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funny---after ccsvi I can tolerate heat-------but not the cold....

I am cold cold cold all the time---even in 80 degree weather-----------anyone have anything that might help???

I find myself at a crossroads------I stopped tysabri in august due to carrying the jcv virus. I was feeling better after change of diet--no gluten/dairy/red meat/refined sugars/ and the start of ldn and ccsvi last march. Out of fear that "something bad was going to happen w/o crab drugs", ...

I am 7 days in---and up to 2.0 mg and noticed several things so far--------last 3 nights I SLEPT THROUGH THE NIGHT w/o having to get up to pee or fight to go back to sleep----I feel a general sense of well-being-----------------tremors are still there, but if i stretch before exercise I even took a ...

I am so up in the air and undecided-----but need to take action soon as i am due for my next tysabri infusion=====toying w/ ldn and copazone-----but worried that the copazone will not be enough---so thinking about the neuro recommended gylenia----but i hear you get infections----and i get frequent b...

Thanks for your story-----I am so torn------I have made significant changes---no dairy/gluten/red meat sugar---ccsvi in march-------now have to switch crab drug after tysabri------i feel so good-----so do i go for it------start the ldn and then start the lesser crab---copaxone to hedge my bets that ...

It is so good to hear posts from others in the same boat/ I had to go off tysabri as I carry jcv antibody that predisposes me to pml. I am going to try ldn and am trying to weigh the odds of adding gilenya too. They say you are prone to infections with it---and I get bladder infections all the time-...

May I ask--------why are you still on rebif? I am trying to figure out if I need both-----I left my crystal ball in my other purse(excuse attempt at humor). My gut is telling me that I should do the crab as an insurance because my ms had been so aggressive before I went on tysabri-----But I have cha...

I must go off tysabri as i carry the virus that predisposes me to pml---I want to go on ldn, but since my ms was rather aggressive, i am contemplating a crab and ldn-------can they co-exist?

I'm coming back to my own after my ccsvi in march. Since I've been in a wheelchair for about 5 years my muscles are obviously atrophied. I am doing my exercises daily now and am up to sit/stands--deep knee bends--crunches and more------anyone with knowledge or tips would be most welcome-----and anyo...

so we're supposed to be gluten free/dairy free....................is feta considered dairy?

NO---ILIAC WAS NOT LISTED AS WHAT HE DID---I AM JUST NOW STARTING TO HEAR ABOUT THIS VEIN---------I DON'T EVEN KNOW WHERE THAT IS------MCGUCKIN DID MY CCSVI IN MARCH--------I THINK THEY ARE LEARNING TONS EVERY DAY------MY THOUGHT IS TO GO BACK LATE IN THE YEAR HOPING THEY WILL LEARN A LOT UNTIL THEN...

i thought blood flow was partially to blame for the swelling I have---but there is no difference-----altho my blood presure has stabalized from the wild swings it had before from 120-160---so now I am diving into the meds I take to see if they are the culpruit---- I am on the glutonfree/dairy free/ ...

Has anyone found any secret to help the muscle spasms/clonus?
I'd rather not increase my baclofen intake if there is something else that will provide relief. anyone?

What's the word on Dr McGuckin who works bte his offices in seattle and philadelphia?