Search found 29 matches

by Fayruz
Sat May 09, 2015 10:39 am
Forum: Daily Life
Topic: abstract accepted!
Replies: 8
Views: 3495

Re: abstract accepted!

Congrats! :)
by Fayruz
Sat May 09, 2015 10:38 am
Forum: Daily Life
Topic: Fatigue and cleaning the house... Any tips?
Replies: 8
Views: 5927

Re: Fatigue and cleaning the house... Any tips?

I made a little "pact" with myself regarding cleaning...on days that I am tired I decide to order food in and in that time that takes them to deliver it (app. 45 minutes) I clean. Maybe this is an idea for others too, it helps me because I get demotivated if I think about hoe I have too co...
by Fayruz
Sat May 09, 2015 10:30 am
Forum: Regimens
Topic: My "regimen"
Replies: 21
Views: 11828

Re: My "regimen"

It's been a while since I've checked in here. :) I had another MR and the results (as I am more than happy to say) are ok (no new lesions, no active ones). Yaaaay :) I also had a consult about my polycistic ovaries and have now confirmed PCOS. During this tests they also did a thorough blood work - ...
by Fayruz
Wed Nov 12, 2014 8:37 am
Forum: Daily Life
Topic: I am wondering how much MS will limit my future
Replies: 7
Views: 5005

Re: I am wondering how much MS will limit my future

I think all of us are worried about our future in some kind of way (what if I don't finish school, what if I don't get the job, what if...), I was worried about the future before I was diagnosed but the worries were a bit different...now that I have MS I am mostly worried about that - when I'm worri...
by Fayruz
Sun Sep 28, 2014 11:22 am
Forum: Introductions
Topic: Welcome to ThisIsMS
Replies: 126
Views: 62622

Re: Welcome to ThisIsMS

Welcome all :)

ladykatie I know...this is a big news and can be very overwhelming at first, take your time to "digest" it and take care of yourself :)
by Fayruz
Sun Sep 28, 2014 11:08 am
Forum: Regimens
Topic: My "regimen"
Replies: 21
Views: 11828

Re: My "regimen"

So, the gardening season is almost over and I thought it is time to check-in. ;) We had a pretty crappy summer, so some plants in my garden were not really a success but I still had a lot of fun with it. ;) I am still doing ok and am happy for it. :) I have a check-up MR in December so we will see h...
by Fayruz
Sat Mar 01, 2014 10:58 am
Forum: Regimens
Topic: My "regimen"
Replies: 21
Views: 11828

Re: My "regimen"

Regarding magnesium - I also tried magnesium citrate and I think it worked well. I am also trying different forms of mg, at work I have pills that you dissolve in your mouth, at home I have the ones you just swallow. I also had magnesium in form of granules that you put directly on your tongue, it i...
by Fayruz
Tue Feb 25, 2014 9:26 am
Forum: Humor
Topic: I sometimes just laugh at myself :)
Replies: 5
Views: 5752

Re: I sometimes just laugh at myself :)

As long as we can laugh at ourselves... :)
by Fayruz
Tue Feb 25, 2014 9:20 am
Forum: Regimens
Topic: My "regimen"
Replies: 21
Views: 11828

Re: My "regimen"

My neuro said exactly the same, the drugs lessens the frequency of relapses - for example if you would have 3 relapses without drugs, with drugs you would have only 2. But my question here is, how is this measured if this disease is unpredictable - some patients have relapses every few years, some e...
by Fayruz
Sat Nov 30, 2013 2:12 pm
Forum: Regimens
Topic: My "regimen"
Replies: 21
Views: 11828

Re: My "regimen"

Well I decided to add some things... I am doing well but still sometimes when I think about it it scares me. I am 31 and everyone around me is having babies, getting married etc. I think that is hard to find the right man...and with this diagnosis even harder. I watched a documentary about MS and th...
by Fayruz
Sat Nov 30, 2013 2:02 pm
Forum: Humor
Topic: I sometimes just laugh at myself :)
Replies: 5
Views: 5752

I sometimes just laugh at myself :)

I have a story to share with you... just after I was diagnosed (two years) and of course thinking about MS all the time I woke up one morning and at the second I opened my eyes there was a flash of bright light (in the middle of winter). Through my mind went just one thought...no, not the eyes too! ...
by Fayruz
Sat Nov 30, 2013 1:46 pm
Forum: Friends and Family
Topic: Need advice on telling others
Replies: 16
Views: 17154

Re: Need advice on telling others

Maybe my approach to telling could be helpful for someone so I am writing this here...I have told my friends (some of them only recently) and I think I found the right way to tell it. I am actually quite mad at the way that MS is presented in media especially movies - it's the end of the world, no w...
by Fayruz
Sat Nov 30, 2013 1:31 pm
Forum: General Discussion
Topic: Could 'good' cholesterol protect against MS?
Replies: 5
Views: 1624

Re: Could 'good' cholesterol protect against MS?

Maybe I put that badly, my point was exactly that...the things in our body are way more correlated than we think and if you have one thing "right" it doesn't mean that you are entirely healthy, maybe you have something else wrong that the scientists haven't made the connection yet.
by Fayruz
Sat Nov 30, 2013 12:51 pm
Forum: Daily Life
Topic: Who to tell? What to tell? How much to tell?
Replies: 6
Views: 4698

Re: Who to tell? What to tell? How much to tell?

When I was diagnosed I also told quite a lot of people and then a few days later one of this people told another person...that got me thinking and I came to conclusion that I have to be careful whom to tell because when I submit (any kind of information) to anybody they can do with that information ...
by Fayruz
Sat Nov 30, 2013 12:32 pm
Forum: Introductions
Topic: Family History of MS
Replies: 5
Views: 1818

Re: Family History of MS

I am sure this must be hard for you but I think you must remember that the course of MS (and other autoimune diseases) is different in every patient as are the symptoms. That is exactly why I didn't want to go to MS society in my town, I just didn't want to see people with advanced MS because I know...

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