Search found 16 matches

by zoefromsussex
Wed Nov 30, 2011 8:08 am
Forum: General Discussion
Topic: Infratentorial Lesions on MRI...
Replies: 0
Views: 1912

Infratentorial Lesions on MRI...

Can anybody tell me what infratentorial lesions are? None were detected on my mri scan but there were several small areas of change on the white matter (I presume the areas of change are old lesions?)
by zoefromsussex
Tue Nov 29, 2011 11:34 pm
Forum: General Discussion
Topic: On what basis did your doc diagnose you?
Replies: 18
Views: 4560

Re: On what basis did your doc diagnose you?

So I guess it came as a bit of a relief to finally get a diagnosis? When the docs first mentioned MS I was suprised because I hadn't realised optic neuritis was a symptom but looking back, I started getting some signs around 6 years ago. Once I was walking through town with my mum when my right leg ...
by zoefromsussex
Tue Nov 29, 2011 2:46 pm
Forum: General Discussion
Topic: MS how did started, how long to dg?
Replies: 15
Views: 4956

Re: MS how did started, how long to dg?

I didn't even think to decline the lumbar puncture to be honest! I saw an emergency neurologist as my doc wanted to admit me for steroids (I rerfused coz I didn't want to leave my kids and am b/feeding my youngest) and he said I 'had' to have an mri plus lumbar...I wish it had ocurred to me to refus...
by zoefromsussex
Tue Nov 29, 2011 2:32 pm
Forum: General Discussion
Topic: On what basis did your doc diagnose you?
Replies: 18
Views: 4560

Re: On what basis did your doc diagnose you?

Why unnecessary, just out of interest? Had you had years of symptom's?
by zoefromsussex
Tue Nov 29, 2011 9:23 am
Forum: General Discussion
Topic: How soon do you start drug therapy?
Replies: 10
Views: 2164

Re: How soon do you start drug therapy?

Nothing major. We had a car crash a couple of months before the onset on the optic neuritis but I only jolted my neck/head slightly
by zoefromsussex
Tue Nov 29, 2011 2:45 am
Forum: Regimens
Topic: Starting Copaxone soon . . .
Replies: 2
Views: 3120

Re: Starting Copaxone soon . . .

Have you been taking any med's at all for your MS? I'm still waiting for my diagnosis following abnormal mri/lumbar puncture and my fears about the med's are exactly the same as yours e.g. weight gain & not being able to breastfeed. Funnily enough, my son's 8 months old as well! I'll be interest...
by zoefromsussex
Mon Nov 28, 2011 10:45 pm
Forum: General Discussion
Topic: MS how did started, how long to dg?
Replies: 15
Views: 4956

Re: MS how did started, how long to dg?

My neurologist told me the lumbar puncture is to detect whether any oligiclonal bands are present in the spinal fluid as that's a sign of a problem with the immune system (obviously the doctor would describe it in a more sophisticated way!) So, I was told that a positive lumbar combined with the mri...
by zoefromsussex
Mon Nov 28, 2011 10:14 pm
Forum: General Discussion
Topic: On what basis did your doc diagnose you?
Replies: 18
Views: 4560

Re: On what basis did your doc diagnose you?

Oh had you had years of symptoms then? Wish I could have skipped the lumbar too! It was pretty painless but the after effects were horrific. I had a deathly headache but it also triggered other weird stuff such as a buzzing ear, noise distortion & tremors and I could barely walk as felt so wobbl...
by zoefromsussex
Mon Nov 28, 2011 10:10 pm
Forum: General Discussion
Topic: How soon do you start drug therapy?
Replies: 10
Views: 2164

Re: How soon do you start drug therapy?

You know, the spine thing would make a lot of sense. I started getting sciatica 5 yrs ago with my eldest child & I've had terrible trouble with my back & neck since my youngest was born earlier this year. Might look into this more.
by zoefromsussex
Mon Nov 28, 2011 12:03 pm
Forum: General Discussion
Topic: On what basis did your doc diagnose you?
Replies: 18
Views: 4560

Re: On what basis did your doc diagnose you?

I had an MRI & lumbar puncture on the same day at Akinson Morley/St George's. That was on the 20th Oct and I'm still waiting for a follow-up appointment with the neurologist! I've seen the MRI report (my gp showed me) and it says "several small areas of change were detected in both cerebral...
by zoefromsussex
Mon Nov 28, 2011 11:54 am
Forum: General Discussion
Topic: How soon do you start drug therapy?
Replies: 10
Views: 2164

Re: How soon do you start drug therapy?

Thank you for your reply. Copaxone would be my first choice if I get to choose a dmd because I've read that it has less of the flu-like symptom's. Do all the drugs cause weightgain? It's a minor worry compared to the damage caused by ms but even so, I'd rather not gain weight! I feel better for hear...
by zoefromsussex
Mon Nov 28, 2011 6:20 am
Forum: General Discussion
Topic: On what basis did your doc diagnose you?
Replies: 18
Views: 4560

On what basis did your doc diagnose you?

Hi, I'm new on here & awaiting an appointment with a neurologist to discuss my test results. I was just wondering how you were all diagnosed; did you have to wait for two definite relapses or were you diagnosed on the basis of your mri & lumbar puncture results??? My mri shows multiple scatt...
by zoefromsussex
Mon Nov 28, 2011 1:24 am
Forum: General Discussion
Topic: How soon do you start drug therapy?
Replies: 10
Views: 2164

Re: How soon do you start drug therapy?

Hi, thanks for replying. I've read a fair bit about diet and also vitamin d. Which sort of diet do you follow? I've been vegetarian since age 11 (I'm 33 now!) and I don't eat dairy either. Would this help? What does the chiropractics involve exactly? Oh and one last question, why do think the shots ...
by zoefromsussex
Mon Nov 28, 2011 1:12 am
Forum: Introductions
Topic: Hi, just wanted to introduce myself...
Replies: 3
Views: 1485

Re: Hi, just wanted to introduce myself...

Thanks very much. It's great that forum's like this exist :smile:
by zoefromsussex
Sun Nov 27, 2011 7:59 am
Forum: General Discussion
Topic: How soon do you start drug therapy?
Replies: 10
Views: 2164

How soon do you start drug therapy?

Hi, I'm new on here and have just introduced myself in the new member's area. I'm currently waiiting for a diagnosis but am expecting to be told I have MS (mri shows multiple scattered lesions/lumbar shows the oligiclonal bands/I have optic neuritis & numbness/tingling) My question is, if I have...

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