Search found 176 matches

by MarkLavelle
4 years ago
Forum: General Discussion
Topic: Which are the safest (and least safe) MS drugs on the market
Replies: 26
Views: 3463

Re: Which are the safest (and least safe) MS drugs on the ma

If you want to get better from any disease you must stop MD treatment and do what works. Chemo, radiation, and surgery do not work. The cancer will continue to come back if you do not change the environment of the body. This is done with diet, exercise, sleep and prayer and meditation. It works for...
by MarkLavelle
4 years ago
Forum: Introductions
Topic: Confused of MS diagnosis
Replies: 1
Views: 1076

Re: Confused of MS diagnosis

"[...] there is no contrast enhancement of these lesions to confirm a newly developed lesion or previous imaging available for comparison to confirm dissemination in time. Clinical review and ongoing imaging follow up therefore is recommended to further confirm the suspected diagnosis of MS" This i...
by MarkLavelle
4 years ago
Forum: Copaxone
Topic: Generics, 40 mg. Copaxone and Teva
Replies: 27
Views: 11684

Re: Generics, 40 mg. Copaxone and Teva

While my neuro has discussed it, and Shared Solutions has called about it, I wouldn't say I've felt pressured to switch to 3x/week. I'm quite sure that anything other than every day would cause me to miss shots. I haven't heard anything from Cygna, but I plan to switch to a generic soon after they b...
by MarkLavelle
4 years ago
Forum: Copaxone
Topic: Copaxone at 40 ml
Replies: 11
Views: 5899

Re: Copaxone at 40 mg

milesap wrote:Wont be surprised that insurance companies in the US will force you to use the generic version.
Shouldn't they, if daily works just as well and (eventually) costs less? Personally, I'm looking forward to that.
by MarkLavelle
5 years ago
Forum: General Discussion
Topic: MS drugs singled out for adverse reactions
Replies: 6
Views: 1380

Re: MS drugs singled out for adverse reactions

Doesn't mean a thing if they won't tell you the details of their "proprietary algorithmic scoring model"
by MarkLavelle
5 years ago
Forum: General Discussion
Topic: Heavy metal toxicity and MS
Replies: 10
Views: 2104

Re: Heavy metal toxicity and MS

I haven't had any testing, but since my 1st sx a couple of my doctors (including my neuro) have thought they might be a result of the chemotherapy I had back in 1996. I had cisplatin and carboplatin, which are both platinum-based and known to cause nerve damage, but my neuro sx didn't start until ov...
by MarkLavelle
5 years ago
Forum: Introductions
Topic: Newly diagnosed today
Replies: 13
Views: 1285

Re: Newly diagnosed today

Anyway, now I'm trying to figure out which of four DMDs to start...Copaxone, Refib, Betaseron, or Avonex. Any thoughts or experiences? You can listen to the conspiracy theorists and the like, or you can take a chance on the best modern medicine currently has to offer. Unfortunately (in terms of qua...
by MarkLavelle
5 years ago
Forum: Introductions
Topic: one bad news after another - a few more questions
Replies: 4
Views: 1182

Re: one bad news after another - a few more questions

So my question is - why do I feel ok? Like I said in a previous post, apart from slight libido issues I am walking,talking and thinking clearly, working and all. I know that the number of lesions does not necessarily correspond with disability, but you would think that an obviously half-dead brain ...
by MarkLavelle
5 years ago
Forum: Introductions
Topic: Still not accepting dx
Replies: 4
Views: 984

Re: Still not accepting dx

It might be MS, but they couldn't tell you that from a CAT scan. I would seek a second opinion at the nearest MS-specific clinic.
by MarkLavelle
5 years ago
Forum: General Discussion
Topic: Vaccinations
Replies: 33
Views: 3050

Re: Vaccinations

In my opinion vaccinations have nothing to do with MS.
by MarkLavelle
5 years ago
Forum: Introductions
Topic: Hey
Replies: 11
Views: 1022

Re: Hey

That's pretty scary news, Jordana, but don't let yourself get ahead of the data. I already have an MS diagnosis, and assumed it was ON when I lost the right half of my vision (both eyes). The ophthalmologist said no, and it turned out to be a pretty minor stroke (and my vision almost completely reco...
by MarkLavelle
5 years ago
Forum: General Discussion
Topic: Question on benign MS
Replies: 7
Views: 2842

Re: Question on benign MS

I guess the only way to be 100% sure is a spinal tap?
Actually, that's 100% wrong. Spinal tap results are not considered definitive for MS diagnosis, just 'supporting evidence"...
by MarkLavelle
5 years ago
Forum: Introductions
Topic: Officially diagnosed, I think
Replies: 8
Views: 1065

Re: Officially diagnosed, I think

1/2. I have no idea why you haven't been officially diagnosed as having MS, and really no one can answer that but your neuro. Have you asked? If/when your neuro does say you have RRMS (as opposed to PPMS), it would be *extremely* unusual for them to fail to offer a DMD. 3. Your brain atrophy might h...
by MarkLavelle
5 years ago
Forum: General Discussion
Topic: relapses
Replies: 4
Views: 903

Re: relapses

MS relapses can occur as often as a few times per year or as rarely as every 15 years. No one can predict the course of MS for a specific individual. If you think you have reasons to suspect MS, you should discuss it with your PCP and get a referral to a neurologist. The live ones are generally much...
by MarkLavelle
5 years ago
Forum: General Discussion
Topic: quick question
Replies: 2
Views: 685

Re: quick question

If you find it too stressful, you might want to consider another job, but there's nothing disqualifying about having MS. It's your specific symptoms that determine whether you are able...

If you like the job, then keep doing it until you don't (or can't)!