Search found 17 matches

by AdiosMS
Sun Apr 24, 2016 8:36 am
Forum: General Discussion
Topic: Random pain coming and going
Replies: 3
Views: 942

Random pain coming and going

Diagnosed 3 years ago, although MS was probably present and "latent" for 25+ years. Now, I am getting unexplained muscle pain. First, my lower back had excruciating pain unexplained by any activity or incident. Mobic did not help. After apx. 3 weeks, it went away. Next, my shoulder started paining m...
by AdiosMS
Sat May 16, 2015 10:19 am
Forum: General Discussion
Topic: Contrast material in MRI - and kidney
Replies: 9
Views: 1611

Re: Contrast material in MRI - and kidney

This is only the second time I've had an MRI with contrast. This is the first time a tech made me sign a waiver, saying my levels were borderline and waiving their liability. So the question is: do I need to get kidney function tests? Do I refuse to have any more MRIs with contrast? I'm confused as ...
by AdiosMS
Fri May 08, 2015 7:52 am
Forum: General Discussion
Topic: Contrast material in MRI - and kidney
Replies: 9
Views: 1611

Contrast material in MRI - and kidney

I just had an MRI, and the tech said my blood sample value was borderline for being able to have a contrast MRI. As I understand it, the blood test shows my kidneys are not clearing efficiently or effectively to rid my body of the contrast material. Is that correct, or am I misunderstanding? I'm won...
by AdiosMS
Tue Sep 23, 2014 11:28 am
Forum: General Discussion
Topic: Dr Allen Bowling in CO
Replies: 2
Views: 949

Dr Allen Bowling in CO

I just found Dr. Allen Bowling's website, neurologycare.net, which was in an National MS Society booklet.
Does anyone have any experience(s) with him, or been under his care and/or treatment?

Seems like so much information out there, it's hard to discern what is good, what is speculative, etc.
by AdiosMS
Fri Sep 19, 2014 2:47 pm
Forum: Regimens
Topic: Vitamin D
Replies: 20
Views: 11217

Re: Vitamin D

In looking for the mineral rich waters, what I found was Gerolsteiner. It has the following mineral content per liter: 1. Calcium 345 2. Bicarbonate 1,800 3. magnesium 345 4. sodium 45 5. potassium 10 6. sulfate 35 7. chloride 40 Now, the question is: Is this worthwhile purchasing & drinking? The ot...
by AdiosMS
Wed Sep 17, 2014 12:52 pm
Forum: Regimens
Topic: Vitamin D
Replies: 20
Views: 11217

Re: Vitamin D

Reading these posts makes me nervous. I have been taking D2 ergocal 1.25 CP (50,000 U) 3X/week for over a year. It was prescribed by my general doctor after my labs came back very low. Should I be concerned about taking this dosage over an extended period? I don't seem to have any side effects, but ...
by AdiosMS
Tue Aug 19, 2014 7:43 am
Forum: Undiagnosed
Topic: Not sure where to go from here... Help!
Replies: 8
Views: 1771

Re: Not sure where to go from here... Help!

"Pouring cold water over the top of my head." When I had a full-blown MS attack (went numb on one whole side of my body, couldn't walk), it was preceded by a feeling that someone poured water (not necessarily cold) over the top of my head, then I went numb. I was diagnosed via MRI w/MS, MS lesions, ...
by AdiosMS
Tue Aug 19, 2014 7:33 am
Forum: General Discussion
Topic: A-fib & MS
Replies: 6
Views: 1130

Re: A-fib & MS

Just got lab values back reflecting magnesium level of 2.0, reference range of 1l8-2.4 mg/dl. I read the above post indicating that lab values may not truly reflect a Mg deficiency. Any thoughts, anyone? This a-fib makes me anxious, stressed. I 'm doing what I can to be well. On top of MS ...
by AdiosMS
Thu Aug 14, 2014 6:56 pm
Forum: General Discussion
Topic: A-fib & MS
Replies: 6
Views: 1130

Re: A-fib & MS

Thanks. I didn't realize magnesium was so important. I guess I only had the importance of Vit D in mind. I can go to nutritiondata.com and figure out what has a lot of magnesium, but does any one have thoughts/ideas/diets that manage to incorporate enough magnesium to be the appropriate levels?
by AdiosMS
Thu Aug 14, 2014 4:35 pm
Forum: General Discussion
Topic: A-fib & MS
Replies: 6
Views: 1130

A-fib & MS

I have been battling a-fib for apx. 8 months. Rhythmol caused severe side effects & was discontinued. It made me so tired & lethargic, I was broken down emotionally. Now, I've been switched to metaprolol 25 mg & flecainide acetate 50 mg. Anyone has any experience with afib & MS?

Help.
by AdiosMS
Fri May 02, 2014 11:16 am
Forum: General Discussion
Topic: Tremors
Replies: 4
Views: 1854

Re: Tremors

I went to the MS doctor about the shivering and tremors, and I was not experiencing it at that moment, so he could not visualize. He said it was not MS. ???. I was, also, taking propafenone for afib. The uncontrolled shaking, shivering got so bad, I went to the emergency room. All they did was give ...
by AdiosMS
Sun Mar 30, 2014 3:23 pm
Forum: General Discussion
Topic: Tremors
Replies: 4
Views: 1854

Tremors

I recently had an episode of uncontrolled "shivering." I would shiver and shake for maybe 10-15 minutes, then it would subside for a while, then come back. This went on all afternoon and evening. When I woke up the next day, it was gone. I don't even know if it was M.S. or something else, since I do...
by AdiosMS
Sat Dec 21, 2013 11:43 am
Forum: Drug Pipeline
Topic: lisinopril
Replies: 17
Views: 13100

Re: lisinopril

Very interesting. I was on lisinopril for HBP for years until I developed the dry cough. During that time, I had no MS symptoms or was even aware I had MS. Apx. 4 years ago, I switched to Benicar. All was well until apx. 15 months ago, when I had left-sided short-term paralysis & was diagnosed with ...
by AdiosMS
Sat Nov 16, 2013 6:36 am
Forum: Undiagnosed
Topic: How to find a really good MS doc/clinic
Replies: 2
Views: 949

How to find a really good MS doc/clinic

I go to a special MS neuro, but I'm not happy with the care, after doing much research/reading/talking to people with MS. For one, after an initial hospitalization, he did not order follow-up vitamin levels, such as Vit D, which was VERY low at the hospital. Said to start taking Rebif, come back in ...
by AdiosMS
Sat Nov 16, 2013 5:43 am
Forum: Regimens
Topic: Blood work
Replies: 11
Views: 3732

Re: Blood work - HOW OFTEN?

Newly diagnosed, and my main take-away at this point is you have to be your own friend. After a hospitalization for an episode in July, while in the hospital, the blood work revealed VERY low Vit D. They pushed some I.V. The MS specialist doctor, whom I visited shortly after the hospitalization, did...