Search found 194 matches
- Tue Aug 19, 2014 8:49 am
- Forum: Undiagnosed
- Topic: Waiting... waiting... waiting
- Replies: 20
- Views: 4084
Re: Waiting... waiting... waiting
The pet scan is to rule out cancer. Your lesions and especially your heat sensitivity suggest ms. You might need a spine mri. I would also visit an opthalmologist to see how your eyes are doing, since ms can hit the optic nerve and the cranial nerves that control eye movement and focus. Being diagno...
- Tue Aug 19, 2014 8:38 am
- Forum: General Discussion
- Topic: Grrr now my legs feel like concrete with pins and needles
- Replies: 19
- Views: 4289
Re: Grrr now my legs feel like concrete with pins and needle
Hi Youarethecure, I have heat sensitivity. I try to stay cool, or all my symptoms get much worse. Your symptoms could be an ms attack (flare, episode, exacerbation), or they could be heat related. Try walking into the walk-in fridge or freezer and see if it gets better temporarily. If you haven't ye...
- Sat Jun 28, 2014 9:56 am
- Forum: General Discussion
- Topic: Measuring brain shrinkage in Multiple Sclerosis
- Replies: 4
- Views: 2129
Re: Measuring brain shrinkage in Multiple Sclerosis
Sadly, yes. MS causes brain atrophy at a faster than normal rate. http://www.medscape.com/viewarticle/759837_3 Brain Atrophy in MS Brain volume measurements are not used in routine clinical practice, but it is a very attractive MRI metric in MS because it is clinically relevant, robust and could off...
- Wed Jun 25, 2014 6:45 am
- Forum: Introductions
- Topic: Struggling with new MS symptoms
- Replies: 4
- Views: 2294
Re: Struggling with new MS symptoms
I would bother my neuro, and failing that my primary doc. Pain sucks and imho needs to be treated. Pain control is often not perfect, but in my experience so much better than nothing.
- Wed Jun 18, 2014 6:31 pm
- Forum: Introductions
- Topic: diagnosed with MS
- Replies: 9
- Views: 3070
Re: Devastated 17 year old bro diagnosed with MS
Very sorry to hear your news. Best of luck to you and your brother. I take Gilenya. I also take vit D supplements. NHE is right, the research is there that shows benefit. To answer your question, right now stronger means also riskier. You can look into Lemtrada or Rituxan or Tysabri, but my advice r...
- Sun Jun 08, 2014 9:59 pm
- Forum: General Discussion
- Topic: "End Stage MS"
- Replies: 50
- Views: 34219
Re:
Jeanne47, I have ms, I am no doctor. But I've studied this disease. MS usually doesn't cause dementia, but it can. MS usually doesn't cause hallucinations, but it can. It would be more typical for those of us who see things to know they aren't actually there. I'm sorry that's not true for your sister.
- Sat Jun 07, 2014 6:19 am
- Forum: Gilenya
- Topic: Three months on Gilenya
- Replies: 4
- Views: 5723
Re: Three months on Gilenya
I'm on a schedule of every 6 months for eye exam, liver testing, blood count. So far, everything is fine.
- Mon Jun 02, 2014 6:43 am
- Forum: Undiagnosed
- Topic: Why is it all MS or not MS
- Replies: 4
- Views: 1848
Re: Why is it all MS or not MS
Hi Matt, If you could stop new damage from happening, a lot of ms damage can repair itself. Exercise is one of the best ways to work with the brain to repair pathways or build new ones. If you want to research, the technical term is neuroplasticity. It's not a cure because the disease continues to c...
- Sat May 17, 2014 5:49 pm
- Forum: General Discussion
- Topic: ca mg nutrition nutritionists
- Replies: 6
- Views: 1861
Re: ca mg nutrition nutritionists
Thanks. I will look at all of this.
Sadly, I think the gerd is likely to be ms related since I've also developed some swallowing issues. MS sucks.
Sadly, I think the gerd is likely to be ms related since I've also developed some swallowing issues. MS sucks.
- Sat May 17, 2014 8:02 am
- Forum: General Discussion
- Topic: ca mg nutrition nutritionists
- Replies: 6
- Views: 1861
ca mg nutrition nutritionists
Hi,
So I have a couple questions for the experts here.
1. What qualifications should I look for if I hire a nutritionist.
2. Does someone have a quick ratio for how much calcium to mg I should be taking. I've developed GERD and am now on antacids that contain a lot of calcium.
Thanks very much.
So I have a couple questions for the experts here.
1. What qualifications should I look for if I hire a nutritionist.
2. Does someone have a quick ratio for how much calcium to mg I should be taking. I've developed GERD and am now on antacids that contain a lot of calcium.
Thanks very much.
- Wed May 07, 2014 6:12 am
- Forum: Undiagnosed
- Topic: Awaiting results, question about timeline
- Replies: 2
- Views: 1407
Re: Awaiting results, question about timeline
Looking back, I can see ms symptoms 20 years before diagnosis. It is amazing what you can believe is normal, or just explain away, ignore because it improves in a few weeks. I've had the ms hug intermittently since my early 20's. Clumsiness was part of my identity. Didn't investigate eye symptoms. I...
- Mon Apr 28, 2014 9:11 pm
- Forum: Undiagnosed
- Topic: Question about MRIs
- Replies: 5
- Views: 1871
Re: Question about MRIs
I know it is miserable to live with uncertainty. Unfortunately, the sensory symptoms of pain, numbness and tingling really can be made worse by worrying about them. They can also be caused by a variety of things from diabetes to stress. Without mri or lumbar puncture evidence, your neuro won't know ...
- Thu Apr 17, 2014 6:22 pm
- Forum: Rituxan (Rituximab)
- Topic: Rituximab iv and intrathecal with valtrex
- Replies: 137
- Views: 53796
Re: Rituximab iv and intrathecal with valtrex
Thanks Anon. I haven't asked Yammer yet. I'm still working on my in plan neurologist, but if it comes to that I may travel. I haven't decided yet whether Rituxan or Alemtuzumab is the way to go, but at this point I'm hoping to take one of them. Can you explain why you chose Rituxun? I can't evaluate...
- Mon Apr 14, 2014 8:27 am
- Forum: General Discussion
- Topic: How do people cope with Multiple Sclerosis?
- Replies: 12
- Views: 2725
Re: How do people cope with Multiple Sclerosis?
Thanks for your help. I've seen discussions of what other people with ms would like the public to know about our experience, here at Thisisms, in the comments of Dr. Giavvanoni's MS Research Blog, and on the discussion boards at MS World Forum. If you haven't found it yet, you should also look at th...
- Fri Apr 11, 2014 12:45 pm
- Forum: Undiagnosed
- Topic: New here, could I have MS?
- Replies: 11
- Views: 2223
Re: New here, could I have MS?
Also, you could ask your doctor to try a low dose of one of the nerve pain meds to see if it would help your foot.