Search found 12 matches

by Athina
Mon May 21, 2012 11:02 pm
Forum: General Discussion
Topic: Relapse triggered by massage
Replies: 5
Views: 3594

Re: Relapse triggered by massage

Acupunction has for me triggered an exacerbation of ms as well, by the way. What is in common for these triggers (massage, acupuncture, sex), however is that every time there was an underlying active inflammation already present (=mild emerging symptoms) before the trigger. The "trigger" t...
by Athina
Mon May 21, 2012 10:57 pm
Forum: General Discussion
Topic: Relapse triggered by massage
Replies: 5
Views: 3594

Re: Relapse triggered by massage

Yes! I'm glad you brought this topic up. My worst ever relapse so far was triggered, or worsened, by massage of the neck. This was several years ago. I had actually already started relapsing already, I had vertigo feelings for several days. But kept on working and tried to carry on normal activities...
by Athina
Wed Jan 04, 2012 8:21 am
Forum: General Discussion
Topic: Frustrated with my symptoms and doctor.
Replies: 3
Views: 1603

Re: Frustrated with my symptoms and doctor.

You should definitely ask for a copy of your MRI report plus a copy of the pictures. Your symptoms could well be ms. Maybe the neurologist wants to rule out some other things first. The drooping eyelind (ptosis) is a symptom which I think might present in myasthenia gravis and some other neurologica...
by Athina
Tue Jan 03, 2012 9:14 pm
Forum: General Discussion
Topic: Leg ms, brainstem ms, cognitive ms, what type is yours?
Replies: 8
Views: 2919

Re: Leg ms, brainstem ms, cognitive ms, what type is yours?

MRI signal hyperintensity at C3 implies that at least when those pictures were taken, the problem was really up in the spinal cord (in the cervical cord). That is not good as it might affect all four limbs. everything below that level. But I'm not a doctor and perhaps that specific lesion has faded ...
by Athina
Mon Jan 02, 2012 9:22 pm
Forum: General Discussion
Topic: Leg ms, brainstem ms, cognitive ms, what type is yours?
Replies: 8
Views: 2919

Re: What kind of ms do you have

Hi, perhaps you should post this as an own issue on the list to create a separate thread for your husband. I wish you all the best. When will you receive the MRi results? Ok, so your husband has a dg of PPMS. The deterioration of walking is in line with that diagnosis. Physiotherapy in general would...
by Athina
Sun Jan 01, 2012 4:22 am
Forum: General Discussion
Topic: Leg ms, brainstem ms, cognitive ms, what type is yours?
Replies: 8
Views: 2919

Re: What kind of ms do you have

Forgot to remark: I have labelled my ms brainstem ms . Don't know how accurate this is. But that's how I would see it anyway. One ms girl I know has mswith predominantly walking problems and leg spasticity. I'd call this the textbook ms. Or leg ms . Another woman has mainly cognitive issues such as ...
by Athina
Sun Jan 01, 2012 4:11 am
Forum: General Discussion
Topic: Leg ms, brainstem ms, cognitive ms, what type is yours?
Replies: 8
Views: 2919

Leg ms, brainstem ms, cognitive ms, what type is yours?

Ms is a highly variable disease. In other words, in different people ms presents itself in very differing ways. Two people with ms may not have much in common as regards symptoms, degree of disability, pace of progression, severity of the attacks and so on. How would you describe your version of ms?...
by Athina
Sun Nov 20, 2011 7:58 am
Forum: General Discussion
Topic: Anybody tried Mestinon for muscle weakness
Replies: 4
Views: 2644

Re: Anybody tried Mestinon for muscle weakness

I use Mestinon for constipation. Believe it or not, this is what my neurologist prescribed me for this problem! It does have a positive effect on that actually. But my ms has not improved as such.
by Athina
Sun Nov 20, 2011 7:41 am
Forum: General Discussion
Topic: Gilenya and...Cancer??
Replies: 3
Views: 6503

Re: Gilenya and...Cancer??

I have heard of a link between Gilenya and skin cancer, too. As for myself, neuros are unsure whether Gilenya could be an option or not. This is because I am a cancer survivor. Not skin cancer though. Gilenya is an immunosuppressant, like many other drugs used to treat ms. Suppressing the immune sys...
by Athina
Thu Sep 01, 2011 5:08 am
Forum: General Discussion
Topic: Toe Nail Fungus Tablets - Terbinafine Hydrochloride
Replies: 12
Views: 17675

Hi

I have been taking Terbinafine tablets for two weeks now. This is due to fungus in the foot and a bit on the toe nails, too. My doctor told me to take it for one month or so and then we'll see. Terbinafine seems to have a negative effect on my ms symptoms. For the last week I have felt really fatigu...
by Athina
Thu Sep 01, 2011 4:57 am
Forum: General Discussion
Topic: Neuroprotective drugs. Any in use or in the pipeline?
Replies: 0
Views: 1275

Neuroprotective drugs. Any in use or in the pipeline?

Hello, just asking. Do you know what is the situation regarding meds intended for neuroprotection? Are there any drugs of this kind on the market yet, for ms or for other neurological illnesses? Or are there drug trials going on or planned?

Regards,
Athina
by Athina
Tue Jul 19, 2011 5:58 am
Forum: General Discussion
Topic: Wallerian degeneration in the brain
Replies: 2
Views: 1559

Wallerian degeneration in the brain

Hi all. I would like to ask if there is anyone whose MRIs have shown a degree of Wallerian degeneration process in the brain? I have an area of this kind somewhere around the thalamus region. According to the radiologists' reports this area has been there for several years at I haven't received an e...

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