Tecfidera

Tell us what you are using to treat your MS-- and how you are doing.
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ebrownkirkland
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Tecfidera

Post by ebrownkirkland » 1 year ago

Hi all. After first being diagnosed with clinically isolated syndrome back in June, my neurologist decided to change the diagnosis to RRMS yesterday, following the receipt of normal EMG and nerve conduction study results. He also took another closer look at my MRIs and decided that several lesions on my MRI are characteristic of MS. Anyway, after asking me how I would do with giving myself shots and me kind of balking at that prospect, he has decided to put me on Tecfidera. Just wondering if anyone else here is on that and what your experience on that has been like.

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NHE
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Re: Tecfidera

Post by NHE » 1 year ago

ebrownkirkland wrote:Anyway, after asking me how I would do with giving myself shots and me kind of balking at that prospect, he has decided to put me on Tecfidera.
I did Avonex shots for 10 years. The actual injection process was trivial compared to the drug's side effects.

ebrownkirkland
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Re: Tecfidera

Post by ebrownkirkland » 1 year ago

So you're saying I made a good choice with Tecfidera?? What kinds of side effects did you experience with Avonex? I understand the side effects with Tecfidera are things like stomach upset and flushing.

Zyklon
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Re: Tecfidera

Post by Zyklon » 1 year ago

Whatever works for you with acceptable side effects is a good choice. MS drugs are far from perfect so we have to accept lots of possible side effects. If it works, we will be happy and ignore the side effects. Side effects may disappear after some time.

Tecfidera was an option for me but I rejected it because at that time I had acid reflux problems. I plan to use Tecfidera or Gilenya if I can't use Rebif anymore and I don't have stomach problems in future.
Pain! You made me a, you made me a believer, believer
Pain! You break me down, you build me up, believer, believer
Pain! Oh let the bullets fly, oh let them rain
My life, my love, my drive, it came from... Pain!

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NHE
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Re: Tecfidera

Post by NHE » 1 year ago

ebrownkirkland wrote:So you're saying I made a good choice with Tecfidera?? What kinds of side effects did you experience with Avonex? I understand the side effects with Tecfidera are things like stomach upset and flushing.
I'm saying that for me the actual injections were not that big of an issue. Out of 10 years of injections, there were only a few that were painful. One was when my leg muscle twitched when the needle was still in it. That was annoying. The side effects were fevers, chills, muscle aches and cramps, feeling run down, and mild depression which tanked my graduate school studies and the resulting fallout effects. Oh, and my first Avonex shot essentially incapacitated me for 24 hours with the worst fever that I've ever had. Even when the side effects were more manageable, I was still pretty much useless the day following my injection.

Regarding side effects of Tecfidera, I suggest you spend some time reading posts in the Tecfidera forum. Some people have had severe issues, others haven't. Another thing to be concerned about with Tecfidera is PML. Tecfidera can drive down your white blood cell count and thereby increase the chances of developing PML. You'll need regular monitoring as discussed in the Tecfidera prescribing information (see the sticky post in the Tecfidera forum).

http://www.thisisms.com/forum/tecfidera ... arate-f52/

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