Search found 42 matches

by Axiom
Tue Nov 16, 2010 8:25 pm
Forum: Revimmune (cyclophosphamide or cytoxan)
Topic: What tests prior?
Replies: 12
Views: 6198

Chris and Mel both had the treatment at Johns Hopkins. Check out this link: http://rebootingkathy.blogspot.com/ (or do a search for Reebooting Kathy if it doesn't link properly) It's a blog written by a patient who had the treatment at Rush. She shares lots of very detailed info, and she even has a ...
by Axiom
Tue Oct 05, 2010 9:46 am
Forum: Revimmune (cyclophosphamide or cytoxan)
Topic: starting this week, few questions...
Replies: 7
Views: 5591

I thought I read that revimmune treatment had been stopped at JH, and I haven't seen any info about the study at Rush for ages, is that still ongoing? So I guess combined with how quiet this section of the board has been, I didn't realize revimmune treatment was even currently available anywhere. 7-...
by Axiom
Sun Feb 07, 2010 9:19 am
Forum: Revimmune (cyclophosphamide or cytoxan)
Topic: HDC news
Replies: 3
Views: 5335

My understanding is that Johns Hopkins was offering Revimmine on a compassionate basis, tabulating results, but not doing a formal study. Correct? Their numbers certainly look good: "ninety percent of those who have had it have no evidence of the disease, and forty percent have shown improvement in ...
by Axiom
Sun Feb 07, 2010 8:22 am
Forum: Revimmune (cyclophosphamide or cytoxan)
Topic: UPDATE FOR REVIMMUNERS
Replies: 2
Views: 5638

Yes, very good news indeed, congratulations Chris!

This section of TIMS has been very quiet lately. Thanks so much for coming back to post your update.
by Axiom
Tue Jan 05, 2010 6:24 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI theory vs Immune System Reboot
Replies: 25
Views: 5104

MarkW, The OP asked how 2 different theories may or may not make sense together. Obviously we don't have definitive answers to his/her question, especially since neither has been widely embraced and/or studied on it's own merits, much less looked at in combination. I'm sure everyone understands that...
by Axiom
Tue Jan 05, 2010 12:48 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI theory vs Immune System Reboot
Replies: 25
Views: 5104

I've searched this site and others. Over a year ago I heard alot about people having their Immune System Rebooted and it showing results in very early trials. People had chemotherapy to destroy their immune system and retransplanting their own immune stem cells into their bodies and thereby "resett...
by Axiom
Sun Dec 13, 2009 1:15 pm
Forum: General Discussion
Topic: Phoenix Area Neuros
Replies: 6
Views: 1827

Hi Grant, Was it Dr. Vollmer who moved on you? I know Barrows was very excited to get him, but he sure didn't stay long. If the Mayo Clinic doesn't work out for you, Dr. Barry Hendin comes very highly recommended by folks in the know. His office is on 40th St. down near Camelback Rd. though, so prob...
by Axiom
Mon Dec 07, 2009 10:06 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Need $$$ for CCSVI?
Replies: 4
Views: 1888

I haven't looked into this much myself, but as with anything that sounds too good to be true, be sure to check it out thoroughly before you sign up.

Here's just one news report to get you started:

http://abcnews.go.com/Business/work-hom ... id=8438110
by Axiom
Mon Dec 07, 2009 9:44 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Updated my blog
Replies: 21
Views: 4588

123 I don't get it? I believe the back story is here: http://www.thisisms.com/ftopict-9157.html And in case that post gets edited, in a nutshell: To put it simply, I am done with this forum. I can't delete my ID or my posts so I am going through everyone I have ever made and deleting the content. I...
by Axiom
Fri Dec 04, 2009 10:36 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Phase 2 thoughts for after interventions...
Replies: 3
Views: 1708

I hadn't seen the abstract yet, but I have been very interested in the Terry Wahls story. More info here: http://www.terrywahls.com/ I spoke with a PT who uses a lot of e-stim in his practice, and he told me he is reluctant to work with MS patients since one attack can wipe out any progress they've ...
by Axiom
Thu Dec 03, 2009 12:17 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: The US NMSS said yes to CCSVI?
Replies: 1
Views: 1801

Well, announcing that they will accept funding propsals and/or that they are in discussions about joint projects is just a very preliminary step. I believe the window announced for CCSVI applications at the Canadian Society was very narrow. We don't know if anyone will actually be able to get a good...
by Axiom
Sat Nov 21, 2009 6:55 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Canadian Documentary ????!!!!
Replies: 152
Views: 27915

I thought Dr. Dake would have been on there no? Mark. I wonder why there was nothing on Dr Dake ?? They were planning on shooting a segment with Dr. Dake, but the timing of the filming ended up being quite rushed, and Stanford requires i's dotted and t's crossed (ie: stacks of releases signed by an...
by Axiom
Thu Nov 12, 2009 7:48 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: MS Society eNews and CCSVI
Replies: 91
Views: 15897

MS Society eNews and CCSVI

I just got the November eNews from the National Multiple Sclerosis Society and CCSVI has top billing. Of course they add a disclaimer that results are unconfirmed, many questions remain, etc. But I'd say they're definitely paying attention.
by Axiom
Tue Aug 18, 2009 1:09 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: For Holly...
Replies: 85
Views: 18055

Prayers for peace and comfort are being sent to Holly's family and the many people she has touched.
by Axiom
Thu Jul 23, 2009 3:46 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CHARING CROSS - paper on line for free....
Replies: 130
Views: 18200

I'm going to re-read the paper now, but a couple of thoughts from the first skim through: Zamboni found azygous issues in 86% of MS folks tested. If I'm reading posts here correctly, I believe Dr. Dake has only found azygous issues in 3 folks. Do you think the possible disparity is just due to the s...

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