But, this thread is about the question all this Experience Project stuff has me wondering.
I can say that TIMS has had a big impact on my life and Kim's life. We found Sarah here and others who have been on the protocol Kim now shares. So The TIMS experience has helped Kim get off needles and chemo agents and find something that is working. The course of Kim's MS has been changed by our finding this website.
How has TIMS made an impact on your life?
If I have included a bad link, google the word "Scholar", click link for "Google Scholar". Search for the name of the paper and author in Google Scholar.
- Family Elder
- Posts: 5359
- Joined: 11 years ago
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HUGE. Beyond words. Compassion and understanding from other spouses (Ken and Bob), support and understanding from the male point of view (Lew and Robbie). Nutritional ideas from Jimmy, Gibs and Dim- with me on the trail of how the vasculature was affected by diet and nutrition. Dom's beautiful and insightful posts, and his reposting the vascular connection thread. Harry's wisdom. Dignan's superior research skills. NHE's voice of moderation. Bromley's sarcasm. Chris' enthusiasm. FRIENDSHIP. Sharon's wise insight, Marie's understanding as a medical professional. HOPE. Sarah's smarts and conviction, Arti's family fun pics, Marc and Cure and Lars and WW and the list goes on and on. And Finn in absentia. PEOPLE. Everybody here has been an inspiration at one time or another (even when I got pissed off or pissed them off...)notasperfectasyou wrote: How has TIMS made an impact on your life?
I cannot imagine how my husband would be if I hadn't stumbled onto TIMS two years ago...terrified, alone, and unable to talk to most people about how this disease had changed the love of my life. He's back with me now, awake, present and so very thankful. I truly believe better days are ahead.
dx dual jugular vein stenosis (CCSVI) 4/09
That is an interesting question and I will say this:
1. I am not alone
2. There is hope
3. This disease effects me but also effects those around me
4. My words can encourage others... but
5. My words can discourage as well
6. I really believe I have met and made friends
7. MS Does not discriminate
8. We all have our own opinion - and that's OK!!!
9. We are all looking for answers and there are many here that research
10. There are many here who have already been guinea pigs for one treatment or another
These 10 things do not even scratch the surface, but it's a start.
My life has changed because of TIMS and I thank everyone here.
9/3/09 Stanford - Dr Dake - Stent in R-J to unblock Arachnoid Cyst in Sigmoid Sinus. Stent in narrowed L-J. Balloon in narrowing where R & L Jugulars meet.
I am glad to know about treatments, even if we wouldn''t consider them, it's good to know all the paths being taken and how they turned out. We've tried several therapies and will try more, and we'll share what happens...
TIMS has 'shrunk' the world for me and brought feedback from people all over the world to me on a daily basis. I get support, information, friendship, and most of all hope. And it comes from everywhere. I think TIMS is the most constructive site I've ever been on.
He is no fool who gives what he cannot keep to gain what he cannot lose.