Hi. Aftrer 14 years of searching, I got a "Pre" diagnosis of MS. Symptoms started shortly after I had my daughter. Started with my thighs and went from there. Id have to say the last 1.5 to 2 years the symptoms have really ramped up. So last January I decided to really clamp down and put my foot down with doctors. For so long, doctors wrote me off. So, last week Thursday, I got the pre diagnosis. To start off with, last January I came down with ebv, mono. I asked for a Lyme test. Many years ago i had been bit by several. The western blot came out positive. I went for a second opinion, and the elisa test came out negative, 1 point below positive. They deicided to give me a CT. There was a 6mm lesion, tumor, on my pituitary gland. They said to start making plans for surgery with a neuro surgeon. Sent me for an MRI with and w/o contrast. The lesion/tumor didnt show on either MRI. But foci did. However, it was only in one part of my brain. Which would explain why I am having a vast majority of symptoms on the left side of my body. Also is what was throwing them off. So I was given the pre-diagnosis of MS. They said they will keep an eye on me with regular visits and imaging. I almost gave up. I told the doc when she came in, I dont know where to go from here. I feel we have reached the end of the road. There really isnt anything else to test for. Vit B12 and D are normal. My diabetes numbers are low. I take care of it with diet. Blood pressure is border line, but not high enough.
I am hoping to find great info here on how to not only help myself, but my husband and kids understand whats going on with me.
I am also hoping to better understand the term "Pre- Diagnosis".