Search found 30 matches

by lottydotty
Fri May 13, 2005 11:52 am
Forum: Regimens
Topic: steroid therapy
Replies: 8
Views: 3500

steroids

I did 11 months of the high dose steroids ( 1000mg IV Solu-Medrol & 1200mg Prednisone ) last year. Then did 1 dose of Tysabri in February of this year. Regarding the steroids, I think the whole thing was bizare to be on it for that long. I have never heard or read of a similar situation. The whole t...
by lottydotty
Sat Mar 05, 2005 10:16 am
Forum: Tysabri (Antegren or Natalizumab)
Topic: Calling all Tysabri Users...
Replies: 52
Views: 23197

i had one infusion on feb. 11. for the first time, my body did not have any side effects. i am completely devastated and thankful at the same time. my heart goes out to the families that lost their loved ones. it could've been any one of us. hope? in what aspect? pharmaceuticals? faith? God? your bo...
by lottydotty
Tue Jan 04, 2005 10:30 am
Forum: Tysabri (Antegren or Natalizumab)
Topic: Tysabri: Fine Young Cannibal or CRAB's New Partner in Crime
Replies: 7
Views: 3597

It seems to me that the real trial doesn't start until tysabri is out in the market and we the MS'rs as a whole give our feedback on the treatment. I mean really......... does it really matter which dr. says what? It all comes down to us and what we say. My neuro treats the disease, not me as a pers...
by lottydotty
Fri Oct 22, 2004 7:55 am
Forum: Antibiotics
Topic: minocycline
Replies: 64
Views: 24255

I take minocicline and guess what............ my lesions have finaly calmed down for the first time in at least 2 1/2 years. Do have 3 new ones though. I got it prescribed by my general Dr. for acne due to prednisone. So was it the prednisone ( 1200mg ) once a month or the Beteseron or possibly the ...
by lottydotty
Tue Sep 07, 2004 9:44 am
Forum: Tysabri (Antegren or Natalizumab)
Topic: Efficiency of Antegren
Replies: 78
Views: 20432

Conjecture and intuition. Add a business sence to that and you can see a bigger picture. Will Antegren help? Sure! It will help some people but not everybody. That's a fact. The question I have is at what cost? I'm not referring to the financial aspect but the quality of life. With all the side effe...
by lottydotty
Tue Aug 17, 2004 6:50 am
Forum: General Discussion
Topic: Pollutants cause huge rise in brain diseases
Replies: 6
Views: 2809

I personaly beleive my MS comes from years of working in the auto repair business. I was exposed daily to exhaust, solvants, paints, dry cleaning chemicals, etc. The building was built in the 20's or 30's and was a gas station for many many years. although the tanks were removed before we set up sho...
by lottydotty
Wed Jun 09, 2004 10:22 am
Forum: General Discussion
Topic: Neuropsych exam
Replies: 9
Views: 5110

I respect your interpretation. I don't care who finds the cure as long as it is found. At least by the next generation of people suffering from this disease. It's been around long enough to at least find a cause one would think. Possibly answers would come from some of these numerous clinical trials...
by lottydotty
Wed Jun 09, 2004 8:12 am
Forum: General Discussion
Topic: Neuropsych exam
Replies: 9
Views: 5110

I had all those same symtoms, too. Neuro sent me for the Neuropsych exam to see how the heavy lesion load was affecting me cognitively. Plus I'm filing for SSD. The psych doctor said I was normal and intelligent but I'm depressed and have anxiety. Well, duh! Who wouldn't? I don't feel that I'm depre...
by lottydotty
Tue Jun 01, 2004 8:56 am
Forum: Betaseron
Topic: Bruising
Replies: 13
Views: 7407

I've been doing it manually for awhile now. It seems to help but I still bruise. It's just not as bad. Still takes forever to go away! I hate it! :(
Hi, Dee! :D
by lottydotty
Fri May 28, 2004 11:47 am
Forum: General Discussion
Topic: future treatments of MS
Replies: 27
Views: 6778

I found your post very positive and uplifting! Although I have nothing to add about new treatments. Your post made me feal good. You're right, this is our MS. None of us are alone. We're in it together! By continuing to share information we can find out new ideas that might bring us comfort.
by lottydotty
Fri May 28, 2004 11:34 am
Forum: Tysabri (Antegren or Natalizumab)
Topic: Efficiency of Antegren
Replies: 78
Views: 20432

I agree about the bottom line theory. If any of you watch the stock market Biogen Idec stocks have steadily increased since January. Elan's aren't looking so great but didn't they file bankruptcy or was it that they sold the rights to Biogen to try to keep their company afloat? So much hype about it...
by lottydotty
Wed May 26, 2004 11:04 am
Forum: General Discussion
Topic: Lyrica ~ Treatment Of Neuropathic Pain
Replies: 3
Views: 3404

Lyrica

It's my understanding that Lyrica is to take the place of Neurontin. I read an article recently saying that the drug co. was in trouble for marketing perks. They were fined alot of money. It just goes to show, always question your Dr. about why they are recomending that particular drug, whatever it ...
by lottydotty
Wed May 26, 2004 10:47 am
Forum: Tysabri (Antegren or Natalizumab)
Topic: Cost?
Replies: 21
Views: 7471

cost?

Wow! I had no idea it cost that much but I'm not surprised. My neuro says that I need this drug NOW! So I'm just playing the waiting game trying to put off Novantrone. I just hope it works. Didn't we just go thru a bunch of hype with Rebif? It was supposed to be sooo much better! It didn't work for ...
by lottydotty
Wed May 26, 2004 8:02 am
Forum: Betaseron
Topic: Bruising
Replies: 13
Views: 7407

[b/]

what's with that [b/]? I don't have a clue how that got there! :?
by lottydotty
Wed May 26, 2004 7:59 am
Forum: Betaseron
Topic: Bruising
Replies: 13
Views: 7407

Hi, Jennifer and thank you for replying! I have the same problem with welts and bruising. I'll definitly check into the pills you're suggesting. I'm curious to know exactly what they are. The welts and bruises are hideous! It's embarrasing to where shorts out in public! Personaly, I'm waiting for An...