My regimen(s)

Tell us what you are using to treat your MS-- and how you are doing.
Post Reply
User avatar
jimmylegs
Volunteer Moderator
Posts: 11854
Joined: Sat Mar 11, 2006 3:00 pm
Been thanked: 10 times

antibiotics

Post by jimmylegs » Wed Jun 28, 2006 5:42 am

hey that's good to know ane. about the critters being in the protocol, and the fos. i can't eat yoghurt it always makes me feel pukey :( also the two hours is good to know, i can separate my oregano blast from my acidophilus with more assurance. yes i most definitely think all the acidophilus supp is very very likely why u avoided probs with candida!

HEY i just went and checked out my probiotic and it is natural factors multi acidophilus WITH 200MG FOS! now i will have to read the label more carefully - at the store it was in a fridge so i just kept fridging em.

oh and c, my pro-b only has 4 billion active cells, u weren't kidding with the 'all caps' on your 25 lol ... so i hardly think you would have to worry about candida when you're ingesting that many candida predators. particularly if you work on getting your serum 25(OH)D3 levels up over 100 nmol/l!

ttfn off to the dentist eeeeeek

User avatar
CureOrBust
Family Elder
Posts: 3351
Joined: Wed Jul 27, 2005 2:00 pm
Location: Sydney, Australia

Post by CureOrBust » Sun Jul 09, 2006 3:39 am

I have added another data point. Doesnt look good, but i personally think its because i have been lazy on the excercise. As you can see the last two points are fairly well spaced away from the rest. I will go again in the next couple of days, and see how i go.
Image

SarahLonglands
Family Elder
Posts: 2201
Joined: Thu Jun 17, 2004 2:00 pm
Location: Bedfordshire UK
Contact:

Post by SarahLonglands » Mon Jul 10, 2006 1:18 am

Hi Cureo,

It might be midwinter down your way, but that is no excuse for getting lazy. I can't talk: its midsummer here, but until yesterday it was too damned hot to use that machine of yours. :(

Sarah
An Itinerary in Light and Shadow Completed Dr Charles Stratton / Dr David Wheldon abx regime for aggressive secondary progressive MS in June 2007, after four years. Still improving with no relapses since starting. Can't run but can paint all day.

User avatar
CureOrBust
Family Elder
Posts: 3351
Joined: Wed Jul 27, 2005 2:00 pm
Location: Sydney, Australia

Post by CureOrBust » Thu Jul 13, 2006 5:05 am

I have added another data point (from last night). Be sure to refresh the page to get the updated image.

People who know the abx regimin would probably note that its been a while since a flagyl pulse. I have been holding off due to my issues i am having with walking. However, i will start another pulse tomorrow.

I have also switched from lipitor to zucor (for 5 days) and back to lipitor to see if my body got used to lipitor. I have also added a new suppliment called "cordyceps" which is related to the new drug on trial called fty720.

I think I have noticed that the tingling in my feet slightly improved, but i dont think i can say the same about the general control of my legs and walking.

User avatar
gibbledygook
Family Elder
Posts: 1414
Joined: Mon Feb 14, 2005 3:00 pm
Location: London
Contact:

Cordyceps

Post by gibbledygook » Thu Jul 13, 2006 5:46 am

Hey, my acupuncturist from mainland China just gave me a box of Chinese medicine containing 100% cordyceps sinensis!! What a coincidence! :lol:

User avatar
CureOrBust
Family Elder
Posts: 3351
Joined: Wed Jul 27, 2005 2:00 pm
Location: Sydney, Australia

Post by CureOrBust » Mon Jul 17, 2006 3:50 am

and another data point. Be sure to refresh the page to get the updated image.

Its a drop again, but i am mid stream of a pulse of flagyl as part of the abx's. Flagyl really takes your energy away, so i am not too suprised or concerned with the drop.

User avatar
CureOrBust
Family Elder
Posts: 3351
Joined: Wed Jul 27, 2005 2:00 pm
Location: Sydney, Australia

Post by CureOrBust » Fri Jul 21, 2006 5:43 pm

and another data point. Be sure to refresh the page to get the updated image.

SarahLonglands
Family Elder
Posts: 2201
Joined: Thu Jun 17, 2004 2:00 pm
Location: Bedfordshire UK
Contact:

Post by SarahLonglands » Fri Jul 21, 2006 11:42 pm

Hey, its getting a very precipitous mountain range, this. Have you reached the snowline yet? :wink:
An Itinerary in Light and Shadow Completed Dr Charles Stratton / Dr David Wheldon abx regime for aggressive secondary progressive MS in June 2007, after four years. Still improving with no relapses since starting. Can't run but can paint all day.

