This Is MS Multiple Sclerosis Knowledge & Support Community

Have any of you heard of this or read about it? http://www.unitedspinal.org/msscene/2009/05/20/late-onset-ms/ Based on what I've read, many who are diagnosed have Primary-Progressive MS. Not good, right? If you've been diagnosed with LOMS, how was diagnosis made? What were your symptoms? How has it ...

I started Tecfidera at beginning of Dec 2013. In the beginning I had some very minor flushing--no GI distress at all. I was told at the beginning to take it with food and make sure there was fat(s) of some sort. Tecfidera health line nurse recommended yogurt. I did that initially but am not now. As ...

Especially in feet and hands..I would like to ask a question>>Does physical activity worsen these symptoms in you? I don't mean extreme/intensive physical activity like walking all over a store or bicycling or anything like that. I'm just talking about doing regular daily activities like some house ...

Forgot to add this about Tecfidera--I spoke to a nurse at Tecfidera support line and she told me to take it with 'food that had fat', like yogurt or nuts or something like that. I take mine during [not before] my breakfast and dinner.

I've been on Tecfidera for just over a month now. It is first and only MS drug I've taken. I decided to take it since I wasn't keen on injecting myself daily and after reading various reports and studies decided to go for it. I have had no GI distress {NOTE: I've had for 20 years IBS-C, or something...

I just finished the lower dose and am now on 3rd day of higher dose. I've had some flushing but not real bad and no gastointestinal probs like diarrhea as of yet. [Maybe that's because I also have IBS-C and, according to gastroentrologist, something called small intestine bacterial overgrowth--SIBO]...

Okay, will start on my 3day diary of my food & supplements intake. Thank you. hi yep granted I was assuming your 309 was in pg/mL and that would be the units for the 500 target too. the number is lower pmol/L (what my local lab uses) - for that target I just multiply by 0.738. I use 500 pmol/L a...

ah, low meat.. that explains the b12. try to keep it at least 500. now, low meat + whole grains prompt me to ask for a three day food/fluid/meds/supplements diary. I could look for combinations that might be contributing to depletion in combination with your activity level. Do you you mean B12 leve...

CaliReader, two or five cents or even a buck's worth are all appreciated. The Neurologist I've been seeing since early summer is a MS Specialist, and is known in my area as one so I reckon that's worth something, eh? I've been reading about side effects of Tecfidera, along with all the other drugs. ...

Dear lyndacarol and jimmylegs, I hope your respective Thanksgivings were fulfilling and pleasing. Thanks for responding--you two do seem to be the basic respondents, right? I'll address some of your comments individually. lyndacarol--while in hospital for 3 days I was tested for diabetes, thyroidism...

Hello all, A couple months ago I was diagnosed with MS based on MRIs and spinal tap and a few symptoms. MRIs did show lesions in lumbar area of spinal cord and a few in brain. Neurologist said he wasn't worried about brain ones. Thing is, the symptoms I originally had I still have and it's been 7 mo...