Search found 116 matches

by mmpetunia
Sun Oct 04, 2015 4:35 pm
Forum: Tecfidera (BG-12, dimethyl fumarate)
Topic: Tecfidera Recurrent Side-effects (after initial side-effects
Replies: 17
Views: 10627

Re: Tecfidera Recurrent Side-effects (after initial side-eff

I don't get stomach upset too much. Sometimes if I haven't had enough to eat I will get some lower GI stuff. The one thing that has stuck around for me is the flushing. The first dose of Tec was AWFUL flushing and since then it has gotten better. It seemed to get better to a point and now if I don't...
by mmpetunia
Tue Sep 08, 2015 3:28 pm
Forum: General Discussion
Topic: MS and Fertility treatments
Replies: 0
Views: 872

MS and Fertility treatments

I am at a point where I am considering a family but I have had issues with my cycles and the last time I saw my gyno we discussed my fertility. She seemed to think that I would be able to get pregnant with the help of fertility drugs. I have been reading quite a bit about how some fertility treatmen...
by mmpetunia
Tue Aug 11, 2015 9:29 pm
Forum: Tecfidera (BG-12, dimethyl fumarate)
Topic: **IMPORTANT** PML & Tecfidera
Replies: 6
Views: 4221

Re: **IMPORTANT** PML & Tecfidera

I am also JC+ and on Tec. I got blood drawn frequently the first 6 months on it and will now get it drawn at 6 month intervals. I think the risk of low blood counts is greatest in the beginning so I feel confident with the frequent monitoring that I received that I will be ok. The frequent draws gav...
by mmpetunia
Sun Aug 09, 2015 9:34 pm
Forum: Tecfidera (BG-12, dimethyl fumarate)
Topic: How similar are Tecfidera and Fumaderm?
Replies: 2
Views: 2810

Re: How similar are Tecfidera and Fumaderm?

I will be traveling about a year. I haven't talked with my doc yet. I'm not sure what she can suggest for meds since I won't have insurance coverage.
by mmpetunia
Sat Aug 08, 2015 9:47 am
Forum: Tecfidera (BG-12, dimethyl fumarate)
Topic: How similar are Tecfidera and Fumaderm?
Replies: 2
Views: 2810

How similar are Tecfidera and Fumaderm?

I am asking because I have plans to do extensive traveling abroad and I am scratching my head as to how I might continue to take DMD's while I am gone. I would have to maintain an insurance policy stateside while I am gone to have it covered by insurance and that simply isn't possible. I do plan to ...
by mmpetunia
Tue Mar 10, 2015 7:47 pm
Forum: General Discussion
Topic: Requesting accommodations at work
Replies: 5
Views: 1099

Re: Requesting accommodations at work

Syck, How did it go when you asked to work from home on Fridays? Did that come about as an accommodation or just something that went along with your position? I work in a nonprofit that provides intensive case management to clients who are at risk of being institutionalized or are currently institut...
by mmpetunia
Tue Mar 10, 2015 7:55 am
Forum: General Discussion
Topic: 120 mg or 240mg Tecfidera dose
Replies: 11
Views: 2475

Re: 120 mg or 240mg Tecfidera dose

The dosage was measured for effectiveness through drug trial studies. It's possible that another dose would also be beneficial, however, there are likely no studies available showing one way or the other. Therefore most likely your neurologist will probably tell you that you need to be on 240 mgs tw...
by mmpetunia
Mon Mar 09, 2015 7:31 pm
Forum: General Discussion
Topic: Requesting accommodations at work
Replies: 5
Views: 1099

Requesting accommodations at work

Hi all, I have been contemplating asking for workplace accommodations for about a year now. Today it is on my mind because I called in sick to work because I had that heavy lead-filled body feeling. I get it frequently--once or twice a week and it's a real struggle to make it through the day when I ...
by mmpetunia
Tue Feb 17, 2015 9:32 pm
Forum: General Discussion
Topic: vaccinations
Replies: 0
Views: 653

vaccinations

Given the recent hysteria in the news about vaccines it occurred to me that I should probably spend some time informing myself of which vaccines are appropriate for me to have. The NMSS gives very conflicting recommendations for vaccinations. My neuro told me to stay away from all live vaccines but ...
by mmpetunia
Wed Nov 05, 2014 4:52 pm
Forum: General Discussion
Topic: Lesions were a surprise, can colon issues be an MS symptom?
Replies: 16
Views: 2729

Re: Lesions were a surprise, can colon issues be an MS sympt

I was in tears yesterday because I hadn't heard of even one person who got a fast diagnosis without years of searching. Just to know one person like you had a possibly similar experience makes me feel less alone...My biggest worry was about accepting an MS diagnosis that seemed so out of nowhere, s...
by mmpetunia
Wed Nov 05, 2014 4:23 pm
Forum: Tecfidera (BG-12, dimethyl fumarate)
Topic: does it get worse before getting better
Replies: 3
Views: 2029

Re: does it get worse before getting better

I have felt much better since starting Tec but that could also be because my compliance was pretty low while on the copaxone and I was probably having a lot of uncontrolled disease activity.
by mmpetunia
Wed Nov 05, 2014 4:17 pm
Forum: Copaxone
Topic: i switched meds and now i have many boxes of copaxone
Replies: 2
Views: 3473

Re: i switched meds and now i have many boxes of copaxone

3 weeks, plenty of views and no replies or messages. I guess I'll just throw them out.
by mmpetunia
Tue Oct 14, 2014 9:44 am
Forum: Copaxone
Topic: i switched meds and now i have many boxes of copaxone
Replies: 2
Views: 3473

i switched meds and now i have many boxes of copaxone

does anyone want them? i have one box that expires at the end of next month and the rest are all in 2015. i'm in the bay area and if you live somewhat close or are local that would be ideal, but mostly i just want someone to make good use of them. PM for more details.
by mmpetunia
Sat Oct 11, 2014 11:12 pm
Forum: Tecfidera (BG-12, dimethyl fumarate)
Topic: Elevated Liver Numbers!
Replies: 4
Views: 3388

Re: Elevated Liver Numbers!

well, i didn't get a response to my question but i thought i would update the thread anyways since i have gotten labs drawn again. my numbers are back down to normal except for my ALT which remains about 10 points out of range. this could be because i stopped taking the aspirin or it could be from h...
by mmpetunia
Sat Sep 20, 2014 9:56 am
Forum: Tecfidera (BG-12, dimethyl fumarate)
Topic: Elevated Liver Numbers!
Replies: 4
Views: 3388

Elevated Liver Numbers!

I've been on Tec for 4 weeks, 3 weeks at the standard dose and I've had a few mishaps with my labs. Initially, when I got labs to start the medication I had a borderline ANC of 1.8 which was concerning since Tec drops WBC counts. My neuro is being especially cautious and has ordered labs at 1,3, and...