Search found 10 matches
- Wed Mar 12, 2014 6:48 am
- Forum: General Discussion
- Topic: New rules for private prescriptions
- Replies: 7
- Views: 2384
Re: New rules for private prescriptions
Thanks again Geoff for your reply you are certainly right about me firing all kinds of treatment at this but thats my way of dealing with my ms. i have been diagnosed with rrms but not by a spinal tap just by MRI, my symptoms started 18 years ago and I was told immediately by my neuro at the time th...
- Tue Mar 11, 2014 5:06 am
- Forum: General Discussion
- Topic: New rules for private prescriptions
- Replies: 7
- Views: 2384
Re: New rules for private prescriptions
Thanks for your reply again Geoff, hope you don't mind me asking but are you a dr? I see what you mean about a trade off I'm actually in the middle 51 yr old female, the reason I am considering the months trial is I just want to see if it works for me, I don't take any DMD the only thing I take is L...
- Sun Mar 02, 2014 5:37 am
- Forum: General Discussion
- Topic: New rules for private prescriptions
- Replies: 7
- Views: 2384
Re: New rules for private prescriptions
Thanks for your reply Geoff I realise you can't get for fampyra here in the uk on the NHS, what you could get was a private prescription off your neuro for the free months trial and then if it works for you you then continue to get a private prescription off your neuro and pay for the fampyra yourse...
- Fri Feb 28, 2014 2:40 am
- Forum: General Discussion
- Topic: New rules for private prescriptions
- Replies: 7
- Views: 2384
New rules for private prescriptions
Could anyone tell me about this new ruling where consultants can't write a private prescriptions anymore for their NHS patients? I asked my neuro if I could try fampyra he said yes but it's complicated, I am now 3 months down the line with no prescription and after numerous emails, phone calls etc I...
- Fri Jan 03, 2014 11:29 am
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: AtlasBalance (jaw misalignment) Dr M Amir - Putney London UK
- Replies: 255
- Views: 70204
Re: AtlasBalance (jaw misalignment) Dr M Amir - Putney Londo
Hi dr amir I came for a consultation with you around two years ago and was and still am very interested in the work you do, I have relapse and remitting ms and had had ccsvi treatment about 8 months before I came to see you, I didn't think I had much improvement from the ccsvi so was a bit dubious a...
- Tue Dec 04, 2012 10:07 am
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: CCSVI and CCVBP
- Replies: 4794
- Views: 756322
Re: CCSVI and CCVBP
dr flanagan thank you for your last message, i had read about a chiari malformation before and wondered if i maybe had that, would that not show up on a normal mri then, would it have to be an upright mri? we do have an upright scanner here in london in the uk which i would have to pay privately for...
- Fri Nov 30, 2012 12:53 pm
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: CCSVI and CCVBP
- Replies: 4794
- Views: 756322
Re: CCSVI and CCVBP
thankyou dr flanagan, my neuro said i should have a mri once a year which i am actually going for next week as it's a year ago sinse it was found, when i next see him in january i will get him to check my leg muscles and reflexes, my chiro usually checks those too, i am keeping an eye on them myself...
- Fri Nov 30, 2012 9:14 am
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: CCSVI and CCVBP
- Replies: 4794
- Views: 756322
Re: CCSVI and CCVBP
dr flanagan thank you for your advice i will tell my chiropractor about the adjustments you mentioned and hopefully she will be able to do them for me. would you say chiropractic care is the way to go with this syrinx as obviously i dont want to consider surgery unless absolutely neccesary? i'm also...
- Thu Nov 29, 2012 9:48 am
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: CCSVI and CCVBP
- Replies: 4794
- Views: 756322
Re: CCSVI and CCVBP
thank you dr flanagan for your swift responce i thought a neurosurgeon would be a better choice than a neurologist i will see if i can be referred. i don't know if i have had these fusions sinse birth or wether some were from birth and the others have happened over time what do you think? i've never...
- Thu Nov 29, 2012 6:58 am
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: CCSVI and CCVBP
- Replies: 4794
- Views: 756322
Re: CCSVI and CCVBP
dr flanagan i wonder if you could give me some advice please? this is my first post so bear with me. i'm a 50 yr old female i have had ms for 16 years only diagnosed properly about 5 yrs ago, also last year after my first ever c-spine mri i was diagnosed as having a syrinx, i also have congenital fu...