Search found 119 matches
- Wed Dec 10, 2014 9:32 am
- Forum: Introductions
- Topic: Violent Stretching Upon Awakening
- Replies: 6
- Views: 8120
Re: Violent Stretching Upon Awakening
What both of you are describing is spasticity.
- Wed Dec 10, 2014 8:52 am
- Forum: Medical Marijuana
- Topic: Cannabis
- Replies: 13
- Views: 10868
Re: Cannabis
I am having incredibly noticible spasticity relief from the transdermal patches by Mary's Medicinals. There are no psychotropic effects and no grogginess. I used to enjoy getting high when I was younger but since being diagnosed 16 yrs ago, every time I've smoked or ingested marijuana it has made my...
- Sat Mar 23, 2013 6:41 pm
- Forum: General Discussion
- Topic: What can i do to improve my vision - Nystagmus
- Replies: 11
- Views: 4730
Re: What can i do to improve my vision - Nystagmus
Get a prescription for Namenda. It is a drug for memory but it has proven to completely resolve pendular nystagmus caused by MS. Do your own research because your doctor may not know about it.
- Mon May 07, 2012 11:27 am
- Forum: Drug Pipeline
- Topic: Myelin Repair - rHlgM22
- Replies: 4
- Views: 5650
Re: Myelin Repair - rHlgM22
I'll volunteer for 'Phase 1 anything' that is being developed for repair. Skip the mouse.
- Thu May 03, 2012 12:16 pm
- Forum: Drug Pipeline
- Topic: Myelin Repair - rHlgM22
- Replies: 4
- Views: 5650
Myelin Repair - rHlgM22
Can anyone provide an update on the status of an monoclonal antibody rHlgM22 for myelin repair?
- Wed Jun 15, 2011 1:19 pm
- Forum: General Discussion
- Topic: Spasticity...Suggestions for tweaking drug regimen?
- Replies: 3
- Views: 1778
Magnesium Blood Test
Thanks for the info. What type of blood panel should I request?
- Wed Jun 15, 2011 10:45 am
- Forum: General Discussion
- Topic: Spasticity...Suggestions for tweaking drug regimen?
- Replies: 3
- Views: 1778
Spasticity...Suggestions for tweaking drug regimen?
Spasticity is my most debilitating symptom. My legs are stiff and heavy and my gait looks like Frankenstein piked forward at the waist. I do a leg weight routine 3-4 times a week to keep my muscles strong and filled out but the spasticity acts like a ball and chain on each leg. I take 40 mg of baclo...
- Thu Mar 03, 2011 9:40 pm
- Forum: Ampyra (Dalfampridine)
- Topic: Eager to try
- Replies: 12
- Views: 6259
Re: ampra
Faster works for me!evie1954 wrote:I notice that I can walk faster but not better.
- Mon Jan 03, 2011 10:51 am
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: The thought of it grosses me out
- Replies: 28
- Views: 6690
Vascular Phobia
Perky & Needled, you get it. Believe me I would do anything to have my life back but I am extremely squeamish about certain vein related things. IVs have been a struggle but I deal with it. I guess my real question is can you undergo the procedure while under general anesthesia and Needled answe...
- Sun Jan 02, 2011 8:21 pm
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: The thought of it grosses me out
- Replies: 28
- Views: 6690
The thought of it grosses me out
I cannot even read about CCSVI without having to put my head between my knees. Am I the only one?
- Thu Nov 11, 2010 12:31 pm
- Forum: Tysabri (Antegren, Natalizumab)
- Topic: Experiences with Tysabri
- Replies: 66
- Views: 82901
Tysabri / Ampyra Combo
I received 2 doses of Tysabri years back before it was pulled from the market. My results were incredible. After a few years when it was re-approved I went back on it. My condition had deteriorated quite a bit by then and I didn't experience the mobility benefits but my QOL noticeably improved so I ...
- Thu Nov 11, 2010 12:09 pm
- Forum: Tysabri (Antegren, Natalizumab)
- Topic: PML risk goes down after 3 years. Anybody else heard this?
- Replies: 2
- Views: 2513
PML risk goes down after 3 years. Anybody else heard this?
I had my blood drawn to check for the JCV antibody. I was told that the results are coming back 50/50, but that there is evidence that the patients who have been on Tysabri for 3+ years are almost all testing negative. Has anyone come across literature supporting this?
- Tue May 25, 2010 3:37 pm
- Forum: General Discussion
- Topic: Ampyra
- Replies: 0
- Views: 1518
Ampyra
Does anyone have results to report yet? I expect delivery of my initial Rx tomorrow.
- Thu Jul 24, 2008 7:57 pm
- Forum: Natural Approach
- Topic: herbals
- Replies: 578
- Views: 130953
I read your post a few days ago and decided to add capsicum to my monthly VitaCost order. Is cayenne pepper the same thing? I'm taking 2 caps 2x/day and I have an annoying (not debilitating) burning in my stomach for about an hour afterwards. How much should I start with? How rapidly should I increa...
- Wed Mar 26, 2008 7:39 am
- Forum: Regimens
- Topic: Need Guidance Re: abx
- Replies: 3
- Views: 3345
Need Guidance Re: abx
I am very interested in starting antibiotic therapy but my brief attempt at research has left me overwhelmed. Where do I start? How do I find a doctor if my neuro won't help me? I'm in an HMO so if I have to go out of network and pay privately are the drugs expensive? What is the test for cpn? Is th...