Search found 24 matches

by jgalt2009
Thu Jul 21, 2011 5:10 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Cece's turn
Replies: 722
Views: 160920

There's another labelled azygos vein lower down, what is that about? Is it the hemiazygos? Or is still the azygos? According to Netter's Atlas, the arch of the azygos is about 2 vertebrae above the accessory hemiazygous, and about 3.5 above the hemiazygos. I think I can make out about 4 vertebrae b...
by jgalt2009
Tue Jul 19, 2011 4:31 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: DrSclafani answers some questions
Replies: 8342
Views: 2371349

Cece wrote:What if pwPPMS do not get other improvements but get QOL benefits?

What if there are no overt improvements, but disease progression is decelerated or abated?
by jgalt2009
Thu Jul 14, 2011 9:28 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: DrSclafani answers some questions
Replies: 8342
Views: 2371349

Doctor Sclafani, 1. In the "what do you want for free" department... for those of us tired of relying on the Gray's Anatomy pictures on Wikpedia (free, yes, but I can't make out some of the writing on the pictures), (a) do you have a favorite human anatomy textbook for under $100? and (b) ...
by jgalt2009
Fri Jul 08, 2011 5:15 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: 2nd Annual CCSVI Symposium in NYC July 15-17
Replies: 158
Views: 33598

Re: Patient day

i know dr ludgya. I liked him. But this is too much. I am incredulous about this. Just a thought, Doc... might be one of his groupies, or someone on his staff. I've never heard of him, so I'm not defending irresponsible actions. But someone once sent out an obnoxious email from my desk computer, an...
by jgalt2009
Wed Jul 06, 2011 10:33 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: DrSclafani answers some questions
Replies: 8342
Views: 2371349

Do you know if this phasic azygous for sure has reflux? This would have been seen on the venograms. I am so out of my league here... but I thought that reflux was only a concern in veins that were proximal to brain matter (DCV's) and spinal cord (lumbar and vertebrals). Reflux in azygous may propag...
by jgalt2009
Wed Jul 06, 2011 12:50 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: DrSclafani answers some questions
Replies: 8342
Views: 2371349

this is ironic DrSclafani answers some questions asks for some questions and no one is there. Dr. Sclafani, I assumed your target audience were those that would be present at the symposium. I have many questions for them, but unfortunately, I will not be able to attend. I would like to know: 1. sho...
by jgalt2009
Tue Jul 05, 2011 8:51 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: DrSclafani answers some questions
Replies: 8342
Views: 2371349

Dr. Sclafani, I have a few questions, but before getting to them, I want to express, not just my appreciation for you, but WHY I appreciate you so much. In any normal environment, I only get to speak with my doctor when I have an appointment. If I am properly prepared, I can usually get my most pert...
by jgalt2009
Mon Jul 04, 2011 11:40 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: DrSclafani answers some questions
Replies: 8342
Views: 2371349

Lumbar hypoplasia seems very common among MSers of all types. Dr. Sclafani, Dr. Zamboni's original study documented 18 hypoplastic vein occurrences. He stated that 5 of 6 hypoplastic azygous veins were treated and "favorably responded". The study makes no mention of the other 12 hypoplasi...
by jgalt2009
Sun Jun 26, 2011 10:01 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: DrSclafani answers some questions
Replies: 8342
Views: 2371349

The more i treat this, the more I believe that i am not treating MS at all, but most of the time treating ccsvi. and this is a belief, not a truth. Dear Dr. Sclafani, Please clarify... do you mean to imply that there is mutual exclusion? Isn't it possible that CCSVI is causative for symptoms that c...
by jgalt2009
Thu Jun 23, 2011 3:08 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: What to do, What to do? Restenosed
Replies: 11
Views: 2902

The following is simply a brainstorm, not a suggestion. I have not researched the risk, cost, or feasiblity of any of this. But I wonder... If your IJV blockage is accessible via neck dissection, would an IJV bypass be an option? Whereas the risk associated with invasive bypass operations is probabl...
by jgalt2009
Tue Jun 21, 2011 7:16 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: DrSclafani answers some questions
Replies: 8342
Views: 2371349

Dr. Sclafani, I am fascinated by the categorization of CCSVI by location of blockage. While nobody wants to have any of the types, type D (multi-level azygous and lumbar blockages) seems to be heavily correlated with PP (and thus, the diagnosis one would least want to receive). 1. Has this associati...
by jgalt2009
Sat Jun 18, 2011 10:01 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: DrSclafani answers some questions
Replies: 8342
Views: 2371349

drsclafani wrote:the basic playbook keeps being enhanced.
Thank you so much for such an excellent and detailed answer. I can't get that kind of detail out of doctors that I pay.

You are very special, and greatly appreciated. Lorna and I are looking forward to meeting you in July (the 11th and 12th, I think/hope).
by jgalt2009
Fri Jun 17, 2011 5:28 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Get treated ASAP if you want insurance to cover it
Replies: 71
Views: 14388

First of all, does anybody know of a 501(c)(3) out there with a mission statement related to advocating for CCSVI coverage (with or without MS)? If so, we all need to know about them and support them. If not, it needs to be incorporated. Second, does anybody know if the MS Society has an active role...
by jgalt2009
Fri Jun 17, 2011 4:27 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: DrSclafani answers some questions
Replies: 8342
Views: 2371349

Dr. Sclafani, I have two questions. 1. You state that, when you have a chance, you look in the vertebral veins, and you also stated that you now routinely check the dural sinuses. Do you have a "basic" playbook for the procedure, and adjust it based on circumstances or available time or ot...
by jgalt2009
Fri Jun 17, 2011 3:19 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: A familiar theme
Replies: 16
Views: 3387

Now penis enlargement is something I could get behind. Not that I need it or anything. :-)

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