Search found 42 matches
- Tue Nov 16, 2010 8:25 pm
- Forum: Revimmune (Cyclophosphamide, Cytoxan)
- Topic: What tests prior?
- Replies: 12
- Views: 8318
Chris and Mel both had the treatment at Johns Hopkins. Check out this link: http://rebootingkathy.blogspot.com/ (or do a search for Reebooting Kathy if it doesn't link properly) It's a blog written by a patient who had the treatment at Rush. She shares lots of very detailed info, and she even has a ...
- Tue Oct 05, 2010 9:46 am
- Forum: Revimmune (Cyclophosphamide, Cytoxan)
- Topic: starting this week, few questions...
- Replies: 7
- Views: 7344
I thought I read that revimmune treatment had been stopped at JH, and I haven't seen any info about the study at Rush for ages, is that still ongoing? So I guess combined with how quiet this section of the board has been, I didn't realize revimmune treatment was even currently available anywhere. 7-...
- Sun Feb 07, 2010 9:19 am
- Forum: Revimmune (Cyclophosphamide, Cytoxan)
- Topic: HDC news
- Replies: 3
- Views: 6580
- Sun Feb 07, 2010 8:22 am
- Forum: Revimmune (Cyclophosphamide, Cytoxan)
- Topic: UPDATE FOR REVIMMUNERS
- Replies: 2
- Views: 6760
- Tue Jan 05, 2010 6:24 pm
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: CCSVI theory vs Immune System Reboot
- Replies: 25
- Views: 6386
MarkW, The OP asked how 2 different theories may or may not make sense together. Obviously we don't have definitive answers to his/her question, especially since neither has been widely embraced and/or studied on it's own merits, much less looked at in combination. I'm sure everyone understands that...
- Tue Jan 05, 2010 12:48 pm
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: CCSVI theory vs Immune System Reboot
- Replies: 25
- Views: 6386
- Sun Dec 13, 2009 1:15 pm
- Forum: General Discussion
- Topic: Phoenix Area Neuros
- Replies: 6
- Views: 2293
Hi Grant, Was it Dr. Vollmer who moved on you? I know Barrows was very excited to get him, but he sure didn't stay long. If the Mayo Clinic doesn't work out for you, Dr. Barry Hendin comes very highly recommended by folks in the know. His office is on 40th St. down near Camelback Rd. though, so prob...
- Mon Dec 07, 2009 10:06 am
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: Need $$$ for CCSVI?
- Replies: 4
- Views: 2299
I haven't looked into this much myself, but as with anything that sounds too good to be true, be sure to check it out thoroughly before you sign up.
Here's just one news report to get you started:
http://abcnews.go.com/Business/work-hom ... id=8438110
Here's just one news report to get you started:
http://abcnews.go.com/Business/work-hom ... id=8438110
- Mon Dec 07, 2009 9:44 am
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: Updated my blog
- Replies: 21
- Views: 5516
123 I don't get it? I believe the back story is here: http://www.thisisms.com/ftopict-9157.html And in case that post gets edited, in a nutshell: To put it simply, I am done with this forum. I can't delete my ID or my posts so I am going through everyone I have ever made and deleting the content. I...
- Fri Dec 04, 2009 10:36 am
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: Phase 2 thoughts for after interventions...
- Replies: 3
- Views: 2099
I hadn't seen the abstract yet, but I have been very interested in the Terry Wahls story. More info here: http://www.terrywahls.com/ I spoke with a PT who uses a lot of e-stim in his practice, and he told me he is reluctant to work with MS patients since one attack can wipe out any progress they've ...
- Thu Dec 03, 2009 12:17 pm
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: The US NMSS said yes to CCSVI?
- Replies: 1
- Views: 2127
Well, announcing that they will accept funding propsals and/or that they are in discussions about joint projects is just a very preliminary step. I believe the window announced for CCSVI applications at the Canadian Society was very narrow. We don't know if anyone will actually be able to get a good...
- Sat Nov 21, 2009 6:55 pm
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: Canadian Documentary ????!!!!
- Replies: 152
- Views: 33413
I thought Dr. Dake would have been on there no? Mark. I wonder why there was nothing on Dr Dake ?? They were planning on shooting a segment with Dr. Dake, but the timing of the filming ended up being quite rushed, and Stanford requires i's dotted and t's crossed (ie: stacks of releases signed by an...
- Thu Nov 12, 2009 7:48 am
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: MS Society eNews and CCSVI
- Replies: 91
- Views: 19509
MS Society eNews and CCSVI
I just got the November eNews from the National Multiple Sclerosis Society and CCSVI has top billing. Of course they add a disclaimer that results are unconfirmed, many questions remain, etc. But I'd say they're definitely paying attention.
- Tue Aug 18, 2009 1:09 pm
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: For Holly...
- Replies: 85
- Views: 22385
- Thu Jul 23, 2009 3:46 pm
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: CHARING CROSS - paper on line for free....
- Replies: 130
- Views: 22943
I'm going to re-read the paper now, but a couple of thoughts from the first skim through: Zamboni found azygous issues in 86% of MS folks tested. If I'm reading posts here correctly, I believe Dr. Dake has only found azygous issues in 3 folks. Do you think the possible disparity is just due to the s...