Day 4 on Gilenya

Gilenya, or Fingolimod, is the first approved oral disease modifying drug for MS.
Post Reply
User avatar
mandamurr81
Getting to Know You...
Posts: 15
Joined: Wed Jul 07, 2010 2:00 pm
Contact:

Day 4 on Gilenya

Post by mandamurr81 » Wed Nov 16, 2011 8:03 pm

I started Gilenya on Saturday. I don't know what I was expecting. I was a little fatigued the first couple of days. Other than that nothing has happened, good or bad. Just a not for anyone interested in starting.

User avatar
CureOrBust
Family Elder
Posts: 3351
Joined: Wed Jul 27, 2005 2:00 pm
Location: Sydney, Australia

Re: Day 4 on Gilenya

Post by CureOrBust » Thu Nov 17, 2011 12:55 am

I have been on it for about 2 weeks, and I cannot say I have noticed anything that is not within the day to day change of MS symptoms :sad: but one could also point out, I have not had a relapse in those two weeks...

Loriyas
Family Elder
Posts: 629
Joined: Sun Apr 02, 2006 2:00 pm
Location: Naples, FL
Contact:

Re: Day 4 on Gilenya

Post by Loriyas » Mon Mar 26, 2012 10:57 am

Could you two update your experiences with Gilyena? I just returned from neuro appt and she was very positive about it. It is a large practice and they have approx 50 patients on it.

valnphx
Newbie
Posts: 2
Joined: Sun Oct 21, 2012 3:03 pm
Location: Phoenix

Re: Day 4 on Gilenya

Post by valnphx » Sun Oct 21, 2012 3:42 pm

I'm on my 3rd week of Gilenya and so far no complaints! A Dr. and Nurse watched me take my first dose. It was very anti-climatic, lol. I felt slighty dizzy a few hours after taking it and maybe a bit more tired than usual for a few days, but nothing extreme or that gave my any worry. So far I would give it an A rating. Hopefully it's quietly doing it's job :smile:

Aprillynn
Newbie
Posts: 2
Joined: Wed Oct 24, 2012 6:35 am

Re: Day 4 on Gilenya

Post by Aprillynn » Wed Oct 24, 2012 7:49 am

mandamurr81 wrote:I started Gilenya on Saturday. I don't know what I was expecting. I was a little fatigued the first couple of days. Other than that nothing has happened, good or bad. Just a not for anyone interested in starting.
I have been on Gilenya for about 2 years now...it may play with your BP just keep an eye on it...other then that no side effects here...

Post Reply
  • Similar Topics
    Replies
    Views
    Last post