Search found 194 matches

by CaliReader
Tue Aug 19, 2014 8:49 am
Forum: Undiagnosed
Topic: Waiting... waiting... waiting
Replies: 20
Views: 2667

Re: Waiting... waiting... waiting

The pet scan is to rule out cancer. Your lesions and especially your heat sensitivity suggest ms. You might need a spine mri. I would also visit an opthalmologist to see how your eyes are doing, since ms can hit the optic nerve and the cranial nerves that control eye movement and focus. Being diagno...
by CaliReader
Tue Aug 19, 2014 8:38 am
Forum: General Discussion
Topic: Grrr now my legs feel like concrete with pins and needles
Replies: 19
Views: 2931

Re: Grrr now my legs feel like concrete with pins and needle

Hi Youarethecure, I have heat sensitivity. I try to stay cool, or all my symptoms get much worse. Your symptoms could be an ms attack (flare, episode, exacerbation), or they could be heat related. Try walking into the walk-in fridge or freezer and see if it gets better temporarily. If you haven't ye...
by CaliReader
Sat Jun 28, 2014 9:56 am
Forum: General Discussion
Topic: Measuring brain shrinkage in Multiple Sclerosis
Replies: 4
Views: 1605

Re: Measuring brain shrinkage in Multiple Sclerosis

Sadly, yes. MS causes brain atrophy at a faster than normal rate. http://www.medscape.com/viewarticle/759837_3 Brain Atrophy in MS Brain volume measurements are not used in routine clinical practice, but it is a very attractive MRI metric in MS because it is clinically relevant, robust and could off...
by CaliReader
Wed Jun 25, 2014 6:45 am
Forum: Introductions
Topic: Struggling with new MS symptoms
Replies: 4
Views: 1575

Re: Struggling with new MS symptoms

I would bother my neuro, and failing that my primary doc. Pain sucks and imho needs to be treated. Pain control is often not perfect, but in my experience so much better than nothing.
by CaliReader
Wed Jun 18, 2014 6:31 pm
Forum: Introductions
Topic: diagnosed with MS
Replies: 9
Views: 1912

Re: Devastated 17 year old bro diagnosed with MS

Very sorry to hear your news. Best of luck to you and your brother. I take Gilenya. I also take vit D supplements. NHE is right, the research is there that shows benefit. To answer your question, right now stronger means also riskier. You can look into Lemtrada or Rituxan or Tysabri, but my advice r...
by CaliReader
Sun Jun 08, 2014 9:59 pm
Forum: General Discussion
Topic: "End Stage MS"
Replies: 50
Views: 30378

Re:

Jeanne47, I have ms, I am no doctor. But I've studied this disease. MS usually doesn't cause dementia, but it can. MS usually doesn't cause hallucinations, but it can. It would be more typical for those of us who see things to know they aren't actually there. I'm sorry that's not true for your sister.
by CaliReader
Sat Jun 07, 2014 6:19 am
Forum: Gilenya
Topic: Three months on Gilenya
Replies: 4
Views: 4965

Re: Three months on Gilenya

I'm on a schedule of every 6 months for eye exam, liver testing, blood count. So far, everything is fine.
by CaliReader
Mon Jun 02, 2014 6:43 am
Forum: Undiagnosed
Topic: Why is it all MS or not MS
Replies: 4
Views: 1319

Re: Why is it all MS or not MS

Hi Matt, If you could stop new damage from happening, a lot of ms damage can repair itself. Exercise is one of the best ways to work with the brain to repair pathways or build new ones. If you want to research, the technical term is neuroplasticity. It's not a cure because the disease continues to c...
by CaliReader
Sat May 17, 2014 5:49 pm
Forum: General Discussion
Topic: ca mg nutrition nutritionists
Replies: 6
Views: 1131

Re: ca mg nutrition nutritionists

Thanks. I will look at all of this.

Sadly, I think the gerd is likely to be ms related since I've also developed some swallowing issues. MS sucks.
by CaliReader
Sat May 17, 2014 8:02 am
Forum: General Discussion
Topic: ca mg nutrition nutritionists
Replies: 6
Views: 1131

ca mg nutrition nutritionists

Hi,

So I have a couple questions for the experts here.

1. What qualifications should I look for if I hire a nutritionist.

2. Does someone have a quick ratio for how much calcium to mg I should be taking. I've developed GERD and am now on antacids that contain a lot of calcium.

Thanks very much.
by CaliReader
Wed May 07, 2014 6:12 am
Forum: Undiagnosed
Topic: Awaiting results, question about timeline
Replies: 2
Views: 935

Re: Awaiting results, question about timeline

Looking back, I can see ms symptoms 20 years before diagnosis. It is amazing what you can believe is normal, or just explain away, ignore because it improves in a few weeks. I've had the ms hug intermittently since my early 20's. Clumsiness was part of my identity. Didn't investigate eye symptoms. I...
by CaliReader
Mon Apr 28, 2014 9:11 pm
Forum: Undiagnosed
Topic: Question about MRIs
Replies: 5
Views: 1251

Re: Question about MRIs

I know it is miserable to live with uncertainty. Unfortunately, the sensory symptoms of pain, numbness and tingling really can be made worse by worrying about them. They can also be caused by a variety of things from diabetes to stress. Without mri or lumbar puncture evidence, your neuro won't know ...
by CaliReader
Thu Apr 17, 2014 6:22 pm
Forum: Rituxan (Rituximab)
Topic: Rituximab iv and intrathecal with valtrex
Replies: 130
Views: 28712

Re: Rituximab iv and intrathecal with valtrex

Thanks Anon. I haven't asked Yammer yet. I'm still working on my in plan neurologist, but if it comes to that I may travel. I haven't decided yet whether Rituxan or Alemtuzumab is the way to go, but at this point I'm hoping to take one of them. Can you explain why you chose Rituxun? I can't evaluate...
by CaliReader
Mon Apr 14, 2014 8:27 am
Forum: General Discussion
Topic: How do people cope with Multiple Sclerosis?
Replies: 12
Views: 1675

Re: How do people cope with Multiple Sclerosis?

Thanks for your help. I've seen discussions of what other people with ms would like the public to know about our experience, here at Thisisms, in the comments of Dr. Giavvanoni's MS Research Blog, and on the discussion boards at MS World Forum. If you haven't found it yet, you should also look at th...
by CaliReader
Fri Apr 11, 2014 12:45 pm
Forum: Undiagnosed
Topic: New here, could I have MS?
Replies: 11
Views: 1335

Re: New here, could I have MS?

Also, you could ask your doctor to try a low dose of one of the nerve pain meds to see if it would help your foot.