This Is MS Multiple Sclerosis Knowledge & Support Community

me too!

Tilt! Thank you so much for coming back and updating us. Please, please continue to do this. The adjustment must be so bizzairre. I am so happy for you that you are doing so well. Being that I have ME/CFS I'm really interested in your comment that doing the leaf racking would have put you in bed for...

Hiya Dr S, thank you so much for sharing the case of the guy with CFS. I will be watching intently to see if he receives improvement. I hope he emails and you can pass onto us. After watching MS folk describe how their fatigue gets helped by treatment it seemed obvious that ME/ CFS patients should b...

Amazing Tilt. Enjoy your freedom. Just understand that survivor guilt is natural and be sure to broadcast your story as Bill Code did to help others. One day it will all be figured out and Sal and the other CCSVI drs will be vindicated that they have been and are treating something that causes sever...

You know I am thinking and "praying" (if an atheist can do such a thing) for you, and so is Al. Please report back when you are able. Anything I can help with meantime - please don't hesitate to ask. I mean that! Baby sitting anything. hugs to u xxxxx Jill

Tilt, It sure is a bizairre position you are in. With ME we are told by the shrinks that CBT and graded exercise will cure us. Like hell! So in a weird way, I could get an all clear - despite disabling fatigue that my own brother wouldn't employ me because of the dumb cogfog mistakes I make. You guy...

Hi Dr Sal, Are you also noting down whether patients with such extraordinary valves have other weird anatomy? eg Marfans or Ehlers Danlos. My partner i'v just realised has Marfans limbs and a shocking 'heart attack /triple A' history on his fathers side of the family. Have you treated ED or M patien...

this is a link to a lot of famous celebs and their charities

http://www.looktothestars.org/celebrity/171-jk-rowling

surely one of these could help? Esp Rowling

Dr. Sclafani, Are you aware of the FDA letter sent to Dr. Mehta? If so, does this have any bearing on you treating CCSVI? Do you see any additional challenges because of this, such as insurance or liability? I ask because I'm concerned that treating physicians may back off. I'd love to know your op...

Hi,

Where was the before after video?.

Would love to know your b4 and after story too cece

thnx Jill

Both replied super quick and super brief. Dr T said he hadn't taken any new appointments in 2 years due to the trial which was over subscribed. Dr Bester just said he was no longer involved but suggested Dr Varcoe with whom I had already been in touch. To me the speed of the replies indicated they ...

Dear Dr Sclafani, Thank you for all the work you are doing on CCSVI. I recently saw a TV documentary about MS from Oz and have since been catching up on the 2 years of CCSVI work. I have ME (or as it is known in the US ' chronic fatigue syndrome' - such a dumb name) and it has many overlaps with sym...