Search found 30 matches

by MichelleMM
Mon Feb 28, 2005 7:57 am
Forum: Tysabri (Antegren, Natalizumab)
Topic: Calling all Tysabri Users...
Replies: 52
Views: 26225

For all here who have put their faith and hope to Tysabri, such as myself, this is a very sad event. I know a lot of us will have to make new choices now and I hope we can guide each other. I too am very saddened by the news of the suspension of Tysabri. We can only hope that the best will come of t...
by MichelleMM
Sat Feb 26, 2005 6:21 am
Forum: Tysabri (Antegren, Natalizumab)
Topic: Tysabri - Covered Under Which Insurance
Replies: 18
Views: 9824

It looks to me like it is more difficult to get insurance approval as time goes on. The companies are flooded with questions and requests and they can't keep up. When I started the Tysabri, I was the first one to call my insurance company about it and it only took them 1 day for the decision. Now, I...
by MichelleMM
Tue Feb 22, 2005 7:34 am
Forum: Tysabri (Antegren, Natalizumab)
Topic: how long until Tysabri antibody testing?
Replies: 18
Views: 11841

That's correct Flora ! Except that I'm not an infusion nurse, I'm a surgical nurse. Thanks for helping me clarify.
by MichelleMM
Tue Feb 22, 2005 7:32 am
Forum: Tysabri (Antegren, Natalizumab)
Topic: how long until Tysabri antibody testing?
Replies: 18
Views: 11841

HarryZ,
To clarify, I meant that since the test is not required to be available until March of 2007 and I started Tysabri in January of this year, it may be 2 years until the test for antibodies is available to me.
by MichelleMM
Tue Feb 22, 2005 6:10 am
Forum: Regimens
Topic: Provigil
Replies: 7
Views: 4365

I take only 100mg because after trying the 200mg dose, I couldn't sleep. The lower dosage seems to work well and I only take it about once a week. The only thing I feel from them is a strange feeling in my eyes. I don't know if it because I work in a rather dry environment or if it is because of the...
by MichelleMM
Tue Feb 22, 2005 5:58 am
Forum: Tysabri (Antegren, Natalizumab)
Topic: how long until Tysabri antibody testing?
Replies: 18
Views: 11841

Information from the clinical study: Patients were tested for antibodies every 12 weeks. The assays used in these studies were unable to detect low to moderate levels of antibodies to natalizumab. Antibodies were detected in apporximately 10% of multiple sclerosis patients receiving Tysabri at least...
by MichelleMM
Mon Feb 21, 2005 7:15 am
Forum: Tysabri (Antegren, Natalizumab)
Topic: how long until Tysabri antibody testing?
Replies: 18
Views: 11841

The article that I posted actually prompted my questioning about the test. I did not as yet talk to my neuro, but I did speak with the case worker/representative from Biogen and a pharmaceutical manager who both concurred that the testing at this point is not available. If I understood correctly, wh...
by MichelleMM
Mon Feb 21, 2005 6:10 am
Forum: Tysabri (Antegren, Natalizumab)
Topic: how long until Tysabri antibody testing?
Replies: 18
Views: 11841

Neutralizing antibodies

Here it is: A New Approach for MS Thomas Morrow, MD Since the mid-1990s, there has been revolutionary advancement in the understanding of the pathophysiology and treatment of multiple sclerosis. On November 23, the FDA issued an approval letter to Biogen Idec for natalizumab, a totally new approach ...
by MichelleMM
Mon Feb 21, 2005 5:29 am
Forum: Tysabri (Antegren, Natalizumab)
Topic: how long until Tysabri antibody testing?
Replies: 18
Views: 11841

My understanding is that there currently will not be testing for antibodies. If for some reason, you or the neurologist feels that there is a decline in status or less of an improvement than before, a repeat MRI would be ordered. I read somewhere that the company is working on the lab test for antib...
by MichelleMM
Fri Feb 18, 2005 11:00 am
Forum: Tysabri (Antegren, Natalizumab)
Topic: Tysabri info
Replies: 410
Views: 89364

Note that this is only a small exerpt from the United Press, not a full text inclusive of the study.
by MichelleMM
Thu Feb 17, 2005 6:21 am
Forum: Tysabri (Antegren, Natalizumab)
Topic: Calling all Tysabri Users...
Replies: 52
Views: 26225

Good Luck Baumer ! Check out the 2 year trial results..impressive.
by MichelleMM
Mon Feb 14, 2005 10:33 am
Forum: Introductions
Topic: Hi, Could We All Introduce Ourselves on this thread?
Replies: 316
Views: 82976

Great age 42 !! Welcome.
by MichelleMM
Sun Feb 13, 2005 8:02 am
Forum: Tysabri (Antegren, Natalizumab)
Topic: $100 phone survey for Tysabri
Replies: 5
Views: 3428

Sclesinger Associates are a marketing research compnay. The questions were about my symptoms, what medications I take, my diagnosis, what treatment options was I offered, why did I choose Tysabri, was it my choice or my neuro's choice and my experience in receiving it. I was asked to describe the da...
by MichelleMM
Sun Feb 13, 2005 5:42 am
Forum: Tysabri (Antegren, Natalizumab)
Topic: Tysabri at home infusion?
Replies: 0
Views: 3922

Tysabri at home infusion?

I have received 2 doses of Tysbri at the hospital in the medical short stay unit. It isn't bad, but it is a long drive to and from. My doctor said I could have the infusion anywhere I liked, and the nurses in the office have been working on trying to set up home infusions for those who want that. Wh...
by MichelleMM
Fri Feb 11, 2005 8:21 am
Forum: Regimens
Topic: Provigil
Replies: 7
Views: 4365

Provigil

Has anyone tried Provigil (modafinil) for fatigue? At my neuro appt. yesterday, my doctor recommended I try Provigil for fatigue. Unlike Symmetrel which is taken daily by most people, it is taken as needed. I was planning on taking it on work day mornings. It is a medicine to treat unusually sleepy ...

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