Search found 140 matches
- Mon Apr 07, 2014 6:07 pm
- Forum: General Discussion
- Topic: Does this sound like ON to you?
- Replies: 9
- Views: 2282
Re: Does this sound like ON to you?
what you are describing is exactly what my cousin was describing when he was very ill. It turns out that what he had was called neuroretinitis which is very very similar and closely related to optic neuritis. From there we discovered he was misdignosed with MS for 13 years and had 5 infections (chla...
- Sun Apr 06, 2014 1:34 pm
- Forum: Introductions
- Topic: Diagnosed today
- Replies: 7
- Views: 2210
Re: Diagnosed today
If the story your telling me is true than you should seriously consider holding off on the methyprednisone. That is a steroid. If your neurologist is wrong and because the testing is inaccurate for Lyme, especially when you suppress your immune system with steroids you will be harming yourself great...
- Fri Apr 04, 2014 4:22 pm
- Forum: Introductions
- Topic: Diagnosed today
- Replies: 7
- Views: 2210
Re: Diagnosed today
are you aware of the biggest controversy in medicine? Lyme disease + Co-infections (bartonella and babesia). Many many people are misdiagnosed with MS and really have these stealth infections. and recently I have read a lot about this controversy brewing in Australia. Please, please, please look int...
- Mon Mar 31, 2014 1:55 pm
- Forum: Undiagnosed
- Topic: please help me getting nowhere with doc for over 7 year
- Replies: 5
- Views: 1581
Re: please help me getting nowhere with doc for over 7 year
Educate yourself on the most controversial disease in the history of medicine on just about all facets of the disease- Lyme disease and coinfections- Bartonella and Babesia. Sounds like a textbook case with the night sweats, pain in foot and eye pain. Read Dr. Burrascano's Guidelines by googleing fo...
- Fri Mar 28, 2014 4:35 pm
- Forum: Undiagnosed
- Topic: MS or Not that is the BIG question.....
- Replies: 5
- Views: 1698
Re: MS or Not that is the BIG question.....
Tinkhammer, For some reason, optic neuritis is only associated with MS, when it can be caused by an infection. If I were you I would avoid the steroids. Has your doctor tested you for Lyme? Bartonella? Mycoplasma Pn? Do you know that Lyme disease is the most controversial disease in the history of m...
- Sun Mar 16, 2014 4:52 pm
- Forum: Undiagnosed
- Topic: My Drs are baffled
- Replies: 100
- Views: 15412
Re: My Drs are baffled
If I had a million dollars I would bet what you have are serious infections called Lyme, Bartonella and Babesia. These infections are very difficult to test for and very difficult to treat and each of them need to be treated. This is why Lyme disease is the most controversial disease in the history ...
- Tue Feb 04, 2014 6:26 pm
- Forum: Undiagnosed
- Topic: Tests came back negative, getting worse
- Replies: 17
- Views: 3762
Re: Tests came back negative, getting worse
Santanabmw, Please know I am not disputing that you are sick, I believe everything that you say as what you describe is what my cousin did as well....until after 13 years we finally realized he was misdiagnosed and really had Lyme Babesia, bartonella, cpn, and mycoplasma pn. What I am saying is the ...
- Mon Feb 03, 2014 4:31 pm
- Forum: General Discussion
- Topic: First time use of steroids
- Replies: 4
- Views: 1176
Re: First time use of steroids
if you have an infection, steroids will make you much worse! steroids suppress the immune system and make it harder for your body to produce antibodies. this is what the lyme and coinfections test is testing. In other words if you have these infections which are very difficult and extremely unreliab...
- Mon Feb 03, 2014 4:26 pm
- Forum: Undiagnosed
- Topic: Tests came back negative, getting worse
- Replies: 17
- Views: 3762
Re: Tests came back negative, getting worse
santanabnm, Unfortunately, you are incorrect... you can never rule out Lyme and coinfections for several reasons. First, the testing is inaccurate. Second, the steroids you are currently taking are suppressing your immune system and therefore your body will have a more difficult time producing antib...
- Tue Jan 07, 2014 7:48 pm
- Forum: Antibiotics
- Topic: minocycline
- Replies: 2
- Views: 5418
Re: minocycline
Jerrygallow, Hopefully you have started the recommended supplement NAC but more importantly done some research. Minocycline is twice as strong as doxycycline but nonetheless very effective for MS. Your reaction after a week of minocycline is expected and is somewhat confirmation of an infection. Do ...
- Mon Jan 06, 2014 7:02 pm
- Forum: Antibiotics
- Topic: Looking for a Lyme and co infections TIMS expert...
- Replies: 1
- Views: 5893
Re: Looking for a Lyme and co infections TIMS expert...
I think I can help you. Send me a PM.
- Wed Dec 18, 2013 6:03 pm
- Forum: Undiagnosed
- Topic: Brushed off by Neuro as Anxiety. Practical advice now?
- Replies: 5
- Views: 1784
Re: Brushed off by Neuro as Anxiety. Practical advice now?
You are aware that a negative Lyme test does not mean you do not have Lyme, aren't you? If not read this link. http://lymedisease.org/news/lyme_disease_views/virginia-gov-signs-lyme-bill.html Furthermore, Lyme disease is the most controversial disease in the history of medicine!! The testing is unre...
- Tue Dec 03, 2013 3:38 pm
- Forum: Antibiotics
- Topic: Want to start Dr Wheldon's protocol
- Replies: 45
- Views: 26022
Re: Want to start Dr Wheldon's protocol
I'll answer your question. Take your doxy with food and this should solve your problem. What you are experiencing is very common and a little food in your stomach will help a lot!!
- Mon Oct 28, 2013 2:46 pm
- Forum: General Discussion
- Topic: Dizzy for 9 months – MS, Lyme, Migraines, Anxiety or VH?
- Replies: 11
- Views: 8596
Re: Dizzy for 9 months – MS, Lyme, Migraines, Anxiety or VH?
Alex, In my opinion you have Lyme, Babesia and Bartonella. Lyme is the most controversial medical issue in history and the CDC just admitted there are over 300,000 a year , an estimate that increased 10 X what they thought. MOst people get infected with multiple pathogens. It is not just lyme, there...
- Thu Oct 17, 2013 5:10 pm
- Forum: General Discussion
- Topic: Optic Neuritis
- Replies: 2
- Views: 1190
Re: Optic Neuritis
If I were you, ask your doctor for minocycline. Let me explain. As is so often the case, this is one of the first symptoms but how do you know the difference between optic neuritis and neuroretinitis? You don't, but they are just about the same. Assuming you are from Boston or Mass with a name like ...