Search found 136 matches
- Tue Jun 30, 2015 12:32 pm
- Forum: Copaxone
- Topic: Copaxone patent invalidated again
- Replies: 2
- Views: 5416
Re: Copaxone patent invalidated again
Good. Maybe those who cannot afford it will be able to now.
- Thu Oct 24, 2013 11:35 am
- Forum: Stem Cells
- Topic: Stem Cell Treatment Testimonials
- Replies: 34
- Views: 10619
Re: Stem Cell Treatment Testimonials
slov - you should delete your post about Dr Burt. A women did develop an infection and unfortunately passed away due to septicaemia in India under the care of Dr Amit. RIP Several people have gone thru HSCT with Dr Amit and are doing fine today. Every type of treatment or operation has their risks w...
- Mon Oct 14, 2013 8:33 am
- Forum: Stem Cells
- Topic: Stem Cell Treatment Testimonials
- Replies: 34
- Views: 10619
Re: Stem Cell Treatment Testimonials
Good luck really really. But in my opinion chemotherapy treatments are for cancer. These HSCT treatments have been going on in different parts of the world for years. My neuro told my the disease can still come back and some patients have died due to this treatment. Don't listen to your neuro when ...
- Mon Oct 14, 2013 8:30 am
- Forum: Stem Cells
- Topic: My CtrlAltDel - Status
- Replies: 292
- Views: 68342
Re: My CtrlAltDel - Status
Asher, glad to hear you are feeling 'reasonably good'. Best moving forward
- Mon Oct 14, 2013 8:28 am
- Forum: Copaxone
- Topic: Cpoaxone and swollen lymph nodes
- Replies: 1
- Views: 2895
Re: Cpoaxone and swollen lymph nodes
I have switched to every other day...or so. I usually inject 5 days a week and that has helped me personally. It also makes a big difference if I have any 'trauma' during the injection. Sometimes it will hurt a little or I'll have some blood and if that happens I will usually feel some swelling in m...
- Tue Aug 27, 2013 6:56 am
- Forum: Copaxone
- Topic: every other day
- Replies: 7
- Views: 3046
Re: every other day
Sophie - how do you feel clinically? I stopped getting mri's as my last one was depressing yet I did not feel any worse clinically. I think lesions will come an go and as long as you feel ok then that's all that matters. At the point I begin to slide clinically is when I will pursue HSCT. There has ...
- Fri Aug 23, 2013 12:41 pm
- Forum: Copaxone
- Topic: every other day
- Replies: 7
- Views: 3046
every other day
I've been on the eod plan for ten months now with no relapses. I went this route due to swollen lymph nodes. The past few months I've increased to both weekend days and eod mid-week. Sometimes this disease just makes me wonder that when the time is right it will just rear its ugly head just as it hi...
- Mon Oct 08, 2012 6:38 am
- Forum: Copaxone
- Topic: Swollen painful glands anyone?
- Replies: 9
- Views: 12628
Re: Swollen painful glands anyone?
Lymphadenopathy is a side effect of Copaxone. Personally, I'd rather not take minocycline as I don't believe this to be an infection, but more an effect from introducing Copaxone to your system. I am now off Copaxone.
http://jnnp.bmj.com/content/70/3/415.full
http://jnnp.bmj.com/content/70/3/415.full
- Sun Oct 07, 2012 5:12 pm
- Forum: Copaxone
- Topic: Swollen painful glands anyone?
- Replies: 9
- Views: 12628
Re: Swollen painful glands anyone?
trying to find the bottom line on this issue but I have yet to read a definitive report as to exactly what the long term prognosis is if one continues on with the lymph nodes being swollen.
- Sun Oct 07, 2012 7:09 am
- Forum: Copaxone
- Topic: Copaxone and Cancer?
- Replies: 7
- Views: 8097
Re: Copaxone and Cancer?
I just discovered that I have Lymphadenopathy now that I've been taking Copaxone since June. I trying to make sense of exactly what is going on, but I'm still quite lost reading the studies. I cannot imagine it is a good thing.
http://www.jimmunol.org/content/170/9/4483.long
http://www.jimmunol.org/content/170/9/4483.long
- Mon Aug 13, 2012 6:48 am
- Forum: Copaxone
- Topic: Why not butt area for injection?
- Replies: 6
- Views: 6307
Re: Why not butt area for injection?
it seems like most people do inject in their butt area. if you look closely at the chart it shows the butt area...at least that is how i look at it. it's kind of vague imo...below the waist is the verbiage states and that is a little different for everyone. most of the upper area of that zone would ...
- Wed Jul 25, 2012 10:26 am
- Forum: Copaxone
- Topic: 2 months on Copaxone
- Replies: 8
- Views: 4498
Re: 2 months on Copaxone
seems like you could develop and allergy to copaxone over time, right? i have no idea, but my wife became allergic to shellfish in her twenties...she had eaten it her entire life up until that point. LDN is Low Dose Naltrexone. the whole thing is overwhelming when you are first diagnosed. it's overw...
- Wed Jul 18, 2012 11:43 am
- Forum: Medical Marijuana
- Topic: Cannabis
- Replies: 13
- Views: 10821
Re: Cannabis
I was wondering..does anyone think smoking cannabis can actually make your MS worse? I don't think it will make your 'MS' worse, but maybe it will make you feel worse. If it provides some relief then i would do it. If it doesn't, then i wouldn't. I personally don't worry about it. I smoke an incred...
- Mon Jul 09, 2012 8:11 am
- Forum: General Discussion
- Topic: ON recovery, how long did it take you?
- Replies: 5
- Views: 1478
Re: ON recovery, how long did it take you?
mine became better over the course of 4-6weeks. i had it in one eye and they termed it double vision, although i never saw two of anything. if i closed the one eye it was fine. it has only occurred once for me. don't beat yourself up about the avonex. it may not be connected at all and i'm assuming ...
- Mon Jun 25, 2012 5:59 am
- Forum: Copaxone
- Topic: Coverage for Copaxone
- Replies: 17
- Views: 8743
Re: Coverage for Copaxone
NHE- thanks for the info. honestly though, i cannot read those as my stress level doesn't need to get any higher due to my MS! it's good to see that their patent is expiring, hopefully this will be available to those who want it. we always have whole foods, supplements, exercise, and a positive atti...