Search found 11 matches

by Bytemi
Tue Oct 22, 2013 9:47 am
Forum: General Discussion
Topic: How Long Does It Take
Replies: 3
Views: 1282

Re: How Long Does It Take

Actually I spoke to the appointment taker and then I spoke to the Patient Care Line, which is suppose to be there in cases of urgent problems. I have never had success with the Patient Care Line, because they always want me to go to the ER. The ER, for the most part, is not equipped to deal with MS...
by Bytemi
Tue Oct 22, 2013 7:20 am
Forum: General Discussion
Topic: How Long Does It Take
Replies: 3
Views: 1282

How Long Does It Take

If you call your Neurologist office and say you are having leg pains and one leg keeps giving out, how long do you have to wait for an appointment. I ask because Michelle, the neurologist I was seeing, recently moved to Tennessee and my care has been moved to another doctor in the practice. I calle...
by Bytemi
Wed Sep 25, 2013 11:47 am
Forum: Tecfidera (BG-12, Dimethyl fumarate)
Topic: My Experieince with Tecfidera
Replies: 21
Views: 15569

Re: My Experieince with Tecfidera

My body does not react well to medications. I have filed so many FDA reports, I can't keep track any more. I did not report Biogen or FDA, if you provide me with the contact information I will do so.
by Bytemi
Tue Sep 24, 2013 11:28 am
Forum: Tecfidera (BG-12, Dimethyl fumarate)
Topic: Here I go again
Replies: 10
Views: 5560

Re: Here I go again

Well I had my follow up today. The doctor is concerned. She said my blood work came back and my white blood count is at 5, which is within normal range except for the fact that I had walking pneumonia when the test was run and my white blood count should have been through the roof. She also said tha...
by Bytemi
Mon Sep 16, 2013 11:54 am
Forum: Tecfidera (BG-12, Dimethyl fumarate)
Topic: Here I go again
Replies: 10
Views: 5560

Re: Here I go again

Yeah me too. I am taking it slow. Ending up in the hospital twice from the stomach pains is making everyone take precautions. 3 Months at 120 twice a day. 3 Months with the mix and then I can fully go to the 240 full time. I hope it works and I don't have the same problems.
by Bytemi
Mon Sep 16, 2013 11:36 am
Forum: Tecfidera (BG-12, Dimethyl fumarate)
Topic: Here I go again
Replies: 10
Views: 5560

Re: Here I go again

I am still on the 120 twice a day. Doing fine. At the end of the month I will being switching to 120 in the morning and 240 in the evening. I hope this works.
by Bytemi
Tue Jul 09, 2013 10:21 am
Forum: Tecfidera (BG-12, Dimethyl fumarate)
Topic: My Experieince with Tecfidera
Replies: 21
Views: 15569

Re: My Experieince with Tecfidera

Are you still recovering from the tecfidera side effects? How long did you have abdominal symptoms after stopping the drug? The abdominal symptoms subsided with 2 days of stopping the Tec. I was off it for 2 weeks and now I have restarted it on a lower dose schedule. I just started my third week an...
by Bytemi
Fri Jun 14, 2013 10:13 am
Forum: Tecfidera (BG-12, Dimethyl fumarate)
Topic: Here I go again
Replies: 10
Views: 5560

Here I go again

I posted earlier about my terrible experience with Tecfidera and I saw the Neurologist yesterday and they feel it is worth giving it another try. It is believe that the symptoms I experience last Saturday where my bodies reaction to the removing the Tecfidera and I am doing IV steroids to balance ev...
by Bytemi
Mon Jun 10, 2013 1:35 am
Forum: Tecfidera (BG-12, Dimethyl fumarate)
Topic: My Experieince with Tecfidera
Replies: 21
Views: 15569

Re: My Experieince with Tecfidera

No not a stroke as a general rule this is how the ms presents itself.
by Bytemi
Sun Jun 09, 2013 4:13 pm
Forum: Tecfidera (BG-12, Dimethyl fumarate)
Topic: My Experieince with Tecfidera
Replies: 21
Views: 15569

Re: My Experieince with Tecfidera

I was so sure, this was going to be the drug that I didn't react too. I was so hopeful. I'm tired of feeling bad. As I'm sure is the case with everyone on this board, I am a fighter and I push until I can't push any further but I am tired of pushing.
by Bytemi
Sun Jun 09, 2013 2:07 pm
Forum: Tecfidera (BG-12, Dimethyl fumarate)
Topic: My Experieince with Tecfidera
Replies: 21
Views: 15569

My Experieince with Tecfidera

I am new to this board so I would like to start out by saying I have never been able to take maintenance drug for MS because of the sever reaction that my body has to the drugs. I watched Tecfidera through the FDA and watch in amazement when the only major side effect reported were flushing and food...

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