Search found 19 matches

by plethora
Tue Oct 08, 2013 10:08 pm
Forum: General Discussion
Topic: Fecal Microbiota Transplantation - 3 cases of MS remission
Replies: 82
Views: 26857

Re: Fecal Microbiota Transplantation - 3 cases

I would of thought they would be combining or extracting the best, and make a SUPER POOP! err.. i mean super-bacteria-combination. :razz: ie just maybe extract and breed the better bacteria? like the current general "stomach bacteria" pills you see. No kidding. Other scientific studies ha...
by plethora
Wed Sep 11, 2013 7:14 pm
Forum: General Discussion
Topic: How do your MS flares start?
Replies: 5
Views: 1645

Re: How do your MS flares start?

Thanks BadKitty. He hasn't given special instructions. I made an appt with him this next week.

You needed a nurse to help figure it out? What happened with that flare?
by plethora
Wed Sep 11, 2013 8:03 am
Forum: General Discussion
Topic: How do your MS flares start?
Replies: 5
Views: 1645

How do your MS flares start?

I'm trying to figure out if I am having a flare right now. I have been feeling a bit worse every day for a couple of weeks now, a little more numb in my arms and legs, a little bit less motor function in my hands, etc. Is this how flares start for you, or are they more sudden? And would you go see t...
by plethora
Mon Sep 09, 2013 10:38 am
Forum: Copaxone
Topic: every other day
Replies: 7
Views: 3084

Re: every other day

Instead of skipping every other day, I usually only skip 12 hours at a time. I usually do the shot in the evenings, but will skip a day and then do the shot the next morning. Then, after a day or so I go back to evenings, 36 hours later. This way there are no more than 36 hours between shots, but I ...
by plethora
Tue Jul 16, 2013 2:31 pm
Forum: General Discussion
Topic: What treatment to choose...
Replies: 10
Views: 2116

Re: What treatment to choose...

Here is a chart that might help. Good luck with your decision!

Sam

by plethora
Fri Jun 28, 2013 1:33 pm
Forum: General Discussion
Topic: Anyone have experience with acupuncture?
Replies: 3
Views: 1550

Re: Anyone have experience with acupuncture?

Thanks for your replies. I too am generally skeptical of things like this, but it seems some get good results. Maybe I will give it a shot. Thanks!
by plethora
Wed Jun 26, 2013 9:32 pm
Forum: General Discussion
Topic: Anyone have experience with acupuncture?
Replies: 3
Views: 1550

Anyone have experience with acupuncture?

My holistic Doctor recommended acupuncture for numbness\tingling in my legs. Does anyone have experience with this, and did it help? Thanks!
by plethora
Wed Jun 05, 2013 7:09 pm
Forum: Drug Pipeline
Topic: "The Holy Grail" -- Continuation of Nanoparticle research
Replies: 1
Views: 2610

"The Holy Grail" -- Continuation of Nanoparticle research

Anyone else excited about this? Some results from the first clinical trial based on the nanoparticle research first published this last November. http://www.sciencedaily.com/releases/2013/06/130605144312.htm Quote: "A phase 1 clinical trial for the first treatment to reset the immune system of ...
by plethora
Mon May 20, 2013 9:44 pm
Forum: Revimmune (Cyclophosphamide, Cytoxan)
Topic: Symptoms right after 1st HICY infusion?
Replies: 1
Views: 5704

Re: Symptoms right after 1st HICY infusion?

Hi, I don't have any experience with HSCT, but have read a bit about it. The expert seems to be George Goss, who did HSCT a few years ago and has a blog about his experience and about HSCT in general. It is pretty comprehensive. Hopefully you can find an answer there. Good luck and I hope it works f...
by plethora
Wed May 15, 2013 9:48 pm
Forum: Copaxone
Topic: Input on Copaxone and Gilenya?
Replies: 3
Views: 3098

Re: Input on Copaxone and Gilenya?

"Cure drug" due on the market possibly by July? Which drug was he referring to?

I thought Lemtrada is about the only big potential drug in the FDA right now, and that one is an infusion drug....

Thanks!
by plethora
Thu Apr 11, 2013 6:53 pm
Forum: Copaxone
Topic: Does Assist RX have an income cap?
Replies: 1
Views: 2007

Re: Does Assist RX have an income cap?

They helped me and I have insurance. The nurse told me they cover up to $2500 of your deductible. Possibly more, based on your income.
by plethora
Mon Apr 08, 2013 9:44 pm
Forum: General Discussion
Topic: Probiotic enemas? Has anyone tried them?
Replies: 10
Views: 4441

Re: Probiotic enemas? Has anyone tried them?

Well, um, let us know how it goes? Since they say that up to 70% of your immune system is in your digestive system, I don't see why it couldn't help. Have there been clinical studies with MS and probiotics performed? Also, has anyone ever had the probiotics that require a prescription from a doc, an...
by plethora
Thu Mar 28, 2013 9:34 pm
Forum: General Discussion
Topic: Testosterone Affects MS Outcomes in Men
Replies: 3
Views: 2091

Re: Testosterone Affects MS Outcomes in Men

After a couple of weeks of taking it, your body stops producing its own testosterone (same reason they advise against steroid abuse). You become dependent on the testosterone supplement. A guy would have to weigh the benefits vs. the costs. If a higher testosterone level helps with MS, it might be w...
by plethora
Mon Mar 18, 2013 9:17 pm
Forum: General Discussion
Topic: Which pharma drug in the pipeline has the most promise?
Replies: 13
Views: 3225

Re: Which pharma drug in the pipeline has the most promise?

Personally, I am most excited about Lemtrada (Campath). I think they have figured out how to prevent/treat most of the side effects, and the prospect of having a 80% chance of no relapses the next 3 years sounds good to me. Some who were part of the original clinical trials went from active disease ...
by plethora
Mon Mar 18, 2013 9:13 pm
Forum: General Discussion
Topic: Stress question. What would you do if you were me?
Replies: 5
Views: 1392

Re: Stress question. What would you do if you were me?

Thank you for your responses. Jimmylegs: Thank you for your posts about nutrition. I have learned a lot from reading what you say and appreciate your approach. JeanDeEau: Very good points. You may very well be a business owner yourself. I don't know anyone right now to mentor, but have a few friends...

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