User avatar
CureOrBust
Family Elder
Posts: 3351
Joined: Wed Jul 27, 2005 2:00 pm
Location: Sydney, Australia

Post by CureOrBust » Tue Jul 25, 2006 4:45 am

and another data point. Be sure to refresh the page to get the updated image.

I had to adjust the verticle scale to fit the latest point on the graph. :D Again, it looks a lot more impressive than I feel. I recently had a relapse, and my walking appears to be the most affected. My gait and balance have not improved anywhere near what my graph appears to have improved by.:cry:

All in all I am pretty happy to see such a big jump in my graph, as in other measures, it feels like i have slid backwards.
Gilenya, 80mg Lipitor, Inosine, Minocycline, Suppliments galore.
3 CCSVI treatments, no major noteable benefits thus far.

User avatar
CureOrBust
Family Elder
Posts: 3351
Joined: Wed Jul 27, 2005 2:00 pm
Location: Sydney, Australia

Post by CureOrBust » Wed Aug 02, 2006 2:58 am

i have added another data point. as usual refresh the page. Its lower, but i am not concerned as over the last few days my walking has imrpoved greatly, and i am losing my "limp". The walking has really bothered me, so I am definitely moving in the right direction.

User avatar
CureOrBust
Family Elder
Posts: 3351
Joined: Wed Jul 27, 2005 2:00 pm
Location: Sydney, Australia

Post by CureOrBust » Sun Aug 06, 2006 6:12 am

and another point. Its another step down, but I have had improvements in other areas. so i am holding off on any major concern. for now.

User avatar
CureOrBust
Family Elder
Posts: 3351
Joined: Wed Jul 27, 2005 2:00 pm
Location: Sydney, Australia

Post by CureOrBust » Thu Aug 10, 2006 4:06 am

And another point. Be sure to refresh.

I saw my doc (GP) the other day. He checked my plantar reflexes as part of his test. He noted that my toes curled up instead of down (right foot). When I asked him, he said something along the lines of that this is the reflex a baby has before its cerebellum has developed. This would make sense in that the last attack aggravated my ataxia, which I read was related to the cerebellum. Since then, i myself have played with a metal object and the underside of my foot. I notice that if i run it along the outside of my right foot (underneath) my toes curl upwards, but if i run it down the centre of my foot, they curl down.

My limp is fading, but still present. Sometimes I can walk with no limp, but it’s only for short periods where the limp is not omnipresent. The tingling in my feet is fading, slowly, but surely.

I look forward with anticipation to each new day, as I have some improvement each day, or notice something new (slight, but new).

I have added Lecithin to my daily barrage of supplements, after reading some personal experiences at another site (http://www.telusplanet.net/public/dgarneau/health4f.htm). I didn’t notice any "burst" of improvements, but I have a pack of 100 to test.

User avatar
CureOrBust
Family Elder
Posts: 3351
Joined: Wed Jul 27, 2005 2:00 pm
Location: Sydney, Australia

Post by CureOrBust » Sun Aug 13, 2006 2:28 am

and another point.

SarahLonglands
Family Elder
Posts: 2201
Joined: Thu Jun 17, 2004 2:00 pm
Location: Bedfordshire UK
Contact:

Post by SarahLonglands » Sun Aug 13, 2006 3:29 am

Which mountain range are you climbing? I ask this because the Himalayas are still rising.

Incidentally, the toes on both my feet curl upwards when I do that, either along the side or the underside, the right foot much more than the left. However, my right foot used to jump out of my hand just by looking at it. At least now I can cut my toenails without stabbing myself in the face.

Sarah
An Itinerary in Light and Shadow Completed Dr Charles Stratton / Dr David Wheldon abx regime for aggressive secondary progressive MS in June 2007, after four years. Still improving with no relapses since starting. Can't run but can paint all day.

User avatar
CureOrBust
Family Elder
Posts: 3351
Joined: Wed Jul 27, 2005 2:00 pm
Location: Sydney, Australia

Post by CureOrBust » Sun Aug 13, 2006 4:30 am

All I know is that I am starting to gasp for oxygen, no, literally, it's starting to become an aerobic workout now. It's at almost 8 minutes at the hardest setting (going in reverse).

I tried again this morning ... and just now ... and for the most part I could not get my plantar reflex to curl my toes up!! they did sometimes have a flick up after curling down. I think this will REALLY impress my GP if this continues to improve like this.

This improvement may imply healing in my cerebellum, damage which would be an explanation for my ataxia. However, this is still a major problem.

Had your doctors ever tried the plantar reflex previously? I am sure I read something about it when I was first diagnosed with MS.

And its only on my right foot that it went the wrong way. In the doctors sugery, i think the toes on my left foot hardly moved at all, either way.

Post Reply