My regimen(s)

Tell us what you are using to treat your MS-- and how you are doing.
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CureOrBust
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Post by CureOrBust » Wed Nov 29, 2006 3:05 am

A couple of changes.

1. I have added another point
2. The last point meant I had to rescale the Y axis (it went off the graph woo-hoo!)
3. I added another graph (in green with the Y scale on right) showing how many "jumps on the spot" I can do in a row. The scale is simply the number I manage. It seems to help with the clonus/spacisity in my knees and my ataxia. I think anyway. It really made it clear how the last flagyl pulse (the red lines) hit me.
4. did I mention woo-hoo

I have done some off beat things in the last month, and I plan on updating this thread. Hopefully I will get a chance this weekend.

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gibbledygook
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Post by gibbledygook » Wed Nov 29, 2006 10:00 am

Hey Cureo!

How many pulses have you done? I'm on my 26th and my walking feels terrible!

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CureOrBust
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Post by CureOrBust » Wed Nov 29, 2006 11:52 pm

I have done 16 pulses but as you can see in the time since the last red line, I am on a long break from the flagyl right now; until my walking gets better. But continuing with the doxy and roxy.

SarahLonglands
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Post by SarahLonglands » Sat Dec 02, 2006 6:22 am

"Any step that isn't backwards, must be forward."
Well, it could be sideways, but here it looks like forward to me. I think I might add jumping on the spot to my repertoire. It presumably isn't a solid floor that you jump on, though, because you might end up damaging your joints.

Sarah
An Itinerary in Light and Shadow Completed Dr Charles Stratton / Dr David Wheldon abx regime for aggressive secondary progressive MS in June 2007, after four years. Still improving with no relapses since starting. Can't run but can paint all day.

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CureOrBust
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Post by CureOrBust » Mon Dec 04, 2006 1:03 am

Anecdote wrote:It presumably isn't a solid floor that you jump on, though, because you might end up damaging your joints.
Nope, its carpeted. And just to be clear, I am holding onto the door frame to keep my balance. I notice more of a tight feeling in my leg muscles the next day, than anything in my joints.
Anecdote wrote:I think I might add jumping on the spot to my repertoire.
Well, it may of helped the last point. And I truly think it has helped with the clonus in my knees.

I have added a point to the main graph, and one to the other graph. Both are big increases. I hope to stay at this level, because there just cant be an improvement continuation like this. I though I already started to plateau. I had to change the graph Y axis again to fit the new point! Be sure to refresh the page.

I still have problems with clonus in my knees, and my walking is not that great, but it is improving.

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gibbledygook
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Post by gibbledygook » Mon Dec 04, 2006 2:15 am

WOW! :lol:
I am amazed and delighted at your chart - not only the line of your MS progress but the interactivity of the graph updates. I'm afraid the technology has defeated me and I can only manage to upload an oversized photograph of my progress chart! Very impressive, Cureo. You deserve a few glasses of champagne and some mince pies.

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CureOrBust
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Post by CureOrBust » Mon Dec 04, 2006 3:13 am

gibbledygook wrote:You deserve a few glasses of champagne and some mince pies.
Both of those are not on my diet. :evil:

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gibbledygook
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Post by gibbledygook » Mon Dec 04, 2006 4:22 am

Oh dear! Smoked salmon and glass of red?

Oh dear, oh dear. When I was first diagnosed in 2004 I went on a milk-free, gluten-free, fat-free, fish and rice, liver smoothie and raw beetroot type diet for 6 months. This did absolutely NADA for my steadily accumulating deficits and I lost so much weight that eating occassionally mince pies and drinking champagne have now become a necessity! Until New Year, that is!!!!!

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CureOrBust
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Post by CureOrBust » Wed Dec 06, 2006 2:40 am

I have plotted another point on the jump on the spot graph. I have also plotted my attempts of two more medications on the graph. Prozac and Kreppa. Be sure to refresh.

I took the kreppa in an attempt to reduce spasisity. But it didnt really seem to help me.

As for the prozac (28 days). I cant say that I felt it made a difference, however, the graph implies it did. Because of this I will be trying it again in the future if my GP is comfortable with prescribing it again.

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CureOrBust
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Post by CureOrBust » Wed Dec 13, 2006 2:23 am

I sent my GP the graph, and he suggested I continue with the prozac, and has given me a new script for 28 days, with a repeat.

I have plotted two new points. One on each graph; and the start of the stint of prozac. Be sure to refresh.

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CureOrBust
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Post by CureOrBust » Tue Dec 19, 2006 2:45 am

I have plotted two new points. One on each graph, be sure to refresh.

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Post by mrhodes40 » Fri Dec 29, 2006 9:23 am

Cur-0 what an absolutely wonderful graph!. Thank you very muh for taking the time to do it.
marie

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CureOrBust
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Post by CureOrBust » Fri Dec 29, 2006 7:13 pm

and another couple of points.

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CureOrBust
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Post by CureOrBust » Fri Jan 26, 2007 4:24 am

And another point (on jump on the spot)

I have also added in the graph for going forward on my eliptical trainer.

Image
I also switched to GIF which gives a better image for the same size.

In the past few weeks, I am also trialling 4AP. On the second day I took it, my clonus in my knees was almost gone. It came back, and hasnt gone as much as the second day. But I am pretty sure it makes a pretty big difference normally anyway.

I am taking weekends off.

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CureOrBust
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Post by CureOrBust » Mon Feb 12, 2007 2:47 am

and another couple of points. be sure to refresh.

I had to adjust the right verticle axis (for jumping on the spot), as it went off the graph :)
Gilenya, 80mg Lipitor, Inosine, Minocycline, Suppliments galore.
3 CCSVI treatments, no major noteable benefits thus far.

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