through.
Thank you so much again.
Just staying in touch.
This morning I forgot how to turn on the taps in the show which way to turn and got all confused ended up burning myself.We have solar hot water and living in Queensland Australia the water is stifling very very hot, ouch.
I broke down and the day didn't get any better having a numb tongue and then speaking gibbly gock.....
Still awaiting appointment for MRI.
Hope you are as well as can be expected.
In my thoughts often.
pursue optimal self care at least as actively as a diagnosis
ask for referrals to preventive health care specialists eg dietitians
don't let suboptimal self care muddy any underlying diagnostic picture!
I went through the same type of thing. Working was a nightmare. I had no concentration ability, no "quick" thinking. Appointments with clients were horrid. If I had not had the chance to prepare completely, I would stumble through, I'm sure looking like an idiot. My assistant once told me "You taught me everything I know, now I'm re-teaching you". Hang in there. Mine went away. I still occasionally ask my assistant stupid questions, but I have the ability to process the info again, and heck, she learned well and has the ability to think for both of us.
I thank you for your replies.
PS the Neuro stuffed up sorry for saying it like that but I am upset he has not sent the form through for the MRI so who knows now when it will be scheduled.
Positive note: HOLIDAY OFF TO MELBOURNE ON AIROPLANE IF THAT'S CORRECT SPELLING LOL THE OLD DICTIONARY FROM THE BRAIN HAS NOT BEEN WORKING PROPERLY.
SATURDAY 7TH MARCH THROUGH TO SATURDAY 14TH MARCH. WOO HOO!
Food, food and shopping and relaxation..............
When I got back I opened mail from the hospital and was shocked they want more blood before the MRI scheduled now for April 21 and they mucked up and forgot to put head and spine... I am awaiting a phone call to verify they have changed it back to head and spine under general anaesthetic. I am to be at the hospital at 7.30am and will be put to sleep at 9.30am, very scared and nervous and curious as to when the results will come through.
I hope you have all been as well as you can be and you were all in my thoughts while I was away.
Look forward to hearing from you all soon.
I am so thankful they are no matter whether they were or not this is going to be so tough still and I am dropping weight already due to my anxiety.
I had a call today and they fixed up the MRI to be done of the head and spine.
Thanks for your reply.