Search found 42 matches

by Cholderby
Sun Nov 03, 2013 6:11 pm
Forum: General Discussion
Topic: Walking speed a good gauge of MS disability, study says
Replies: 4
Views: 1604

Re: Walking speed a good gauge of MS disability, study says

Can't help but feel that walking speed is a bad measure of my hands not working.
by Cholderby
Sun Nov 03, 2013 5:58 pm
Forum: General Discussion
Topic: Hand problems and tendonitis
Replies: 3
Views: 3846

Re: Hand problems and tendonitis

Huh, that is extremely intriguing! Thanks.
by Cholderby
Tue Oct 29, 2013 9:26 am
Forum: General Discussion
Topic: Hand problems and tendonitis
Replies: 3
Views: 3846

Hand problems and tendonitis

I've managed to set a new record in the hand surgeon's eyes: I have trigger finger in all ten digits! He knows I have MS, obviously, and is also aware of my many lesions on both my spinal column and brain. I've done the steroid shots in my knuckles (as fun as you might imagine) and things got better...
by Cholderby
Mon Aug 26, 2013 5:50 pm
Forum: General Discussion
Topic: Drug internaction with bentonite clay taken internally
Replies: 1
Views: 1408

Re: Drug internaction with bentonite clay taken internally

One week later and I think I can say I timed it so that it doesn't effect the gabapentin.

Is it doing any good? Who knows...
by Cholderby
Sun Aug 18, 2013 4:03 am
Forum: General Discussion
Topic: Drug internaction with bentonite clay taken internally
Replies: 1
Views: 1408

Drug internaction with bentonite clay taken internally

I've pretty much convinced myself that a detox is due for me and part of that will be taking bentonite clay. I'm on copaxone (I inject in the morning) and gabapentin 7am, 2pm, and 9pm). I can't find any info on the release time for regular, not extended release, of gabapentin. So far the copaxone ha...
by Cholderby
Thu Jul 04, 2013 5:22 pm
Forum: General Discussion
Topic: Need sedation ideas for MRI
Replies: 18
Views: 4244

Re: Need sedation ideas for MRI

They ended up trying a xanax/ativan combo that did nothing for me. I had a cloth over my face but still couldnt even make it in the machine. I came un to the hospitsl because my entire right side was numb. Once they ruled out stroke with a ct, they said they had to confirm an active lesion before st...
by Cholderby
Tue Jul 02, 2013 9:56 am
Forum: General Discussion
Topic: Need sedation ideas for MRI
Replies: 18
Views: 4244

Need sedation ideas for MRI

I've had two successful mris in my life and six failures. The first one I was able to tolerate occurred after being awake the 40 hours prior and I was given two valiums. The other one I was sedated via IV with versed. I thought versed was the answer, but I've switched hospitals and this new one will...
by Cholderby
Sun May 26, 2013 5:51 pm
Forum: Copaxone
Topic: 2 months on Copaxone
Replies: 8
Views: 4543

Re: 2 months on Copaxone

I realize this is a year old, but just in case someone stumbles accross this and says "I have that too..." I had allergic reactions to copaxone from the beginning (and it's only been 5 weeks). They had me coat the injection area with diphenhydramine gel, cover it with plastic wrap for 10 m...
by Cholderby
Sun May 26, 2013 5:45 pm
Forum: General Discussion
Topic: Brain lesions Vs Spinal lesions
Replies: 5
Views: 2977

Re: Brain lesions Vs Spinal lesions

How reliable are the standard Lyme tests?
by Cholderby
Wed May 15, 2013 5:38 pm
Forum: General Discussion
Topic: Which drug to try next?
Replies: 5
Views: 1698

Re: Which drug to try next?

Thanks! I began dousing myself with diphenhydramine gel and that brought the pain from an 8 to a 3.
by Cholderby
Tue May 14, 2013 1:47 pm
Forum: General Discussion
Topic: Why did I bother going to college?
Replies: 4
Views: 1591

Re: Why did I bother going to college?

Upon further reflection, I've decided it's a PR ploy. I'm such a sucker for a "nasty rich people" story. :wink:
by Cholderby
Tue May 14, 2013 10:35 am
Forum: General Discussion
Topic: Why did I bother going to college?
Replies: 4
Views: 1591

Why did I bother going to college?

If I'd only known that I would be blessed with an autoimmune disorder, I could have been making $130/hour from the get-go. Now, where do I sign up...

http://www.nypost.com/p/news/local/manh ... Vc1zItXGDP
by Cholderby
Tue May 14, 2013 3:32 am
Forum: General Discussion
Topic: Which drug to try next?
Replies: 5
Views: 1698

Which drug to try next?

I started copaxone on Thursday. The first shot brought on redness and hives. Friday's shot was extremely painful (well, not the shot itself, the pain starts 30 seconds after). The pain was on par with childbirth, natural childbirth actually, on Sunday (happy Mother's Day!). Each day brought more pai...
by Cholderby
Fri May 10, 2013 5:09 pm
Forum: General Discussion
Topic: Any advice for flushing?
Replies: 4
Views: 1104

Re: Any advice for flushing?

Maybe. What kind of luck do I have if I've developed two autoimmune diseases in a few months? :-D

from what I've read, rosacea has tiny bumps like a rash and my skin texture hasn't changed, just the color.
by Cholderby
Fri May 10, 2013 4:36 pm
Forum: General Discussion
Topic: Any advice for flushing?
Replies: 4
Views: 1104

Re: Any advice for flushing?

It started before I started copaxone and has continued on. Nothing else is new. All I can tell from web searches is that it is a "common MS symptom". It doesn't hurt or itch or anything, my concern is purely cosmetic. Still, it does startle me whenever I catch my reflection. I think I read...

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