Search found 21 matches

by iKat
Mon Mar 17, 2014 12:43 pm
Forum: Revimmune (Cyclophosphamide, Cytoxan)
Topic: Multiple Sclerosis drug Revimmune receives FDA designation
Replies: 6
Views: 35750

Re: Multiple Sclerosis drug Revimmune receives FDA designati

i didn't think they were using this anymore. Are they going to start trials again? I think the HSCT seems to be more promising that this.
by iKat
Sun Mar 02, 2014 1:19 pm
Forum: General Discussion
Topic: Promising treatments
Replies: 4
Views: 1493

Re: Promising treatments

My MS was not active for many years, no progression or lesions. Last year they thought i had a stroke, came out it was actually a MS relapse. I would only spasm and slur and my face would droop if I moved a certain way. Got to the point I couldn't hardly move without going into a spasm. I recovered ...
by iKat
Sun Mar 02, 2014 12:37 pm
Forum: General Discussion
Topic: Promising treatments
Replies: 4
Views: 1493

Re: Promising treatments

I had MS for abpout 20 years with no disability. But now I had a relapse a year ago and this year I am having trouble such as fatigue and shaking. I talked to Chicago for the past year and now they are considering me for HSCT. They said it's a small window and I cant take too much time to think abou...
by iKat
Sat Mar 01, 2014 7:07 pm
Forum: General Discussion
Topic: Promising treatments
Replies: 4
Views: 1493

Promising treatments

Why is it every time I see a treatment that is supposed to be great always involved high doses of chemo? Stem Cell, Bone marrow transplants, lemtrada etc...

is this the future for MS treatments?
by iKat
Mon Sep 09, 2013 5:39 am
Forum: Stem Cells
Topic: George HSCT risk factors
Replies: 2
Views: 2054

Re: George HSCT risk factors

Is this is HSTC where the rate of mortality is increased in MS patients after the treatment??
by iKat
Thu Jun 20, 2013 12:14 pm
Forum: General Discussion
Topic: Opinions on HSCT
Replies: 7
Views: 1990

Re: Opinions on HSCT

On the issue of HSCT being curative: Cancer is considered cured after 5 years without reoccurrence. People undergoing HSCT have shown positive effects from it, up to and including complete halting of progression and some or complete recovery from disabilities. People have been shown to remain in th...
by iKat
Thu Jun 20, 2013 8:05 am
Forum: General Discussion
Topic: Opinions on HSCT
Replies: 7
Views: 1990

Re: Opinions on HSCT

Exactly. I was dx about 25 years ago. I am still RRMS, no progression or new lesions in 15 years. EDSS 1.0 and thats because of my left eye after having ON for 9 months. it shakes a little on exam, but that's it. I was on Copaxone all those years and apparently did well, but I would not have called ...
by iKat
Thu Jun 20, 2013 7:09 am
Forum: General Discussion
Topic: Opinions on HSCT
Replies: 7
Views: 1990

Re: Opinions on HSCT

Some people consider it a cure because they said their symptoms stopped after the procedure. They refuse to call it remission, when in fact it most likely is. Still it I think it's something I would like to consider, but the possible death by chemo part is not thrilling.
by iKat
Thu Jun 20, 2013 5:53 am
Forum: General Discussion
Topic: Opinions on HSCT
Replies: 7
Views: 1990

Opinions on HSCT

I have been reading where some people consider this a cure. I also have read where it doesn't work for everyone and it has serious side effects. I have an oppertunity to go to Chicago for this treatment but I am a little fearful of the extreme chemo and the long term side effects from the chemo whic...
by iKat
Thu Jun 06, 2013 12:54 pm
Forum: General Discussion
Topic: Multiple Sclerosis: MS Treatment 'Breakthrough'
Replies: 16
Views: 4818

Re: Multiple Sclerosis: MS Treatment 'Breakthrough'

I have applied for the HSTC in Chicago, but I posted this article today in a forum where most people are only interested in HSTC and they were not impressed. They seem to believe that being blasted with high dose chemo is the only way to go. I disagree, if researchers thought that, they wouldn't be ...
by iKat
Sun May 19, 2013 6:59 am
Forum: Stem Cells
Topic: BEGAN HSCT - 5/13/13
Replies: 4
Views: 2771

Re: BEGAN HSCT - 5/13/13

Good luck! I just spoke with Chicago on Friday, they requested a copy of my current MRI. You're so brave, but I would be nervous too.
by iKat
Fri May 17, 2013 5:07 am
Forum: Stem Cells
Topic: HSCT
Replies: 6
Views: 3909

Re: HSCT

I am RRMS but had MS for over 25 years. I was stable for many years no progression. But this last relapse what a slap of reality and I feel this is a better option vs the meds out there. I have 2 little girls that need me.
by iKat
Thu May 16, 2013 1:59 pm
Forum: Stem Cells
Topic: HSCT
Replies: 6
Views: 3909

HSCT

I have decided to have HSCT procedure. I know it's still experimental but it has good results. I know I could wait sitting on my hands taking useless MS medications and wait miracle cure or I can do something now to help myself. I am hoping to have this done over the summer months and recover all fa...
by iKat
Thu May 16, 2013 7:23 am
Forum: General Discussion
Topic: Has Iran found a "cure" for MS?
Replies: 23
Views: 10195

Re: Has Iran found a "cure" for MS?

I wouldn't hold my breath.
by iKat
Mon May 13, 2013 3:57 pm
Forum: General Discussion
Topic: chrishasms
Replies: 10
Views: 1600

Re: chrishasms

I think I am going to try and pursue stem cell treatment somewhere. I was dx over 25 years ago, no relapses, no symptoms. I just skipped along life carefree and the worries of MS. Things have changed all the sudden and reading my last MRI report and my current symptoms have me concerned. My neuro wa...

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