Search found 610 matches

by vesta
Fri Aug 23, 2019 10:30 am
Forum: General Discussion
Topic: Can the JC virus be killed before PML
Replies: 16
Views: 211

Re: Can the JC virus be killed before PML

My neurologist wants me to change medications and switch from Copaxone to Ocrevis. Although no cases of PML have been directly linked to Ocrevis, they do warn about PML in their literature as other drugs that function in a similar manner in 'controlling' MS progression have, so I am not sure what t...
by vesta
Tue Jul 30, 2019 1:28 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: How to arrange to see Zamboni?
Replies: 2
Views: 149

Re: How to arrange to see Zamboni?

Greetings:

Check out the CCSVI clinic in Rome perhaps. Brain Flow Team, Rome - <www.ccsvi.net>

Best regards
by vesta
Sun Jul 21, 2019 8:30 am
Forum: General Discussion
Topic: Status, not Science, rules MS treatment
Replies: 2
Views: 161

Status, not Science, rules MS treatment

In short, I need help. Why do I have to figure this out by myself ? Why aren’t Neurologists thinking things through, ordering appropriate diagnostic examinations ? WHY AREN’T THEY DOING THEIR JOB ? Answer : Because they don’t know what MS is nor how to treat it. That doesn’t prevent their throwing D...
by vesta
Tue Jun 18, 2019 1:53 am
Forum: General Discussion
Topic: MS SUCKS and it is time our Government KNOWS IT!!
Replies: 20
Views: 3784

Re: MS SUCKS and it is time our Government KNOWS IT!!

"Nearly 14 years old and Bromley's post could have been written last week..." While this thread goes back many years, frankly it appears nothing has changed that I know of since my dad was diagnosed about 50 years ago. He could have written the same letter back then... And perhaps we could go back ...
by vesta
Tue May 28, 2019 7:01 am
Forum: General Discussion
Topic: MS is a Clinically Defined Disease
Replies: 2
Views: 245

MS is a Clinically Defined Disease

A series of lab tests coupled with a physical neurologic exam have been developed to diagnose MS even though the MD doesn't know what causes it nor how to treat it. In my opinion the primary virtue of the exams is to diagnose other disorders which need to be treated - brain tumor for example -and in...
by vesta
Tue May 21, 2019 5:41 am
Forum: General Discussion
Topic: Accidental MS Treatment Discovery
Replies: 9
Views: 377

Re: Accidental MS Treatment Discovery

I can find an idiot who claims feeling better with drinking lead... Please science, sources, data... First comes the IDEA based on an observation. Then the research. Do you think for a minute Fleming understood why the bacteria adjacent the fungus had disappeared? His reaction, "That's funny". Then...
by vesta
Tue May 21, 2019 1:34 am
Forum: General Discussion
Topic: Accidental MS Treatment Discovery
Replies: 9
Views: 377

Re: Accidental MS Treatment Discovery

more clickbait as far as i can tell... related: https://www.thisisms.com/forum/viewtopic.php?p=256054#p256054 Greetings: After NHE expressed the fear of copyright infringement I wrote " "Sorry, I don't want to threaten your excellent site. In fact that is my article from my own site (so I obviously...
by vesta
Tue May 21, 2019 1:19 am
Forum: General Discussion
Topic: Accidental MS Treatment Discovery
Replies: 9
Views: 377

Re: Accidental MS Treatment Discovery

This is far away from a discovery... Greetings: It would be a discovery if massage were recognized by Neurologists as the best first response to an MS attack before launching into steroids. I posted this because what happened cannot be dismissed as merely "anecdotal", the relief I experienced was r...
by vesta
Mon May 20, 2019 7:46 am
Forum: General Discussion
Topic: Accidental MS Treatment Discovery
Replies: 9
Views: 377

Accidental MS Treatment Discovery

On reading a recent post on the ThisisMS forum website, I noticed that « Ambicat’s » MRI revealed « a signal change in my spinal cord ». I suggested having the area in question massaged with the aim of releasing the muscle spasms which I believed to be at the origin of the « attack ». I suggested th...
by vesta
Thu May 16, 2019 8:44 am
Forum: Undiagnosed
Topic: Diagnosed with CIS today, more tests to come - things to know/ask?
Replies: 48
Views: 1863

Re: Diagnosed with CIS today, more tests to come - things to know/ask?

My neurologist wanted me to look more into what CIS is, after ruling out everything that could've caused my numerous symptoms and increasing disability over the past week (first time this has ever happened). My C-Spine MRI yesterday showed a signal change in my spinal cord, so today he started me o...
by vesta
Sun May 12, 2019 8:35 am
Forum: Undiagnosed
Topic: Diagnosed with CIS today, more tests to come - things to know/ask?
Replies: 48
Views: 1863

Re: Diagnosed with CIS today, more tests to come - things to know/ask?

"he discusses the lack of efficacy of several of the DMDs in preventing long term progression of disability." Current DMDs typically do not prevent long term progression and are not advertised to do so. I have been taking Copaxone for almost 6 years and when presented info about it originally by my...
by vesta
Fri May 10, 2019 5:20 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Dayton Interventional Radiology
Replies: 7
Views: 349

Re: Dayton Interventional Radiology

I know what you are saying but there are some on here that say that CCSVI has really helped them. If I could get help with the heat intolerance that would be a big help for me. The following was recently posted on the Vascular Connection Facebook page. I know nothing about the Dayton Clinic but I t...
by vesta
Wed May 08, 2019 1:33 pm
Forum: Introductions
Topic: Hello! New member with a question
Replies: 12
Views: 537

Re: Hello! New member with a question

Hello. Previously published on my site MSCureEnigmas.net https://www.mscureenigmas.net I would suggest you and your wife begin by finding the area which gave you relief when she massaged you and see how that corresponds to your skeletal structure and maybe find an osteopath or chiropractor for infor...
by vesta
Tue May 07, 2019 2:24 pm
Forum: Introductions
Topic: Hello! New member with a question
Replies: 12
Views: 537

Re: Hello! New member with a question

Hi again: Your massage experience suggests to me that you might have a skeletal obstruction to your blood flow and or cerebrospinal fluid flow since you got some relief but it was temporary. Did you work in a physically demanding field which could have injured your spine? Anyway, Ideally you could h...
by vesta
Tue May 07, 2019 7:12 am
Forum: Introductions
Topic: Hello! New member with a question
Replies: 12
Views: 537

Re: Hello! New member with a question

Hi Gary: Trail mix is a good idea. I keep a mixture of almonds and raisins always available to snack on. Best regards, Vesta MY SEVEN STEPS TO MULTIPLE SCLEROSIS HEALTH Hi Vesta, I agree with more or less everything you say. The more I learn about MS the more I believe this is caused by vascular, s...