Search found 17 matches
- Sun Apr 24, 2016 8:36 am
- Forum: General Discussion
- Topic: Random pain coming and going
- Replies: 3
- Views: 1274
Random pain coming and going
Diagnosed 3 years ago, although MS was probably present and "latent" for 25+ years. Now, I am getting unexplained muscle pain. First, my lower back had excruciating pain unexplained by any activity or incident. Mobic did not help. After apx. 3 weeks, it went away. Next, my shoulder started...
- Sat May 16, 2015 10:19 am
- Forum: General Discussion
- Topic: Contrast material in MRI - and kidney
- Replies: 9
- Views: 3057
Re: Contrast material in MRI - and kidney
This is only the second time I've had an MRI with contrast. This is the first time a tech made me sign a waiver, saying my levels were borderline and waiving their liability. So the question is: do I need to get kidney function tests? Do I refuse to have any more MRIs with contrast? I'm confused as ...
- Fri May 08, 2015 7:52 am
- Forum: General Discussion
- Topic: Contrast material in MRI - and kidney
- Replies: 9
- Views: 3057
Contrast material in MRI - and kidney
I just had an MRI, and the tech said my blood sample value was borderline for being able to have a contrast MRI. As I understand it, the blood test shows my kidneys are not clearing efficiently or effectively to rid my body of the contrast material. Is that correct, or am I misunderstanding? I'm won...
- Tue Sep 23, 2014 11:28 am
- Forum: General Discussion
- Topic: Dr Allen Bowling in CO
- Replies: 2
- Views: 1339
Dr Allen Bowling in CO
I just found Dr. Allen Bowling's website, neurologycare.net, which was in an National MS Society booklet.
Does anyone have any experience(s) with him, or been under his care and/or treatment?
Seems like so much information out there, it's hard to discern what is good, what is speculative, etc.
Does anyone have any experience(s) with him, or been under his care and/or treatment?
Seems like so much information out there, it's hard to discern what is good, what is speculative, etc.
Re: Vitamin D
In looking for the mineral rich waters, what I found was Gerolsteiner. It has the following mineral content per liter: 1. Calcium 345 2. Bicarbonate 1,800 3. magnesium 345 4. sodium 45 5. potassium 10 6. sulfate 35 7. chloride 40 Now, the question is: Is this worthwhile purchasing & drinking? Th...
Re: Vitamin D
Reading these posts makes me nervous. I have been taking D2 ergocal 1.25 CP (50,000 U) 3X/week for over a year. It was prescribed by my general doctor after my labs came back very low. Should I be concerned about taking this dosage over an extended period? I don't seem to have any side effects, but ...
- Tue Aug 19, 2014 7:43 am
- Forum: Undiagnosed
- Topic: Not sure where to go from here... Help!
- Replies: 8
- Views: 2282
Re: Not sure where to go from here... Help!
"Pouring cold water over the top of my head." When I had a full-blown MS attack (went numb on one whole side of my body, couldn't walk), it was preceded by a feeling that someone poured water (not necessarily cold) over the top of my head, then I went numb. I was diagnosed via MRI w/MS, MS...
- Tue Aug 19, 2014 7:33 am
- Forum: General Discussion
- Topic: A-fib & MS
- Replies: 6
- Views: 1588
Re: A-fib & MS
Just got lab values back reflecting magnesium level of 2.0, reference range of 1l8-2.4 mg/dl. I read the above post indicating that lab values may not truly reflect a Mg deficiency. Any thoughts, anyone? This a-fib makes me anxious, stressed. I 'm doing what I can to be well. On top of MS ...
- Thu Aug 14, 2014 6:56 pm
- Forum: General Discussion
- Topic: A-fib & MS
- Replies: 6
- Views: 1588
Re: A-fib & MS
Thanks. I didn't realize magnesium was so important. I guess I only had the importance of Vit D in mind. I can go to nutritiondata.com and figure out what has a lot of magnesium, but does any one have thoughts/ideas/diets that manage to incorporate enough magnesium to be the appropriate levels?
- Thu Aug 14, 2014 4:35 pm
- Forum: General Discussion
- Topic: A-fib & MS
- Replies: 6
- Views: 1588
A-fib & MS
I have been battling a-fib for apx. 8 months. Rhythmol caused severe side effects & was discontinued. It made me so tired & lethargic, I was broken down emotionally. Now, I've been switched to metaprolol 25 mg & flecainide acetate 50 mg. Anyone has any experience with afib & MS? Help.
- Fri May 02, 2014 11:16 am
- Forum: General Discussion
- Topic: Tremors
- Replies: 4
- Views: 2209
Re: Tremors
I went to the MS doctor about the shivering and tremors, and I was not experiencing it at that moment, so he could not visualize. He said it was not MS. ???. I was, also, taking propafenone for afib. The uncontrolled shaking, shivering got so bad, I went to the emergency room. All they did was give ...
- Sun Mar 30, 2014 3:23 pm
- Forum: General Discussion
- Topic: Tremors
- Replies: 4
- Views: 2209
Tremors
I recently had an episode of uncontrolled "shivering." I would shiver and shake for maybe 10-15 minutes, then it would subside for a while, then come back. This went on all afternoon and evening. When I woke up the next day, it was gone. I don't even know if it was M.S. or something else, ...
- Sat Dec 21, 2013 11:43 am
- Forum: Drug Pipeline
- Topic: lisinopril
- Replies: 17
- Views: 15415
Re: lisinopril
Very interesting. I was on lisinopril for HBP for years until I developed the dry cough. During that time, I had no MS symptoms or was even aware I had MS. Apx. 4 years ago, I switched to Benicar. All was well until apx. 15 months ago, when I had left-sided short-term paralysis & was diagnosed w...
- Sat Nov 16, 2013 6:36 am
- Forum: Undiagnosed
- Topic: How to find a really good MS doc/clinic
- Replies: 2
- Views: 1420
How to find a really good MS doc/clinic
I go to a special MS neuro, but I'm not happy with the care, after doing much research/reading/talking to people with MS. For one, after an initial hospitalization, he did not order follow-up vitamin levels, such as Vit D, which was VERY low at the hospital. Said to start taking Rebif, come back in ...
- Sat Nov 16, 2013 5:43 am
- Forum: Regimens
- Topic: Blood work
- Replies: 11
- Views: 5033
Re: Blood work - HOW OFTEN?
Newly diagnosed, and my main take-away at this point is you have to be your own friend. After a hospitalization for an episode in July, while in the hospital, the blood work revealed VERY low Vit D. They pushed some I.V. The MS specialist doctor, whom I visited shortly after the hospitalization, did...