Search found 19 matches
- Tue Mar 25, 2014 2:01 pm
- Forum: Rebif
- Topic: What it the safe range of liver ALT number ??
- Replies: 2
- Views: 6165
Re: What it the safe range of liver ALT number ??
I read somewhere about 2 to 3 times the upper limit of normal, so 80-120ish. Definitely heed the advice of the above post, though.
- Sun Sep 22, 2013 8:31 pm
- Forum: General Medications
- Topic: Experiences with Amantadine
- Replies: 7
- Views: 9194
Re: Experiences with Amantadine
I tried amantadine with no result. I switched to Provigil and it worked great!!
- Sun Sep 22, 2013 8:16 pm
- Forum: Campath (Lemtrada, Alemtuzumab)
- Topic: Oral MS drug Lemtrada approved by European Commission
- Replies: 1
- Views: 5409
Re: Oral MS drug Lemtrada approved by European Commission
This title is misleading. Lemtrada is an IV infusion, as the stomach would destroy the drug if taken orally.
- Sun Sep 22, 2013 5:24 pm
- Forum: Tysabri (Antegren, Natalizumab)
- Topic: Biogen Idec, Elan facing suits over MS drug side effects
- Replies: 7
- Views: 3173
Re: Biogen Idec, Elan facing suits over MS drug side effects
I was only DXed in March and my neuro tried to hawk Tysabri to me. My solution? Found a new neuro.
I refuse to use Ty until I have exhausted my other options. PML scares the crap outta me.
I refuse to use Ty until I have exhausted my other options. PML scares the crap outta me.
- Thu Aug 15, 2013 4:08 pm
- Forum: Introductions
- Topic: New, DX, very confused about first time treatment options
- Replies: 9
- Views: 1916
Re: New, DX, very confused about first time treatment option
I am on Rebif, one of the interferons, and have had a smooth ride with it so far. When I was in the hospital for a week, at the time I was diagnosed, the attending neurologist told me to take as much time as I needed researching all possible treatment options. I did so much reading I thought my eyes...
- Mon Aug 12, 2013 4:07 pm
- Forum: Daily Life
- Topic: Erectile Dysfunction?
- Replies: 14
- Views: 8824
Re: Erectile Dysfunction?
I second Anonymoose. The rings do help. I recommend a nice stretchy silicone one.
- Thu Aug 01, 2013 1:00 pm
- Forum: Undiagnosed
- Topic: under investigation
- Replies: 2
- Views: 1075
Re: under investigation
You almost exactly describe what I went through the past three years off and on, except I had no lopsided body, only face. I had vertigo, terrible loss of walking ability, and intense headache that prompted my DX. The vibration sensation is one of my MS symptoms too. It's called L'hermitte's sign. G...
- Wed Jul 24, 2013 7:19 pm
- Forum: Undiagnosed
- Topic: My results...
- Replies: 1
- Views: 1397
Re: My results...
My first MRI was pretty close to what you described, and they recommended a spinal tap. It hurt like HELL. Mine was positive for bands, and then they did an MRI of the spine. That, combined with my past weird symptoms that never seemed to make sense, along with negative HIV/PML/Lyme tests, got me a ...
- Sun Jul 14, 2013 6:59 pm
- Forum: Exercise and Physical Therapy
- Topic: type of exercise and diet
- Replies: 1
- Views: 4902
Re: type of exercise and diet
I know this post is a tad old, but wanted to comment. I use the MyFitnessPal app (you can also use it on PC) to record foods. I upped my produce intake greatly and cut meat intake to one meal once or twice a week. I don't eat any grains that are not whole grains. I eat six small meals a day rather t...
- Mon Jul 08, 2013 10:28 pm
- Forum: Undiagnosed
- Topic: Think I have MS
- Replies: 6
- Views: 2460
Re: Think I have MS
If you can, ask for a Stricker CD57 panel to rule out Lyme disease as well. The usual tests they do for it, the Western Blot and ELISA, are known for false negatives. Lyme often mimics MS and leads to many a misdiagnosis.
- Fri Jun 28, 2013 6:45 pm
- Forum: Introductions
- Topic: Gilenya???
- Replies: 4
- Views: 1435
Re: Gilenya???
I do not take Gilenya, but after reading a section of the official website (http://www.gilenya.com/c/paying-for-gilenya), it seems they have a copay assistance program (as long as he does not receive federal or state medical insurance). They will pay up to $12K a year towards the copay.
- Fri Jun 21, 2013 5:03 pm
- Forum: Friends and Family
- Topic: Infidelity because of MS?
- Replies: 19
- Views: 17762
Re: Infidelity because of MS?
Please do not chalk up her complete lack of respect for your feelings or relationship to her MS. She chose to cheat, MS did not make her. My MS has never caused me to cheat, nor has it made me cold and hurtful.
You have a tough choice to make. Keep your head up.
You have a tough choice to make. Keep your head up.
- Wed Jun 19, 2013 2:24 pm
- Forum: Drug Pipeline
- Topic: Pegylated Interferon
- Replies: 2
- Views: 2094
Re: Pegylated Interferon
I too wonder about flu like symptoms with the new peginterferon. I had none with my titration pack, only had them my first week of 44mcg Rebif shots.
- Wed Jun 19, 2013 2:21 pm
- Forum: Rebif
- Topic: Rebif Rebidose?
- Replies: 4
- Views: 6921
Re: Rebif Rebidose?
Wanted to update. I did my 20th shot yesterday. I don't mind the Rebidose injectors too much. The first few times I had to put on headphones while I did it because the click noise made me jump and waste my first shot. I have a lot of body fat, so needle depth with the Rebidose isn't really an issue.
- Fri May 10, 2013 7:16 pm
- Forum: Under 25 with MS
- Topic: My Whole Story - Diagnosed April 4th with MS
- Replies: 3
- Views: 6589
Re: My Whole Story - Diagnosed April 4th with MS
I have to keep this short (left hand is numb so typing is hard), but welcome! I am 25, was dx'd 3/16 with RRMS after a month's battle with vertigo, nausea, vomiting, and problems walking. I also take Rebif. As for your medical situation, I am underinsured and have racked up $90K in costs so far this...