Search found 187 matches
- Sat May 11, 2013 4:04 am
- Forum: Stem Cells
- Topic: Major Advance in Understanding Risky but Effective MS......
- Replies: 2
- Views: 2287
- Tue Dec 11, 2012 2:24 pm
- Forum: Stem Cells
- Topic: My CtrlAltDel - Status
- Replies: 292
- Views: 68346
Re: My CtrlAltDel - Status
There are tons of articles on it in major journals. I have spoken to 3 people who had less than stellar results. Sella had a bad infection during treatment in Britain, Lisa from Lisa's hope had to go back for some more chemo after a few years(and is now stable again), and asher failed to have any re...
- Sun Oct 07, 2012 7:50 am
- Forum: Stem Cells
- Topic: My CtrlAltDel - Status
- Replies: 292
- Views: 68346
Re: My CtrlAltDel - Status
A few friends of mine started a 501c3. I'm not sure where you live, but in he us, it is much easier for large organizations to give if it is tax deductible. We have sponsored a battle of the bands, silent auction, and now a golf tournament. All of the money runs to the tax deductible organization an...
- Sat Sep 29, 2012 5:30 pm
- Forum: Stem Cells
- Topic: My CtrlAltDel - Status
- Replies: 292
- Views: 68346
Re: My CtrlAltDel - Status
I'm not a cyclist, and don't care to be . But I do think very highly of all of you guys and you are the ones who have led me to this juncture. If I can raise the money, I will be heading to Chicago. They are some great folks and have made me trust them.
- Thu Sep 27, 2012 2:28 pm
- Forum: Stem Cells
- Topic: My CtrlAltDel - Status
- Replies: 292
- Views: 68346
Re: My CtrlAltDel - Status
were you diagnosed PP or were you initially RR?
- Thu Sep 27, 2012 11:57 am
- Forum: Stem Cells
- Topic: My CtrlAltDel - Status
- Replies: 292
- Views: 68346
Re: My CtrlAltDel - Status
HUD,
How long had you been diagnosed prior to the initial HSCT? Did you have any active lesions whatsoever? Since you are PP, I would assume you did not, but I would like to know. Can you tell if the BMT has allieviated any of your symptoms?
Thanks
How long had you been diagnosed prior to the initial HSCT? Did you have any active lesions whatsoever? Since you are PP, I would assume you did not, but I would like to know. Can you tell if the BMT has allieviated any of your symptoms?
Thanks
- Tue Sep 25, 2012 2:38 pm
- Forum: Stem Cells
- Topic: My CtrlAltDel - Status
- Replies: 292
- Views: 68346
Re: My CtrlAltDel - Status
A big part if the theory behind hsct as a treatment is to stop the underlying inflammatory disease activity to ward off the next two stages of the disease. Along with having an immune naive system to replace the old malfuntioning immune system.
- Tue Sep 25, 2012 5:26 am
- Forum: Stem Cells
- Topic: My CtrlAltDel - Status
- Replies: 292
- Views: 68346
Re: My CtrlAltDel - Status
Please keep us posted. I guess what dr Burt put in his last paper about inflammation being the key is really the key to this crazy disease.
- Mon Sep 24, 2012 5:30 am
- Forum: Stem Cells
- Topic: My CtrlAltDel - Status
- Replies: 292
- Views: 68346
Re: My CtrlAltDel - Status
Asher,
I know I should know this, but were you rr pp or sp at the time of your treatment? I am sill in rr, but disability is slowly accumulating. I went to see dr Burt and have been fundraising ever since. I is great to have your perspective on this.
I know I should know this, but were you rr pp or sp at the time of your treatment? I am sill in rr, but disability is slowly accumulating. I went to see dr Burt and have been fundraising ever since. I is great to have your perspective on this.
- Fri Sep 14, 2012 7:19 am
- Forum: Stem Cells
- Topic: My CtrlAltDel - Status
- Replies: 292
- Views: 68346
Re: My CtrlAltDel - Status
Glad to see you are doing better. I finally had to "come out" around work and to the community I am in in order to try to raise money for the HSCT treatment. I have gotten a bunch of patronization, but a fair amount of understanding and gnuine caring. I have been surprised that we have rai...
- Wed Aug 29, 2012 6:52 pm
- Forum: Stem Cells
- Topic: Dr Burt and waiting forever
- Replies: 12
- Views: 6073
Re: Dr Burt and waiting forever
Say it brother.
- Mon Aug 27, 2012 7:05 am
- Forum: Stem Cells
- Topic: Dr Burt and waiting forever
- Replies: 12
- Views: 6073
Re: Dr Burt and waiting forever
Good call. I beleive that it should be reserved for those that qualify as "agressive" in their progression. I know that I have had multiple relapses and multiple new spinal lesions i the last year, and according to the study, that turns dont the vast majority of people who apply, I am a go...
- Mon Aug 27, 2012 3:10 am
- Forum: Stem Cells
- Topic: Dr Burt and waiting forever
- Replies: 12
- Views: 6073
Re: Dr Burt and waiting forever
Good points gogo. I read a recent medical article that said the some doctors have identified a cancer related stem cell that is very twilight and can hide in the body for years or be behind some latent malignancies. It may even be responsible for cancers that don't respond to chemo in the body like ...
- Sun Aug 26, 2012 3:12 pm
- Forum: Stem Cells
- Topic: Hsct and fundraising.
- Replies: 5
- Views: 3417
Re: Hsct and fundraising.
So our first fundraiser was Friday night! And I would call it a qualified success. We had 3 bands donate their time from 5 till midnight, got the city to donate a building, got 15 thousand dollars in items donated, and held a battle of the bands/ silent auction/ raffle, and raised in the neighborhoo...
- Sun Aug 26, 2012 2:58 pm
- Forum: Stem Cells
- Topic: Dr Burt and waiting forever
- Replies: 12
- Views: 6073
Re: Dr Burt and waiting forever
There's even more to it than what George says, because some drug companies can put up huge bond and have their drugs fast tracked through the FDA. Crony capitalism at its worst. I am a huge free market guy, but when govt stacks the deck for their friends, it is really depressing.