This Is MS Multiple Sclerosis Knowledge & Support Community

WEll, my best friend is right back to the flu like symptoms, after only one shot of Avonex...up all night, couldn't sleep, body aches, headaches, sick to her stomach...so i guess 1/2 a shot didn't help. she called the neurologist's office, and they told her, that they should hear something about the...

I know my best friend is bummed...she only got one treatment of Tysabri, before they pulled it...and she was very happy with it. Her neurologist (whom i don't like) he's very abrasive, and constantly talks over us...he doesn't listen AT ALL...he said it will be at least a year before Tysabri comes b...

I would say, overall, between the dr's office, and her, and the insurance company it was about 6-8 weeks before they got everything ironed out. all i can suggest, is document everything, who you talk to, what time and date it was, what was said,,it will help tremendously if you you start getting dou...

My best friend has united health care, and she not only has to pay her 20.00 co pay to have it done at the dr's office, but she has to pay her 500.00 deductible up front, cause they are delivering the tysabri to her house, the insurance has been fighting her for over a month, and this is their final...

Flora, I know what you mean!! This is starting to really tick me off as well. This neurologist is actually her (6th) one, they all seem to have the same agenda, and that is what is best for THEM, not her!! Her regular md, that she has seen for like 20 yrs, won't prescribe ldn (that is what we origin...

Ok, So my best friend, just heard from her dr's office today, and they are telling her that the tysabri treatments are $4000.00 a month, now what is going on with that? Also, they are wanting her to go to the pharmacy and pick it up herself, and another member advised us not to do that, because she ...

Arcee, Could I be nosy, and ask about price? My best friend was supposed to get her first treatment of tysabri today, but the insurance has put her off. first they told her, as long as she did it in the dr's office, she would just have to pay her co-pay. Now they're saying, if they do decide to pay,...

Hi Arron, She doesn't start the Tysabri til Jan 12th, and I'm sorry, but I dont' know the exact name of the stearoid that they are giving her now. it's just a 3 day treatment to get her out of this relapse she is in. She previously was taken the avonex shots, but stopped them almost a year ago,due t...

I was just wondering, if anyone who has begun taking the tysabri treatments, has been doing with flare ups? have you noticed that they are less frequent, more frequent, or the same? my best friend starts hers on jan 12th. but she has started another flare up within a week and a half of the last one ...

Thanks Arron, My best friend does not own a computer, but I will most definitely post her process for you guys...I have kind of become her ms advocate, I got her the info on the ldn, and she couldn't get it, but we have a guy in our church, who is really bad off, and his dr prescribed it, so he's on...

Well, my best friend went to a new neurologist, and for right now, he wont' prescribe the ldn, but he is starting her on antegren (tysabri), and she was concerned about the cost, cause i told her what i had been reading on here. she also doesn't have the best insurance (so she thought), but they cal...

DOES ANYONE HAVE ANY INFO FOR MEDICAL DR'S OR NEURO'S WHO ARE OPEN ENOUGH TO PRESCRIBE THIS.

MY BEST FRIEND IS ON HER 3RD DR, AND NO ONE WILL PRESCRIBE IT.

SHE'S IN THE MIDDLE OF THE WORST EXACERBATION SHE'S EVER HAD, SHE NEEDS HELP, NOW!!

THANKS FOR LISTENING

PEGGY

Hi keep the faith. Why do you supposed your neurologist wouldn't prescribe it, but your family physician would? My best friend can't get it from her family dr. we have made an appt with a new neurologist on tues, and i am just praying he listens with an open mind regarding the ldn. i have a whole no...