Search found 7 matches

by cam
Sun Sep 24, 2017 5:45 pm
Forum: Ocrevus (Ocrelizumab)
Topic: Ocrevus questions
Replies: 17
Views: 6859

Re: Ocrevus questions

Well I thought I'd put in my 2 cents...I was in the initial study group in Canada and got my first infusion in 2013. Have to say it's been great, no new relapses, no progression - MRI shows no new lesions and even some "shrinking" of older ones. I am now continuing in the post study as "knock on woo...
by cam
Sun Jun 15, 2014 2:51 pm
Forum: General Discussion
Topic: 9 yr old niece with seizures...MS family link?
Replies: 9
Views: 1368

Re: 9 yr old niece with seizures...MS family link?

You know I haven't pursued the Vit b12/PA thing - once the MS was "singled" out - No one really talks about it much now...I will look into it more - so much to learn/know. I will check into the PVC test also. I forgot to note I do have Mag supplement also - have it with a calcium as well as in the m...
by cam
Fri Jun 13, 2014 12:28 pm
Forum: General Discussion
Topic: 9 yr old niece with seizures...MS family link?
Replies: 9
Views: 1368

Re: 9 yr old niece with seizures...MS family link?

Thank you "jimmy legs" for such in-depth info/links. You are very passionate about information! I try to follow some of your recommendations from your previous posts...I do take supplements for my general health (and MS) - multi-vitamin, B12, Vit d, zinc/copper supplement, omega 3's - last year have...
by cam
Wed Jun 11, 2014 7:26 pm
Forum: General Discussion
Topic: 9 yr old niece with seizures...MS family link?
Replies: 9
Views: 1368

Re: 9 yr old niece with seizures...MS family link?

Thanks for the great info and advice, much appreciated! I was diagnosed with Vit B12 deficiency and pernicious anaemia around the same time as MS. I had a series of B12 injections until levels good then on oral supplementation since - levels still seem to be holding (sorry no #'s on hand). I will fo...
by cam
Tue Jun 10, 2014 8:57 pm
Forum: General Discussion
Topic: 9 yr old niece with seizures...MS family link?
Replies: 9
Views: 1368

9 yr old niece with seizures...MS family link?

I have MS, but haven't yet told my family, just needing time and figuring out how to best do it. However just recently my 9 year old niece has had a number of seizures - "out of the blue". Is aware of them coming on and during - seems mainly to affect her right side - leg/arm. Recent blood and CT sc...
by cam
Mon Dec 03, 2012 6:23 pm
Forum: Introductions
Topic: Just pulled my head out of the sand
Replies: 5
Views: 1228

Re: Just pulled my head out of the sand

Thank you for your replies...I do feel that diet is so important - will continue to research - checking out the Diet board discussions. Eliminating lactose, sugar and gluten (as much as I can) for now to get started until I can find a good guideline to follow. Looking forward to reading more about e...
by cam
Sun Dec 02, 2012 10:25 pm
Forum: Introductions
Topic: Just pulled my head out of the sand
Replies: 5
Views: 1228

Just pulled my head out of the sand

I just found this site, lots of great comments/advice. I was diagnosed in 2002 w/ relapsing-remitting MS, have been VERY fortunate - still working and active - occasional episodes of vertigo/migraine/tremors/armpit pain/leg numbness. Now @ 42 - I have the opportunity to be part of the OPERA study (C...