Search found 85 matches

by elaine
Fri May 14, 2010 1:44 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI - Aussie Action!
Replies: 851
Views: 204186

Hey Adolfo
I don't know what i can do, but i am more than happy to help with the fundraising.
cheers Elaine
by elaine
Tue Apr 27, 2010 6:32 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: RE: VENOGRAPHY AND PROCEDURE IN SYDNEY
Replies: 5
Views: 2684

Fantastic news seeva , good luck for the 19th.
Elaine
by elaine
Fri Apr 16, 2010 1:14 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI - Aussie Action!
Replies: 851
Views: 204186

Thanks Nico i will give them a ring and find out, the Proff did come to see me after the procedure but i had such a big headache, that i don't think i took anything in. I also have been keeping a diary i will be more than happy to hand over to the Proff if this can help in anyway.He is an amazing ma...
by elaine
Fri Apr 16, 2010 2:56 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI - Aussie Action!
Replies: 851
Views: 204186

That's great news nico, i was wondering if Proff T would be able to re balloon if need be.
I know you mentioned he comes back from os mid May but do you know when he leaves?
Another question do i just wait four weeks then re book appointment with Julie and the Proff?
cheers Elaine
by elaine
Tue Apr 13, 2010 1:58 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI - Aussie Action!
Replies: 851
Views: 204186

Hi Downunder
maybe i was a bit harsh in saying "trying to close him down" Proff did tell me that the neuros at the hospital wanted him to stop what he was doing and cancel his appointments.
Elaine
by elaine
Fri Apr 09, 2010 11:39 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI - Aussie Action!
Replies: 851
Views: 204186

Hello everyone just thought i would give you all a quick update, I was feeling quite sore for the first few days.I even felt like my legs were a bit weak, but today i am starting to feel much better.I had a hot shower just to see how i go, which normally i would have to sit down after it for about a...
by elaine
Tue Apr 06, 2010 2:48 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI - Aussie Action!
Replies: 851
Views: 204186

Hi everyone just to let you know i had the procedure done yesterday.Proff T found and ballooned a two places.Vein (sorry don't know correct term) at the base of my scull on the right hand side, and also balloned my left jugular valve.Was sore when he was doing valve, i didn't have any sedation.My az...
by elaine
Wed Mar 31, 2010 12:06 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI - Aussie Action!
Replies: 851
Views: 204186

kats
good to hear that all went well with your son, fingrs crossed that you both see improvment's soon.
Elaine
by elaine
Sun Mar 28, 2010 12:50 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Updated my blog
Replies: 20
Views: 5152

Lou
i love love loved you latest blog, because that is all i wish for to have a "normal" day with the kids.
best wishes Elaine
by elaine
Sat Mar 27, 2010 3:06 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI - Aussie Action!
Replies: 851
Views: 204186

Nico i am so happy for you, way to go.Standing for 10 minutes after not beeing able to for the past three years, well i call that major, fantastic.
Hope you have many more improvments.
Elaine
by elaine
Fri Mar 26, 2010 8:33 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI - Aussie Action!
Replies: 851
Views: 204186

that's great news Jennifer, getting all this feed back before i go in has been very encouraging.
Cheers Elaine
by elaine
Thu Mar 25, 2010 1:28 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI - Aussie Action!
Replies: 851
Views: 204186

thanks Opera for your kind words, good luck Nean, Dcalder1, Val & Kat's son.Wow so many of us getting done it now, it's awsome. And Aldolfo it's great to hear you are doing so well, im sure your party will be a smashing success.
Elaine
by elaine
Wed Mar 24, 2010 5:52 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI - Aussie Action!
Replies: 851
Views: 204186

Hi Kerri
good to hear that you are still doing well, not long to go before i get mine done.I am so looking forward to any improvments...12 more sleeps to go!!
Elaine
by elaine
Sun Mar 21, 2010 3:16 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI in New Zealand
Replies: 16
Views: 5889

Good luck NZ all us Aussie's are wishing you all the best.
Elaine
by elaine
Sun Mar 21, 2010 2:05 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI - Aussie Action!
Replies: 851
Views: 204186

15 more sleeps......but hey who's counting?

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