Search found 48 matches

by Maledicte
Wed Jan 11, 2012 1:11 pm
Forum: General Discussion
Topic: leg stiffness/pain
Replies: 18
Views: 3433

Re: leg stiffness/pain

I'll look into mag Right now rum is only way I can sleep Numbs painful stiff legs enough I can sleep Believe me, I don't want to be an alcoholic It helps w/depression (yeah I know it doesn't really help) I have such bad depression I think often that this life 'I'm looking forward to' isn't one I wants
by Maledicte
Wed Jan 11, 2012 1:04 pm
Forum: General Discussion
Topic: Symptoms
Replies: 20
Views: 2120

Re: Symptoms

Other than the headaches I,d (I'm not a Dr)
Possibly MS
Google MS Lifelines
The nurses there are very informative
I have no insurance and they gave me a # to
Ms society (or something) that gave me a free (cranial only
MRI & that's how I got dx'd w/MS
Been on rebif since October '11
by Maledicte
Tue Jan 10, 2012 10:41 pm
Forum: General Discussion
Topic: leg stiffness/pain
Replies: 18
Views: 3433

Re: leg stiffness/pain

There are a whole lot of us that can relate to those feelings. I used to have the overwhelming fatigue; started to take low-dose aspirin and the fatigue is actually manageble. The Mayo is doing a study on it. Inclined bed; stops most of the problems with waking up to go to the bathroom, I don't rea...
by Maledicte
Tue Jan 10, 2012 10:22 pm
Forum: General Discussion
Topic: leg stiffness/pain
Replies: 18
Views: 3433

Re: leg stiffness/pain

I'm frustrated I'm fed up I HATE MS!!!! I miss my walks around my neighborhood I miss hot baths I miss seeing well, esp at night I have awful fatigue I fall asleep 5-6pm (get up about 20 times to urinate) I wake up 4-5 am And I don't feel rested I drink coffee to wake up fron feeling groggy I know ...
by Maledicte
Tue Jan 10, 2012 10:09 pm
Forum: General Discussion
Topic: MS prognosis
Replies: 9
Views: 2026

Re: MS prognosis

I've no idea, honestly, I was only recently dx'd

She's extremely lucky she's had nothing bad so far
I'm envious
I think it depends on the person, case to case
No MS patient is the same
I wish her luck and hope she keeps up w/the marathons
Just remember, lots of vitamin d
by Maledicte
Tue Jan 10, 2012 1:19 pm
Forum: General Discussion
Topic: Hot Hands and Feet
Replies: 9
Views: 3401

Re: Hot Hands and Feet

Mine varies, sometimes my hands are super red and hot, and my feet are freezing cold
Its annoying, to say the least
by Maledicte
Tue Jan 10, 2012 7:45 am
Forum: Rebif
Topic: Anyone with GOOD Experiences on Rebif??
Replies: 44
Views: 20268

Re: Anyone with GOOD Experiences on Rebif??

Now I'm.getting side effects
I feel like hell, rundown, shivery, headache, diheara

And I'm never calling ms lifelines again, she was a cold b*tch
I hate this
My neuro didn't listen yesterday
I'm so tired of this
I HATE MS
by Maledicte
Mon Jan 09, 2012 6:13 pm
Forum: Natural Approach
Topic: things that stimulate immune system
Replies: 3
Views: 2355

things that stimulate immune system

http://www.therealessentials.com/fortify.html

According to this magnesium and vit b stimulate it

<--- frustrated
by Maledicte
Mon Jan 09, 2012 5:55 pm
Forum: General Discussion
Topic: leg stiffness/pain
Replies: 18
Views: 3433

Re: leg stiffness/pain

An MS Lifelines nurse said magnesium stimulates the immune system and some stuff I read online said it as well, and vitamin b But I read a dr in UK was giving up to 40,000 ui of vitamin D and it was slowing MS relapses and could slow down progression of MS I take about 7000 atm, might go up to 40,00...
by Maledicte
Mon Jan 09, 2012 5:40 pm
Forum: General Discussion
Topic: leg stiffness/pain
Replies: 18
Views: 3433

Re: leg stiffness/pain

I wish I could try inclined bed, but I just have mattresses on floor, so no option I want a drink and I'm tired of being judged for it Neuro suggested that balfocen stuff but I researched it and it can cause diazapam withdrawal symptoms which is what the overpriced evil neuro I first saw said I had ...
by Maledicte
Mon Jan 09, 2012 4:08 pm
Forum: General Discussion
Topic: leg stiffness/pain
Replies: 18
Views: 3433

Re: leg stiffness/pain

I left a msg for my neuro I've tried marijuana - did nothing for pain, just made me walk really off balance this state is so anti valium, anti codiene (but they hand out oxycontin like its candy) It's like if it helps you, they are against it Its like do your job!! Am I trying to get valium refilled...
by Maledicte
Mon Jan 09, 2012 8:51 am
Forum: General Discussion
Topic: leg stiffness/pain
Replies: 18
Views: 3433

Re: leg stiffness/pain

I take cal/mag, but lately been forgetting (another fun MS prb, horrible memory)
Sometimes I'm so fed up I feel like ending it
by Maledicte
Sun Jan 08, 2012 6:49 pm
Forum: General Discussion
Topic: any rocket scientists out there? Anyone who can decifer MRIs
Replies: 5
Views: 911

Re: any rocket scientists out there? Anyone who can decifer

No 'fewer than 22?' Have you tried rebif? (I know I'm sounding like a salesman) but our meds are supposed to stop/slow down new lesions And the fact your neuro won't discuss it? Show him middle finger (sorry if I offended anyone w/that) and pls find a new one I had a HORRIBLE one (she NEVER called, ...
by Maledicte
Sun Jan 08, 2012 6:03 pm
Forum: General Discussion
Topic: leg stiffness/pain
Replies: 18
Views: 3433

leg stiffness/pain

The only thing that seems to help is drinking and my neuro is b*tchy about me drinking and having valium (not like I swig rum and chase it w/handfuls of valium, frankly its insulting) Nothing but rum (cheap vodka is nasty but cheap rum works) helps my leg pain My legs are super stiff, trying to do l...
by Maledicte
Sun Jan 08, 2012 5:44 pm
Forum: Rebif
Topic: Anyone with GOOD Experiences on Rebif??
Replies: 44
Views: 20268

Re: Anyone with GOOD Experiences on Rebif??

I can't afford it
No.$.
And no insurance