Search found 618 matches

by vesta
Tue Oct 08, 2019 1:24 pm
Forum: General Discussion
Topic: SPMS How often do you see your doctor
Replies: 7
Views: 179

Re: SPMS How often do you see your doctor

MRIs are a good tool for diagnosis but are of limited usefulness otherwise - some people have lots of lesions and minimal or no symptoms and others have few or no lesions and lots of symptoms. Lesions also come and go regularly so depending on when you have an MRI, they may be present or not. You m...
by vesta
Thu Sep 05, 2019 9:08 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: lymphatic vessels in the spine
Replies: 1
Views: 96

Re: lymphatic vessels in the spine

Thanks for the link which is very timely for me because a back injury has impacted my sacral spine, impeding movement in general (tensed up the musculature) and no doubt CSF circulation which I believe is manifesting as MS Progression.
by vesta
Wed Sep 04, 2019 10:04 am
Forum: Daily Life
Topic: Progressive MS
Replies: 12
Views: 381

Re: Progressive MS

Vesta, how do you account for the fact that many people with MS do not have CCSVI or any type of restricted blood flow? Refer to Dr Owiesy's work. Stress can cause temporary spasms in the veins to block blood flow. Same principle with Trigeminal Neuralgia (sp?). And Migraines. It's more complicated...
by vesta
Tue Sep 03, 2019 11:05 am
Forum: Daily Life
Topic: Progressive MS
Replies: 12
Views: 381

Re: Progressive MS

Hey VESTA you really went all in on CCSVI do you think it causes ms or ms causes it what I mean is when the blood flows though a restricted vein is the blood infected with ms but because less blood gets to your brain it enhances the lesion' s that are there. So more flow is better to circulate the ...
by vesta
Sun Sep 01, 2019 10:17 am
Forum: Daily Life
Topic: Progressive MS
Replies: 12
Views: 381

Re: Progressive MS

Response to this article thought this article was good , easy to understand Overview of Secondary Progressive Multiple Sclerosis (SPMS) When you stop having relapses but your MS worsens By Julie Stachowiak, PhD Medically reviewed by Claudia Chaves, MD Updated June 28, 2019 In This Article Onset Sign...
by vesta
Sun Sep 01, 2019 12:21 am
Forum: General Discussion
Topic: I need a REAL MS Specialist
Replies: 5
Views: 299

Re: I need a REAL MS Specialist

"Actually, much has changed" I would like to know what in your opinion has changed and what is now known WITH CERTAINTY compared to what was know with certainty many years ago. There are certainly a lot of new theories but theories are just that, theories. I have not seen any of these theories, mos...
by vesta
Tue Aug 27, 2019 1:09 am
Forum: General Discussion
Topic: I need a REAL MS Specialist
Replies: 5
Views: 299

Re: I need a REAL MS Specialist

"Why are Neurologists unequipped to help me ?" What type of doctor could actually 'help' and what could he/she actually help with? My father had MS about 50 years ago and there was little known then about MS and MS treatment and frankly I don't know if there is much more known about treatment that ...
by vesta
Sun Aug 25, 2019 12:44 am
Forum: General Discussion
Topic: I need a REAL MS Specialist
Replies: 5
Views: 299

I need a REAL MS Specialist

MS patients are doubly cursed. 1) by the « disease » and 2) by the misguided treatment which poisons them with mutlple MRIs and immune suppressive drugs. As I’ve said, I believe Multiple Sclerosis should become a distinct specialty. One might begin with this one scientific study. *Cerebral Circulati...
by vesta
Fri Aug 23, 2019 10:30 am
Forum: General Discussion
Topic: Can the JC virus be killed before PML
Replies: 21
Views: 383

Re: Can the JC virus be killed before PML

My neurologist wants me to change medications and switch from Copaxone to Ocrevis. Although no cases of PML have been directly linked to Ocrevis, they do warn about PML in their literature as other drugs that function in a similar manner in 'controlling' MS progression have, so I am not sure what t...
by vesta
Tue Jul 30, 2019 1:28 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: How to arrange to see Zamboni?
Replies: 2
Views: 183

Re: How to arrange to see Zamboni?

Greetings:

Check out the CCSVI clinic in Rome perhaps. Brain Flow Team, Rome - <www.ccsvi.net>

Best regards
by vesta
Sun Jul 21, 2019 8:30 am
Forum: General Discussion
Topic: Status, not Science, rules MS treatment
Replies: 2
Views: 195

Status, not Science, rules MS treatment

In short, I need help. Why do I have to figure this out by myself ? Why aren’t Neurologists thinking things through, ordering appropriate diagnostic examinations ? WHY AREN’T THEY DOING THEIR JOB ? Answer : Because they don’t know what MS is nor how to treat it. That doesn’t prevent their throwing D...
by vesta
Tue Jun 18, 2019 1:53 am
Forum: General Discussion
Topic: MS SUCKS and it is time our Government KNOWS IT!!
Replies: 20
Views: 3838

Re: MS SUCKS and it is time our Government KNOWS IT!!

"Nearly 14 years old and Bromley's post could have been written last week..." While this thread goes back many years, frankly it appears nothing has changed that I know of since my dad was diagnosed about 50 years ago. He could have written the same letter back then... And perhaps we could go back ...
by vesta
Tue May 28, 2019 7:01 am
Forum: General Discussion
Topic: MS is a Clinically Defined Disease
Replies: 2
Views: 288

MS is a Clinically Defined Disease

A series of lab tests coupled with a physical neurologic exam have been developed to diagnose MS even though the MD doesn't know what causes it nor how to treat it. In my opinion the primary virtue of the exams is to diagnose other disorders which need to be treated - brain tumor for example -and in...
by vesta
Tue May 21, 2019 5:41 am
Forum: General Discussion
Topic: Accidental MS Treatment Discovery
Replies: 9
Views: 432

Re: Accidental MS Treatment Discovery

I can find an idiot who claims feeling better with drinking lead... Please science, sources, data... First comes the IDEA based on an observation. Then the research. Do you think for a minute Fleming understood why the bacteria adjacent the fungus had disappeared? His reaction, "That's funny". Then...
by vesta
Tue May 21, 2019 1:34 am
Forum: General Discussion
Topic: Accidental MS Treatment Discovery
Replies: 9
Views: 432

Re: Accidental MS Treatment Discovery

more clickbait as far as i can tell... related: https://www.thisisms.com/forum/viewtopic.php?p=256054#p256054 Greetings: After NHE expressed the fear of copyright infringement I wrote " "Sorry, I don't want to threaten your excellent site. In fact that is my article from my own site (so I obviously...