What exactly is four days of HiCy like??

A board to discuss Revimmune as a potential therapy for multiple sclerosis
Post Reply
User avatar
L
Family Elder
Posts: 946
Joined: Sat Oct 20, 2007 2:00 pm
Location: The United Kingdom
Contact:

What exactly is four days of HiCy like??

Post by L » Fri Oct 24, 2008 4:07 pm

Hey all

Question for people who have undergone the treatment - what exactly are those four days like? I am interested to know. I have gained a bit of an idea from threads here on this forum but it's still a bit of a mystery to me. Is it unpleasant? Does the time fly by on account of the drugs? Do the anti emetics work well?

Thanks!

User avatar
Jamie
Family Elder
Posts: 596
Joined: Mon Jan 07, 2008 3:00 pm
Contact:

Post by Jamie » Sat Oct 25, 2008 4:00 pm

Day 4 was hard for Mel, but she remembers little of the whole experience now.

The anti-puke shots keep you sleepy.

Some have it a lot worse though with the nausea and headaches, ask Chris!

I think they'll all tell you its worth it though.

User avatar
RedPenguins
Family Elder
Posts: 153
Joined: Sat Apr 26, 2008 2:00 pm
Location: Los Angeles, CA
Contact:

Post by RedPenguins » Sat Oct 25, 2008 4:12 pm

Well, for whatever it's worth...which isn't much I suppose since I'm an unusual person...

I didn't get sick at all! I didn't puke. I didn't get nauseous.

The 4 days was almost like a mini-vacation.... granted, being hooked up to the cath lines/IV was a pain in the a$$, but overall - I was blown away at how smooth it was.

I can't speak highly enough of the nurses on the HiCy floor. They were incredibly amazing.

My friends were with me - and we sat and watched movies, popped popcorn, took walks around the hospital. The night of Day 3 - I even ate a ton of fried, greasy, horrible food - I was tempting fate LOL. Still did not get sick. No one could believe at how well I did. I was certain there wasn't chemo in those IV bags....

I wish for everyone to have such a good experience!!

~Keri

User avatar
L
Family Elder
Posts: 946
Joined: Sat Oct 20, 2007 2:00 pm
Location: The United Kingdom
Contact:

Post by L » Sun Oct 26, 2008 4:43 am

Thanks Jamie and Keri.

So HiCy patients are not isolated? I assumed that while there was no immune system visitors would be restricted, but this isn't the case?

And once the four days are over the sickness disappears quickly?

One more question, sorry for all the questions, is nausea brought on as the cyclophosphamide is being administered?

Thanks!

User avatar
Davis
Getting to Know You...
Posts: 20
Joined: Thu Jan 17, 2008 3:00 pm
Location: Chicago, Illinois
Contact:

Post by Davis » Sun Oct 26, 2008 2:55 pm

L wrote:Thanks Jamie and Keri.

So HiCy patients are not isolated? I assumed that while there was no immune system visitors would be restricted, but this isn't the case?

And once the four days are over the sickness disappears quickly?

One more question, sorry for all the questions, is nausea brought on as the cyclophosphamide is being administered?

thanks!
This is what I recall.

You have to bring someone with you. This person is safe for you to be with.
There are specific instructions once you get to the hospital. All of your instructions about after care are very specific. Example mask, hand-washing, etc.
The nausea is from the drug and anti nausea drugs are given.

look at www.chrishadms.com there are pictures of him in the hospital and after. Also www.rebootingkathy.blogspot.com .

User avatar
L
Family Elder
Posts: 946
Joined: Sat Oct 20, 2007 2:00 pm
Location: The United Kingdom
Contact:

Post by L » Mon Oct 27, 2008 3:32 am

thanks !

Post Reply